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Rituximab experience?
I have just started
Rituximab
infusions. This has made me feel even more fatigued and weak. Just hope it helps in the longer term. Does anyone have experience of this treatment? If so did you tolerate it ok? How did things work out for you? Thanks in advance 😀
I have just started
Rituximab
infusions. This has made me feel even more fatigued and weak. Just hope it helps in the longer term. Does anyone have experience of this treatment? If so did you tolerate it ok? How did things work out for you? Thanks in advance 😀
Kafkaontheshore
in
Vasculitis UK
4 months ago
Rituximab experience?
I have just started
Rituximab
infusions. This has made me feel even more fatigued and weak. Just hope it helps in the longer term. Does anyone have experience of this treatment? If so did you tolerate it ok? How did things work out for you? Thanks in advance 😀
I have just started
Rituximab
infusions. This has made me feel even more fatigued and weak. Just hope it helps in the longer term. Does anyone have experience of this treatment? If so did you tolerate it ok? How did things work out for you? Thanks in advance 😀
Kafkaontheshore
in
PMRGCAuk
4 months ago
Any one here with this particular ANA ?
I had just had a set of
Rituximab
5 days prior, so my antibodies should have been really knocked down. My anti cardiolipin was still a bit elevated at 26 I think. ( usually it’s down from 38 to 0. ) I actually don’t know anything about this antibody- I read the SS is Sjögren specific?
I had just had a set of
Rituximab
5 days prior, so my antibodies should have been really knocked down. My anti cardiolipin was still a bit elevated at 26 I think. ( usually it’s down from 38 to 0. ) I actually don’t know anything about this antibody- I read the SS is Sjögren specific?
KellyInTexas
Administrator
in
Hughes Syndrome APS Forum
3 months ago
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Rituximab and pets
I’m currently undergoing treatment with
Rituximab
and am considering adopting a cat. I would appreciate any insights regarding the risk of increased infections or other concerns related to these furry companions. Thank you.
I’m currently undergoing treatment with
Rituximab
and am considering adopting a cat. I would appreciate any insights regarding the risk of increased infections or other concerns related to these furry companions. Thank you.
ks1966
in
NRAS
3 months ago
PEP for asthma
Due to being immunocompromised …on
Rituximab
infusion. I keep getting the same chest infection. Had three lots of antibiotics over 4 weeks. I was considering buying a PEP to try and keep my chest clear. Has anyone any advice on which to buy please? TIA
Due to being immunocompromised …on
Rituximab
infusion. I keep getting the same chest infection. Had three lots of antibiotics over 4 weeks. I was considering buying a PEP to try and keep my chest clear. Has anyone any advice on which to buy please? TIA
Evie3
in
Asthma Community Forum
3 months ago
Covid Vaccines - Update
Hi All I’ve been trying to find out when we’re next due a vaccine as I’m also due another dose of
rituximab
and was hoping to get it done first. Just seen an update on the NHS website , immune suppressed will be offered from April.
Hi All I’ve been trying to find out when we’re next due a vaccine as I’m also due another dose of
rituximab
and was hoping to get it done first. Just seen an update on the NHS website , immune suppressed will be offered from April.
Galaxy2
in
Vasculitis UK
3 months ago
Rituximab infusion tomorrow !!
But I have my first
rituximab
infusion tomorrow, I was wondering if anyone had any tips logistics-wise. Also, do they expect you to lie still for 6 hours and can you go to the bathroom? I figured I'd bring lunch, a jacket, a book, or a sketchbook and listen to music.
But I have my first
rituximab
infusion tomorrow, I was wondering if anyone had any tips logistics-wise. Also, do they expect you to lie still for 6 hours and can you go to the bathroom? I figured I'd bring lunch, a jacket, a book, or a sketchbook and listen to music.
poppies_are_red
in
LUPUS UK
4 months ago
Rituximab and hair loss
Hello, I've just had my first two doses of
Rituximab
in February, and I've been noticing more hair loss when I wash my hair. Has anyone had this, and do you have any remedies? I have fine hair too. I'm on a mix of methotrexate, prednisolone and hydroxychloroquine. Many thanks!
Hello, I've just had my first two doses of
Rituximab
in February, and I've been noticing more hair loss when I wash my hair. Has anyone had this, and do you have any remedies? I have fine hair too. I'm on a mix of methotrexate, prednisolone and hydroxychloroquine. Many thanks!
poppies_are_red
in
LUPUS UK
3 months ago
Rituximab
does anyone have any advice about the effect of the COVID vaccine on
Rituximab
. I had my first infusion in July which has been successful for me and given me a pain free life. So don’t want to ‘mess it up by risking Covid vaccine if it has a negative effect. thanks
does anyone have any advice about the effect of the COVID vaccine on
Rituximab
. I had my first infusion in July which has been successful for me and given me a pain free life. So don’t want to ‘mess it up by risking Covid vaccine if it has a negative effect. thanks
Welshwomanprestatyn
in
NRAS
7 months ago
Rituximab blood results after 3rd treatment
Just finished 4 cycles of
Rituximab
over 4 weeks. Blood tests were taken two days before each treatment.
Just finished 4 cycles of
Rituximab
over 4 weeks. Blood tests were taken two days before each treatment.
