Insurance and transplant woes

[horsie63]

I have two things yet to do to get back active on the list after being in the hospital for 2 months last fall. One is a discussion with the transplant nephrologist which since I live 3 hours away they said I could do as a telehealth.

That was set up today after dialysis but before it started they called an said no, since I live in OK and he's only licensed for MO and KS I could not do a telehealth. Come to find out that in order to speak with this doc I'd either have to drive into MO/KS and do it from there OR drive the 3 hours into the center to meet with him. BUT only on a Tues or Thur. Those are my dialysis days along with Sat so that's a no go too unless my nephrologist lets me have a day off.

Second is a chest xray. I had a bone scan at the hospital here last Monday and asked to do the xray while I was there. They didn't have any orders. I let the transplant coordinator know and she said she re-did the orders. Now I just need to go back to the hospital and see if they are there. Yay they are so I'll just have to go in.

One thing gone right. It's not the dialysis that wears on me it's setting up and going to doctors appts. At least MY nephrologist shows up at the dialysis center once a month and I don't have to go to him.

Oh, Sat I used my graft for the first time. Put on the numbing cream and it didn't hurt at all. Right now they are only using one needle and one of the chest catheters. They tried to put in a second needle but could not get it. Instead of messing around they just did the one and the catheter.

I'm having the worst luck too....last Thur I took the garbage out and as I was coming back into the house I tripped and face planted on the concrete sidewalk. My face looks like hell, bruised all over but it doesn't hurt. Nothing is broken at least.

Hope everyone else is having better luck.

[Beachgirl32]

oh Horsie sending you hugs that more thing go right for you .glad you didn’t get super hurt from the fall . Glad graft is working hope everything else works out .

[jodaer]

Sending hugs and positive energy your way. You just can't seem to catch a break and hope that turns around soon.

[horsie63 in reply to jodaer]

At this rate I’m almost afraid to actually get a transplant. God only knows what could happen.

[Bassetmommer in reply to horsie63]

I know that feeling too.

[Darlenia]

Hang in there...one step at a time will cover the distance. I think you'll be active on the transplant list soon. Hugs!

[RhenDutchess123]

Thinking of you...We don't call you Horsie for nothing...You will be"back in the saddle" soon !

[horsie63]

Thanks everyone. The transplant coordinator is working on a solution so hopefully soon I'll know which direction to go in. Don't really like the idea of skipping a treatment as I also get my IV Protein during dialysis. They told me it could be a couple of months before I saw improvement in my protein levels so don't like missing that too.

[drmind]

OMG...sorry to hear all this, but I'm amazed how you bounce back. You inspire me. I get a rash on my butt and I'm depressed for a month. Thanks for setting good examples for "bouncing" back from set-backs. Hope you're wearing good shoes so that falling down is not an option. As always the best of wishes and lots of hugs.

[horsie63 in reply to drmind]

Thanks you are a fantastic example yourself. I think my days of ultramarathons and my Relentless Forward Progress tattoo help me get through these "challenges". Some of the other people on here inspire me with their resilience in how they deal with setbacks.