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Hello
Hey, I'm new. I've been looking for a community of women like me. I'm having a hard day... For a while now. But I went to a new family Dr after my move. When we started talking about my endometriosis she didn't seem to care about how much pain I'm in or have been in. How much this has effected my life
Hey, I'm new. I've been looking for a community of women like me. I'm having a hard day... For a while now. But I went to a new family Dr after my move. When we started talking about my endometriosis she didn't seem to care about how much pain I'm in or have been in. How much this has effected my life
ChildofGod07
in
Endometriosis UK
11 days ago
hysterectomy and ovary removal
hi, I’m after some advice pls. I have severe endo and adenmyosis. I’ve had a son and wont be having more children. The gynae has advised doing a full hysterectomy and removal of both ovaries. Can anyone tell me how the recovery is, when I would expect to be back working at my desk job? Did it help you
hi, I’m after some advice pls. I have severe endo and adenmyosis. I’ve had a son and wont be having more children. The gynae has advised doing a full hysterectomy and removal of both ovaries. Can anyone tell me how the recovery is, when I would expect to be back working at my desk job? Did it help you
Sara2013
in
Endometriosis UK
11 days ago
Heart Conditions & Endometriosis
Hi, i am a 45 yr old who got diagnosed with endo 7 yrs ago and had surgery which helped for a short period of time, used contraceptive pill to reduce symptoms which is did fractionally and then put on a GNHR and HRT for 6 months. After the GNHR and HRT treatment was finished i was taken into hospital
Hi, i am a 45 yr old who got diagnosed with endo 7 yrs ago and had surgery which helped for a short period of time, used contraceptive pill to reduce symptoms which is did fractionally and then put on a GNHR and HRT for 6 months. After the GNHR and HRT treatment was finished i was taken into hospital
Terrapin78
in
Endometriosis UK
12 days ago
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Cancer diagnosis/Operation & impact on Fibromyalgia
Hello everyone😊 I never post anything, but often reply to other members. I’ve had a lot of ill health in other areas and I had 15 biopsies a few wks ago, which left me in a lot of pain & feeling nauseous ever since. The nurses were fantastic👏🏻and explained how it was now like 15 open wounds inside
Hello everyone😊 I never post anything, but often reply to other members. I’ve had a lot of ill health in other areas and I had 15 biopsies a few wks ago, which left me in a lot of pain & feeling nauseous ever since. The nurses were fantastic👏🏻and explained how it was now like 15 open wounds inside
DoubleMalibu
in
Fibromyalgia Action UK
13 days ago
Benefit of private consultation, Adeno & Fybroids
Hi this is the first time I have posted here, but have been following messages for a while and just wanted to share the positive experience I’ve had with a private consultation. I started in November last year with what I would describe as hemorrhaging. I’ve always had heavy periods but this was uncontrolled
Hi this is the first time I have posted here, but have been following messages for a while and just wanted to share the positive experience I’ve had with a private consultation. I started in November last year with what I would describe as hemorrhaging. I’ve always had heavy periods but this was uncontrolled
Clarabellapp
in
Endometriosis UK
14 days ago
Pelvic pain back 3 months after Hysterectomy
I have had significant pelvic pain with bowel and bladder issues for 2.5 years. It was hard to get a diagnosis. I was told at first it was a bowel issue, then Endometriosis/Adenomyosis and was eventually diagnosed with 4 fibroids, 1 being 7cm. A year ago, I was put on Prostap and add back hrt. The Prostap
I have had significant pelvic pain with bowel and bladder issues for 2.5 years. It was hard to get a diagnosis. I was told at first it was a bowel issue, then Endometriosis/Adenomyosis and was eventually diagnosed with 4 fibroids, 1 being 7cm. A year ago, I was put on Prostap and add back hrt. The Prostap
Mindfullness4791
in
Endometriosis UK
14 days ago
Original pelvic pain back 3 months after hysterectomy
To cut a very long story short. I have had significant pelvic pain with bowel and bladder issues for 2.5 years. It was difficult to get a diagnosis. I was told at first it was a bowel issue, then Endometriosis/Adenomyosis and was eventually diagnosed with 4 fibroids, 1 being 7cm. A year ago, I was put
