Pins and needles in head and face, leg and arms.

[bubbatetley]

Hi, sending best wishes to you all.

Any help and advice on pins and needles in head, face and lower legs.

I have had this awful sensation for nearly a year now . This seems to get worse when my ody temperature rises. I have it all day and its really scary. GP at first said it was vertigo, which I knew it was'nt, he put me onto meds but they didn't help.

Had an MRI and that was normal, also ENT said all was ok.

Neurologist has given me Nortriptayline but, they are a nerve blocker tablet, again not helping.

Got to go back to Nerologist in June. This is not right to have these pins and needles randomly and feel like I have something sinister going on.

Any advice greatly appreciated

Take care and thank you all for being here to rant to.

Best wishes

Bubba😩😩

[SlowDragon Administrator]

what are your most recent TSH, Ft4 and FT3

Plus B12, folate, ferritin and vitamin D

Are you currently on just Levo or Levo and T3

What doses

What vitamin supplements are you taking

ALWAYS test early morning and last dose Levo 24 hours before test

Day before test split T3 as 3 small doses with last dose 8-12 hours before test

Pins and needles can be low B12 and/or low thyroid levels

[GREENcard13]

I had this sensation whilst taking Teva brand. What brand levo are you taking

[bubbatetley in reply to GREENcard13]

Hi GREENcard13, Thank you for reply. Hope you're well. I take Teva brand. I never thought of that, I,ve been on Teva for years. Did you have tingling in the face and legs?

🌸🌸

[GREENcard13 in reply to bubbatetley]

I had tingling/numbness all down my left side including my face and anxiety ( something I've never suffered with). My GP sent me to the stroke clinic where they checked me out and put it down to migraine. I had an mri which confirmed i hadnt had a TIA . I stopped Teva and the numbness etc abated. I also had skin flushing on my torso which my gp said was a reaction to medication and levo was the only med I take. This also cleared but I've now started to get itching with wockhardt I've come to the conclusion with hypothyroidism there's always something!!

[FW23]

Hi bubbatetley, if you look at my profile, you’ll see that your symptoms and journey seem to be very similar to mine and I know how difficult it is to deal with these symptoms.

I realised last November that the tingling/burning was related to a rise in what seems to be my core temperature and brought on when I overheat. Since then, I’ve made an effort to keep myself cold or cool. For me the worst time of year is late Autumn, Winter, and early Spring. This Winter I slept under a summer duvet but had to use just a sheet or light blanket at times, this stopped the burning in my scalp and lips but not my feet.

I tried to get my GP to increase my Levothyroxine from 50 mcg to 75 mcg, but she wouldn’t do this without me going to a private consultant which I did. I’ve been on the increased T4 dose for 5 weeks and agreed to test my levels at 7-8 weeks. Certainly, my anxiety and low moods have lessened, and my feet seem to burn less at night. I’ve slept for a straight 7hrs, but summer has always been easier since the temperature stays within a smaller range.

I’m hopeful, but if the additional T4 doesn’t resolve it and my T3 remains low I will try adding T3 which the consultant suggested.

I also saw a different GP on my last visit, and he said ‘we need to do some other investigations to see what might be causing this’. I was shocked since the other GP’s had given up and just shrugged their shoulders.

If things work out and I’ll let you know.

[klr31]

What are your B12 levels?

[humanbean]

Just a few suggestions...

1) Could be caused by untreated diabetes or pre-diabetes.

2) Could be peripheral neuropathy

en.wikipedia.org/wiki/Perip...

3) If you are low or high in vitamin B6 :

Deficiency : en.wikipedia.org/wiki/Vitam...

Toxicity : en.wikipedia.org/wiki/Megav...

[bubbatetley in reply to humanbean]

Thank you for advice.👍