Otezla: I have had Behcets disease my whole life but... - ABDA

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Otezla

PankieGirl profile image
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I have had Behcets disease my whole life but they couldn't figure it out until I was 17. That's when I was officially diagnosed. I'm on Plaquenil which helps A LOT with ulcers. I also just started Colchicine for flares and Imuran daily. I've also been on Otezla since August of 2023. I guess my question is how long did it take you to notice a difference on Otezla? Because I honestly don't know if it's doing anything for me and it's been several months now. As time goes on I'm just getting sicker, and I want to take care of myself and find the right med combination. Thanks!

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PankieGirl
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wogsalG profile image
wogsalG

Been on and off it for years. It is effective but my liver function stats would always end up rising then I would have to reduce or come off. So keep an eye on your liver function. Good luck 🤞🏼

012703060610 profile image
012703060610

I have Behcet's and a whole host of other rare autoimmune diseases. I have had zero of my

Behcet's symptoms by switching from traditional immunosuppression therapies to a biologic. I am on Humira and it changed my world for two of my five autoimmune diseases. I was on methotrexate, but my liver function was bad too. I started on Imuran though. Both Mehtorexate and Imuran caused significant bowels issues for me. Best of luck.