Will try and sum up as short as i can, pain began on my right side in 2019 (painful periods for years before but told normal so i ignored it, didn't ease, had ultra sounds which showed ovarian cysts, told normal) bowels started to misbehave so sent for colonoscopy, all normal so told to adjust diet and get on with it lol
Pain has never gone only spread and increased. Due to period problems I thought it could have been endometriosis, had laparoscopy in 2021 with no biopsies taken told not that but could be adenomyosis and discharged.
in 2022 heavy bleeding started so went to gp, told to go on pill or have coil (no ta) sent away. bleeding got worse again so finally sent for scan in 2023 to find a polyp that was removed months later via hystroscopy. Periods now send me to the floor, so so painful and very heavy.
During this time bowels are still awful i have lost around 2 stone in weight (sent to weight loss people then told rudely that i had managed to keep my weight the same and why was i wasting their time!) Had gastroscopy which showed a coating of pus in my stomach to be told normal again!
So in this time still struggling to eat properly, severe pain after eating, pain very strong all the time in my abdomen and pelvis (pressure sharp stabbing needles) Now i have problems with pooping, not completing as it feels like something in the way front and back.
I have developed nerve damage to my left side, odd as pain started on the right, leg goes numb cant lift foot properly, back problems, weakness in hand and arm, dizzyness, changes to my vision, hip pains, groin and vaginal pain.
Sent to pain clinic where the mri of my lower spine showed some issues but told normal and shouldnt cause my pain, sigh..
My sister got real ill end of 2022 after her telling the gp there was poop in her urine for a YEAR! told by gp not possible 2 different systems.... my sister was right fistula between bladder and bowel nearly killed her! She was found to have crohns and had 60cm of bowel removed and bladder repair! So i struggle trusting and medical staff now.
I have been dumped into the pain clinic (after a very long wait over a year) seen the [pain doctor twice and given pregabalin, lidocain plasters, gabapentin cream and havent seen or heard anything since feb
At this point i dont know where to turn, they make it out like im making it up or because in 41 its menopause and im being a silly woman....
So now if i go to the GP they say why am i here, your under pain clinic go see them..
If i talk to pain clinic, they say its not us go to your gp...
I have prob left out some stuff to try to cut down the post, Not even sure why im posting this tbh but hey better out than in!
Keep sane and hope your having a low pain day x