To cut a very long story short. I have had significant pelvic pain with bowel and bladder issues for 2.5 years. It was difficult to get a diagnosis. I was told at first it was a bowel issue, then Endometriosis/Adenomyosis and was eventually diagnosed with 4 fibroids, 1 being 7cm. A year ago, I was put
Mindfullness4791
in
Pelvic Pain Support Network
14 days ago
Long post sorry
I was officially diagnosed with endo 4 years ago after having my appendix removed and the surgeon seeing the issues at the same time. I have been fighting with doctors for over 20 years to believe that there was something wrong. I have had 6 months of hormone injections that were amazing and sorted
I was officially diagnosed with endo 4 years ago after having my appendix removed and the surgeon seeing the issues at the same time. I have been fighting with doctors for over 20 years to believe that there was something wrong. I have had 6 months of hormone injections that were amazing and sorted
Fudge05
in
Endometriosis UK
16 days ago
Provera advice
Hi all, I had a lot of really supportive posts after my last one so I’m diving in again. My consultant has recommended I go on Provera (10mg twice a day) until I have a hysterectomy at some point in the next year. I’d be on it permanently, so no breaks. I stupidly googled (because apparently I’m a
Hi all, I had a lot of really supportive posts after my last one so I’m diving in again. My consultant has recommended I go on Provera (10mg twice a day) until I have a hysterectomy at some point in the next year. I’d be on it permanently, so no breaks. I stupidly googled (because apparently I’m a
Laura2306
in
Endometriosis UK
18 days ago
catheter pain post lap
Hi, I had a laproscopy on 22nd of may, in prep for my hysterectomy. I was told that the team needed to catherterise me on the table in the procedure. since this I have had terrible pain when passing urine, and a very heavy full feeling deep in my abdomen. feel like my ureters are bruised etc. GP has
Hi, I had a laproscopy on 22nd of may, in prep for my hysterectomy. I was told that the team needed to catherterise me on the table in the procedure. since this I have had terrible pain when passing urine, and a very heavy full feeling deep in my abdomen. feel like my ureters are bruised etc. GP has
Foodman500
in
Endometriosis UK
19 days ago
Confused! Adhesiolysis or Hysterectomy or Mirena!
I attended a follow up appointment this morning which was booked straight after my lap in March. It was with the original team (let's call them Team A), as since then I was put under a different team for Laparoscopic Adhesiolysis after finding severe, dense, widespread adhesions. Team B refused to scan
I attended a follow up appointment this morning which was booked straight after my lap in March. It was with the original team (let's call them Team A), as since then I was put under a different team for Laparoscopic Adhesiolysis after finding severe, dense, widespread adhesions. Team B refused to scan
TallulaShark
in
Endometriosis UK
19 days ago
Both ovaries out or not?
Hi, its me again! So ive read my notes from my MDT meeting and noticed they want to take both my ovaries out when they do my hysterectomy and endo excision. One has a big endometrioma on it and as of last year the scan showed the other was healthy. My question is do I agree to them both coming out and
Hi, its me again! So ive read my notes from my MDT meeting and noticed they want to take both my ovaries out when they do my hysterectomy and endo excision. One has a big endometrioma on it and as of last year the scan showed the other was healthy. My question is do I agree to them both coming out and
Loveneige
in
Endometriosis UK
20 days ago
adenomyosis
Hey Just looking for some advice I had an MRI and it showed focal uterine adenomyosis. I haven’t had an appointment with my gynaecologist yet ( it’s in a few weeks) so haven’t discussed any options. But I’m getting severe back pain wondering if this is related to adenomyosis. I’m also don’t want a hysterectomy
Hey Just looking for some advice I had an MRI and it showed focal uterine adenomyosis. I haven’t had an appointment with my gynaecologist yet ( it’s in a few weeks) so haven’t discussed any options. But I’m getting severe back pain wondering if this is related to adenomyosis. I’m also don’t want a hysterectomy
Zbluee
in
Endometriosis UK
21 days ago
what to try next?