Redkatt
in
CLL Support
2 days ago
Selbourn
Two weeks ago I was given, what the Rummy called a maintenance dose, of
Rituximab
and of course 125mg of prednisone first. All good apart from little sleep after the Pred! But now OK but very tired all the time could be the ANCA or the meds who knows.
Two weeks ago I was given, what the Rummy called a maintenance dose, of
Rituximab
and of course 125mg of prednisone first. All good apart from little sleep after the Pred! But now OK but very tired all the time could be the ANCA or the meds who knows.
Selbourn
in
Vasculitis UK
3 months ago
Rituximab - any advice?
At my rheumatology appointment yesterday my consultant came to the conclusion that amgevita has not worked for me and we agreed I would stop that and start
Rituximab
. Has this worked well for others? I understand that this is given by infusion every 6 months and wondered how people found that?
At my rheumatology appointment yesterday my consultant came to the conclusion that amgevita has not worked for me and we agreed I would stop that and start
Rituximab
. Has this worked well for others? I understand that this is given by infusion every 6 months and wondered how people found that?
Bookworm55
in
NRAS
5 months ago
Inflammation and mood
For me the first sign that my
rituximab
needs to be renewed is feeling low, a malaise. Happy to hear this is being taken seriously by medics. My rheumy is puzzled but says that as I've had RA since 1999 i know it better than anyone.
For me the first sign that my
rituximab
needs to be renewed is feeling low, a malaise. Happy to hear this is being taken seriously by medics. My rheumy is puzzled but says that as I've had RA since 1999 i know it better than anyone.
cathie
in
NRAS
16 days ago
Measles outbreak
I'm on
rituximab
, azathioprine and prednisolone. I'm up-to-date with vaccinations bit concerned about the measles outbreak in my area. Am I at risk due to being immunocompromised?
I'm on
rituximab
, azathioprine and prednisolone. I'm up-to-date with vaccinations bit concerned about the measles outbreak in my area. Am I at risk due to being immunocompromised?
Vqueen
in
Vasculitis UK
5 months ago
Weakness
Hello,I've had rheumatoid arthritis 28 years been on different drugs over years ,I have been methotrexate 25mg weekly for years folic acid I've been on
rituximab
every 6 months first course then 2 weeks later 2nd course for 4 year ,I'm starting to feel very weak I'm normally won't let it beat me ,I feel
Hello,I've had rheumatoid arthritis 28 years been on different drugs over years ,I have been methotrexate 25mg weekly for years folic acid I've been on
rituximab
every 6 months first course then 2 weeks later 2nd course for 4 year ,I'm starting to feel very weak I'm normally won't let it beat me ,I feel
Justlucy
in
NRAS
2 months ago
Rituximab
Dear All, My 25 year old daughter with SLE has been asked to start
rituximab
infusion due to the renal team not being happy with the amount of protein in urine and think her current immune suppressants are no longer effective. May I please ask if anyone is on
rituximab
and any advice?
Dear All, My 25 year old daughter with SLE has been asked to start
rituximab
infusion due to the renal team not being happy with the amount of protein in urine and think her current immune suppressants are no longer effective. May I please ask if anyone is on
rituximab
and any advice?
Adiahama
in
LUPUS UK
7 months ago
rituximab
I wondered if anyone has had
rituximab
infusions for their myositis and what the experience has been like - impact on disease, side effects, infections due to immune suppression, infusion process itself? The rheumatologist has given this as a potential option and I’m seeking some insight.
I wondered if anyone has had
rituximab
infusions for their myositis and what the experience has been like - impact on disease, side effects, infections due to immune suppression, infusion process itself? The rheumatologist has given this as a potential option and I’m seeking some insight.
ruablue
in
Myositis UK
7 months ago
Abatacept
Good morning, I have been on
Rituximab
for a number of years , but having a really bad side effects now , saw Rhuemy a few weeks ago and she said that I might be switched to Abatacept .
Good morning, I have been on
Rituximab
for a number of years , but having a really bad side effects now , saw Rhuemy a few weeks ago and she said that I might be switched to Abatacept .
Jillyanne
in
NRAS
6 months ago
Wendy
My husband was diagnosed in 2010 at the age of 40. 2013 he had FCR. 11 years later, he is in week 5 of venteclax,
Rituximab
to follow next month. Swollen lymph nodes have disappeared.
My husband was diagnosed in 2010 at the age of 40. 2013 he had FCR. 11 years later, he is in week 5 of venteclax,
Rituximab
to follow next month. Swollen lymph nodes have disappeared.
Fluxthecat10
in
CLL Support
1 month ago
Avacopan and Pred
Hi, I had my first
rituximab
infusion last Tuesday. I have been supplied Avacopan, but still have Pred 40mg a day. No one has told me to stop Pred before starting Avacopan. Unsure if I should be stopping dead or finishing up existing tablets/tapering?
Hi, I had my first
rituximab
infusion last Tuesday. I have been supplied Avacopan, but still have Pred 40mg a day. No one has told me to stop Pred before starting Avacopan. Unsure if I should be stopping dead or finishing up existing tablets/tapering?
lollypocket
in
Vasculitis UK
4 months ago
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