don't trust any one

don't trust any one

hi every one I find it very hard at lot time s putting up with it but if you think people out there will listen forget it I was feeling really low and at 60 thinking I cant really cope at work so been of on esa I went for a reassessment and could not believe what they wrote about me totally ignored everything I told them I go to my support group because it help me come to turn s and not feeling alone helped me to cope , gosh they said I went a support group to see friends every thing I said was turned around , I don't trust any one they just ignore you and make out your a liar , this knocked me for a six feel worse now still if you think your on your own well you are , don't recognise tinnitus only aa or drug link every one else don't want know , I just wanted some one listen ,

16 Replies

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  • Hi Pebble,

    I am sorry to hear of the difficulties that you had with ESA. If you want to discuss this matter further. I can supply you with information regarding ESA and tinnitus, that you probably are not aware of. Please send me your email address by Private Messenger and not post it in the forum.

    All the best

    Michael

  • Hi Pebble & Michael

    Thanks Pebble for bringing this up. I have a medical coming up to assess my fitness for work in July which I'm dreading so I would really appreciate it Michael if you could also supply me with this information you have if I send you my email address.

    Kind Regards

    Lesley

  • I will reply to you Lesley no problem

    All the best

    Michael

  • I have sent you a private message michaelee

  • John does this mean they`re trying to get you to go back to work ? Sounds like they`re not very sympathetic. They don`t realise what tinnitus does to a person. You know that you`ve got the support of everyone at the group. Love Lynne xx

  • Hi Lynne,

    What John / Pebble is saying is correct. Many of these so called "health professionals" at ESA health assessment centres know absolutely nothing about tinnitus other than it is a noise in the ears. Many of them are not doctors but nurses. I have factual information that will help John if he wants it.

    Take care

    Michael

  • thank you yes any help I only trust people who have tinnitus who understand

  • That would be good Michael - I know how much John`s tinnitus affects him and I know he would be grateful for all the help you can give him.

    Love Lynne xx

  • HI Lynne,

    I will PM you if you and hope that you don't mind.

    Michael

  • Hi John,

    Michael, I am sure, will give you good information which will help you with your case.

    I was also wondering if Dot could help you - she sees you every week and knows like I do how much your tinnitus affects you and also how much benefit you get from coming to the group.

    I`ll see you on Wednesday. Take care.

    Love Lynne xx

  • Hi John/Pebble

    Please send me your email address in Private messenger. I will then be able to give you information that will be helpful.

    Michael

  • Hi Pebble & Michael

    Thanks for bringing this up. I have a medical coming up to assess my fitness for work which I am dreading so Michael I would really appreciate it if you could also supply me with this information you have regarding ESA and tinnitus if I send you my email address.

    Kind Regards

    Lesley

  • Hi. Sorry you are having such a hard time , and that ironically or rather aptly for tinnitus that you feel noone is listening. I had horrendous experience with hearing department, and work wise I am living off my savings til they run out. This forum is good , members do listen and ditto BTA helpline. I think one of the problems is that if people don't have tinnitus or only have mild tinnitus ( like mine was at the beginning ) it seems Harcourt to understand what torture it is . Take care 😊

  • Hi there - I've removed posts with email addresses as that breaches the rules of our community. Please send email addresses via private message if you wish to communicate that way. Thank you!

  • thank you so sorry , I not very good on computer s

  • Hi John,

    Like you I had no help from them and have other health issues you know about.

    Its getting tougher to claim anything now .

    See you Wednesday John and see what we can do to try help you.

    Love glynis x

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