I have suffered from migraines for over 30 years usually one ever couple of months but I’ve had 2 within 6 days! My TSH was 0.25 so my GP recommended lowering my Levo to 75mcg from 100mcg daily which I did for a few weeks but I felt dreadful and my TSH went back up to 2.4 so I decided to up my dose back up to 100mcg a couple of weeks ago and I’m wondering if this could be the cause of the increase in migraines? My usual brand of Actavis has recently changed names to Accord and I’m also wondering if the formulation may have changed. I always stick with the same brand and have done for over 8 years now as I found it worked well for me, but things don’t seem the same since the name change.
Any advice would be most welcome, as I am quite worried as I have had to take time off work twice within a week!
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Shazy-B
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Accord and Activis are (in theory) exactly the same tablets ....just rebranded.
But several members are convinced they are different
What vitamin supplements are you currently taking
Bloods should be retested 6-8 weeks after any dose or brand change in levothyroxine
For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also EXTREMELY important to test vitamin D, folate, ferritin and B12
Low vitamin levels are extremely common, especially if you have autoimmune thyroid disease (Hashimoto's) diagnosed by raised Thyroid antibodies
Ask GP to test vitamin levels
Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .
Last dose of Levothyroxine 24 hours prior to blood test. (taking delayed dose immediately after blood draw).
This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)
Is this how you do your tests?
Private tests are available as NHS currently rarely tests Ft3 or thyroid antibodies or all relevant vitamins
I’m not currently taking any vitamin supplements, I had them checked a couple of months ago as I had low folate at the beginning of the year. They all came back “normal” I am currently on a transdermal HRT (patch) 25mg changed twice weekly as I had a hysterectomy 20 years ago.
I have also been experiencing heightened anxiety for the past few weeks, something I have had for approximately 10 years but once I had my medications right it was definitely more controlled and not as prevalent.
I have asked for my T3 to be checked but of course my request was declined, my GP said the labs won’t test because they see no need as my TSH is within range!
I always miss my morning dose before having bloods drawn then take a delayed dose.
I think my only option is to get a full Thyroid panel private test and maybe ask for an Endo referral.
Migraines are so debilitating not to mention painful and interfere with my life so much, it gets me down.
My GP has requested more bloods today as I have increased back to 100mcg of levothyroxine, including TPOAB she can’t request B12/Folate as there is currently as shortage!
These were my results back in July:
Serum TSH 2.1 (0.30-6.00) on 75mcg levothyroxine
Vit D2 7nmol
Vit D3 83nmol
Combined total D2 + D3 90 nmol (>75nmol)
B12/Folate
Serum B12 496ng (200-770ng/L)
Serum folate 10 ug/L (3.90-26.80ug/L) after 4 months of taking folic acid as previous result was 2ug/L
I actually don’t know whether I do have Hashimoto’s or if it’s autoimmune acquired as my GP can’t find my antibody test results from years ago when I was initially diagnosed. Would it be worth asking for another antibody test, will they still show at this stage?
I do feel myself it is Hashimoto’s as I definitely have swings.
I have had a number of migraines since being diagnosed hypothyroid (around ten years).
They have all been visual migraines - with only a little bit of nausea, feeling a bit wiped out, etc. and no pain.
At one point I had a series of very minor migraines. More recently, two very significant ones. But I have never identified any factor which triggers them - like change of levothyroxine. Not even change of pack/batch! Not time of day.
Pre-hypothyroidism, I did have the very occasional migraine, including (many years ago) ones with headache. Since, I have had many more. For that reason, I do associate them with hypothyroidism and/or levothyroxine but without any understanding as to the nature of that connection.
I too have had visual migraines , sometimes followed by a headache. They begin with a blind spot followed by zig zags that radiate out until they go out of my field of vision. They usually last about 30 minutes from the start of the blind spot appearing.
I seem to get them more if I am really stressed about something and I did wonder at one point if they were associated with a change in dosage of levothyroxine.
I went to my optician when I first got them but he said my eyesight was not causing them and that it was associated with the brain.
I am no wiser as to why I get them but it's reassuring to know that I'm not the only sufferer.
Agreed , not much fun, but I don't think they can be anything too serious otherwise I'd not be here , I've been getting them on and off for a few years now.
Mine are definitely becoming unbearable, over the past five weeks I’ve had five migraine attacks three of which were over a seven day period...I’m at my wits end with them now 😢 I’m convinced it’s since my Levo brand has changed names Accord formerly Actavis....it’s seems too coincidental that my migraines have increased since I got my last prescription that are now Accord. I’ve emailed them today asking if the formulation has changed and a list of the ingredients of both. I just need to find an answer now, it’s impacting on my day to day life not to mention my job, I’m so fed up.
I have always suffered with them (since the age of 16) I was only diagnosed Hypothyroid at age 32, 12 months after having a hysterectomy which I truly believe cause me to go hypo. When I was younger I attributed my migraines to hormones as they would occur either during pregnancy (severely) or at my time of the month.
As I currently have no fluctuation with my hormones as I don’t have a monthly cycle anymore I’m at a loss as to know what triggers them. They literally come like a bolt out of the blue for no apparent reason!
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NDT Question
Topiramate and Levothyroxine.
On levo for a year and T3 is still the same!
Minimum time on levothyroxine dose before testing levels
Do u all think i need t3? Will i be able to tolerate levo with a little t3?