Hi everyone :) I don't think I've posted before, probably because as awful as endo is, I've been lucky in a lot of ways. . I was diagnosed via laparoscopy in 2015, and I live in a city with an accredited endo centre, so my surgeon knew what he was doing. He found and excised a few spots in various places
Hi everyone :) I don't think I've posted before, probably because as awful as endo is, I've been lucky in a lot of ways. . I was diagnosed via laparoscopy in 2015, and I live in a city with an accredited endo centre, so my surgeon knew what he was doing. He found and excised a few spots in various places
KML22
in
Endometriosis UK
23 days ago
Borderline Ovarian Tumour and Endo diagnosis.
Hi all, I’ve recently had some news that I will need to have a full hysterectomy due to a biopsy result from an ovarian cyst I had removed 6 weeks ago. There is the option to keep one ovary for now. I was very lucky to have been seen by a gynaecologist and surgeon at my first referral appointment
Hi all, I’ve recently had some news that I will need to have a full hysterectomy due to a biopsy result from an ovarian cyst I had removed 6 weeks ago. There is the option to keep one ovary for now. I was very lucky to have been seen by a gynaecologist and surgeon at my first referral appointment
Hellohannah
in
Endometriosis UK
23 days ago
Muscinous ovarian cancer
Hi, I am diagnosed with mucinous cancer following initial benign ovary mass in 2021 when i had the tumour removed as well as hysterectomy and appendix removal.Dec 2023 - recurrence which resulted in debulking and spleen removed. Just finished 6 x chemo treatments and now on 3 monthly checks. There really
Hi, I am diagnosed with mucinous cancer following initial benign ovary mass in 2021 when i had the tumour removed as well as hysterectomy and appendix removal.Dec 2023 - recurrence which resulted in debulking and spleen removed. Just finished 6 x chemo treatments and now on 3 monthly checks. There really
Cah60
in
My Ovacome
24 days ago
Endo sufferer here...
Hi, I was diagnosed with endometriosis in my 20's and I am now 54. I have had several laparoscopies, a laparotomy, had one tube removed. I also have PCOS. I have been on various drugs and for what seemed ages, progesterone tablets. My GP said that I had been on them for ages and that I should come
Hi, I was diagnosed with endometriosis in my 20's and I am now 54. I have had several laparoscopies, a laparotomy, had one tube removed. I also have PCOS. I have been on various drugs and for what seemed ages, progesterone tablets. My GP said that I had been on them for ages and that I should come
pickles36
in
Endometriosis UK
24 days ago
hysterectomy
hi is anyone waiting for a hysterectomy
hi is anyone waiting for a hysterectomy
Aarchi786
in
Women's Health
27 days ago
Adenomyosis & IVF - a bloke in need of understanding and reading good news
Hi Guys,Unusual for a fella to get on here and post but I have been a reader, researcher, hoper, any one else in the same boat-er as us for a few years now. I'd love to hear from any of you who have walked a similar road to my wife (38yrs) and I (43yrs) After having 3 miscarriages, we were recommended
Hi Guys,Unusual for a fella to get on here and post but I have been a reader, researcher, hoper, any one else in the same boat-er as us for a few years now. I'd love to hear from any of you who have walked a similar road to my wife (38yrs) and I (43yrs) After having 3 miscarriages, we were recommended
Matt_p
in
Fertility Network UK
28 days ago
Prostap injection
Hi everyone. I had my first prostap injection 3 weeks ago as told I would have no bleeding. Yesterday I started spotting with some stomach ache. Not terrible but frustrating as the purpose of this injection was to stop my bleeding. How long does bleeding last as due full hysterectomy possibly September
Hi everyone. I had my first prostap injection 3 weeks ago as told I would have no bleeding. Yesterday I started spotting with some stomach ache. Not terrible but frustrating as the purpose of this injection was to stop my bleeding. How long does bleeding last as due full hysterectomy possibly September
Doglover73
in
Endometriosis UK
1 month ago
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