Nightmare - but not asleep! : Hi folks... - Tinnitus UK

Tinnitus UK

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Nightmare - but not asleep!

Lindsay6 profile image
6 Replies

Hi folks. Usually only go on forum dusing the day , but am at my wits end . Can't sleep or even rest because of the sheer ferocity of the piercing shrill. Accompanying my 82 year old father on a coach trip for oldies to Dublin - got to be up at 3 am and sit on a coach for a whole day . Just want to cry or run somewhere - but there is nowhere. Sorry , but each time I think its reached its peak , it hasn't 😠

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Lindsay6 profile image
Lindsay6
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6 Replies
Angela-H profile image
Angela-H

Oh dear Lindsay, not nice to read that you're still suffering. Perhaps you "do too much" and your body and mind can't relax? I know we're meant to distract our brains from T but we have to avoid stress. I know that my T gets bothersome if I am in the least agitated about anything. Have you tried the herbal meds St. John's wort or valerian? Or - michaelee has recommended prescribed pills in a post he wrote to drumcraw? Hope that you got some sleep and have a pleasant time in Dublin. Love, Angela xx

berry76 profile image
berry76

Anxiety over the Dublin trip is not helping you .... but hopefully you will find the distraction of different company, sights and sounds will be a welcome diversion.

Hang in there....every best wish.

GDJTAM profile image
GDJTAM

Hi Lindsay, I am just over a week into this torture and fighting to deal with the T, the emotions are all over the place. I am going on a cruise with my wife in August as a special treat for us and now I have this T which has got be down big time.

However, I found this forum and already have learned that what I am currently going through is the same as many people do. I was very upset, angry, tired and going out of my mind but I am now coming to terms with dealing with the process to manage the T.

I have now stopped googling and looking for a quick fix. the forum people on hear have probably tried what your thinking of doing and can inform you from their experiences.

I am now on the first steps to manage this horrid T which is to tell my brain I am going to try and carry on as normal and focus on things other than a high pitched tone. I am also stating to use T APPS to help me at night as for the past week I have just cat napped.

Good luck, don't give up and perhaps we can both put this T in the attic of our brain

Lindsay6 profile image
Lindsay6

Hi all. Thank you so very much , it took a lot for me to post as it meant I was struggling and I hate that feeling. Sorry for the reply - I have just worked how to do the WiFi in the hotel on my phone. I didn't sleep that night , had a 14 hour journey on coach , ferry ( I loved the ferocity and freshness of the wind and waves as we crossed the Irish Sea ) and coach journey. My first holiday in 30 years , so guess it is a bit strange. Not wanting to let my father down. Home Builders Survey showing up lots of things so it looks like I still won't have a settled home. So no wonder the tinnitus is raging . BUT I have managed to get through , no managed to enjoy the day in Dublin today ( even if the very visible homeless guys upset me ) . It has pleased my father too. Yes , I am tired having to ' bat away ' the noise, am too tired to rationalise it but it's been nice in a way . I have had a few moments of , if my tinnitus were not so bad I could really enjoy it and particularly ' The next holiday I have , I will be better ' but maybe just having a break from everything for a few days is ok. I must be more committed to myself , just not good at that and hope people do not think I am dismissive of their suggestions and care. Bloomin' hec I hear you sigh - just nice to communicate with fellow people on equal level. PSo. Despite the rambling nature of this text , I can assure you I have not been on the Guinness!

Angela-H profile image
Angela-H

Hi Lindsay, please enjoy your break as much as you can. I love ferries too, esp now I have the T as it is all so calming. Your life seems to be full of stress pinpoints. I know for a fact that unless I have calm ordered surroundings my brain seems to have a fizzy electrical feeling. When calm, I don't hear the T.

Try to make time for yourself, look into herbal, natural remedies and nature sounds.

I am retired from work so I have the benefit of being able to order my life as I want most of the time - so it is easy for me to offer such advice I know. But, put yourself first for a change and you may get some peace. I do find that I am tired most of the time since getting T as it seems to take energy to keep it quiet. All very odd, but that is the nature of this truly horrible condition that only sufferers can understand.

Hope you do have a Guinness or two whilst in Dublin. Lovely with a cheese ploughmans! Love. Angela xx

Lindsay6 profile image
Lindsay6 in reply to Angela-H

Hi Angela . Thanks , for your understanding and time to write. I hope you are enjoying the sunshine . You are spot on , I have had a stressfilled life since a child and / but knowing this ironically keeps me going - in that if I can make the changes , there is every chance things can improve with my tinnitus. I loved the Irish country side , did had some guiness in Dublin and it was nice not to access wifi for solicitors emails! It was extreemely tiring though , as i was was constantly ' on alert' mode to make sure my Dad was ok , to sit on a coach for long periods of time ; the bus driver was full of unpleasant comments about lots of things ( politics, religion , women ) and made one of the 82 year old passengers cry and upset most of the others . Since I came back I have seen a friend in a tricky marriage , been into town with my Mum to help her try on clothes ( strange to see armed police ) and am soon to view another property and go to an event at the capmapaign office of our constituency MP . I am pleased I am busy , but also know its because I can't settle with the tinnitus. If I had one wish , it would be to sit for 10 minutes , with a nice drink , in a garden and for it not to be hard work. Big changes are needed , and I must start making the samll steps - though it's not easy . I sometimes think I need to do it all / 'dramatically' - and at Dublin Port on Friday , smelling the sea I texted a few friends to say I was moving to the sea side - I can actually spend hours by it. Now I wonder if ENT would fund a new life for me back in my maternal family's Aberdeenshire ? That's a thought ! Thanks again xx

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