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My Stem Cell Journey so far.
Hi everyone just thought I’d share my experience of STC with you. I began the prep treatment over a week ago which consisted of a concoction of IV and oral meds. The day before transplant I had Total Body Irradiation - on the 31st I received “the gift” of stem cells from an anonymous donor 🙏. Im sorry
Hi everyone just thought I’d share my experience of STC with you. I began the prep treatment over a week ago which consisted of a concoction of IV and oral meds. The day before transplant I had Total Body Irradiation - on the 31st I received “the gift” of stem cells from an anonymous donor 🙏. Im sorry
Billarina
in
CLL Support
9 months ago
benign paroxysmal positional vertigo
I suffer with this occasionally. I take methotrexate and hydroxychloroquine. Is this a drug side effect and does anyone else suffer? Thanks.
I suffer with this occasionally. I take methotrexate and hydroxychloroquine. Is this a drug side effect and does anyone else suffer? Thanks.
Pognose123
in
NRAS
2 months ago
Probiotics
Hi I wondered if anyone has used the Inessa advanced biotic complex? i've read that bifidobacterium infantis is good for gas and bloating ( and i have alot of gas!) and the inessa probiotic contains it whereas the one i'm using at the moment which is Time health probiotic doesn't. If not does anyone
Hi I wondered if anyone has used the Inessa advanced biotic complex? i've read that bifidobacterium infantis is good for gas and bloating ( and i have alot of gas!) and the inessa probiotic contains it whereas the one i'm using at the moment which is Time health probiotic doesn't. If not does anyone
catpurple7
in
Thyroid UK
9 months ago
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Candesartan for high BP
Has anyone taken Candesartan for high BP? I've recently taken Doxazosin, and Peridropil, both of which made RL much worse. My GP has prescribed this to start today. I'm hoping for better luck with this.
Has anyone taken Candesartan for high BP? I've recently taken Doxazosin, and Peridropil, both of which made RL much worse. My GP has prescribed this to start today. I'm hoping for better luck with this.
pennygates
in
Restless Legs Syndrome
10 months ago
Bam weight loss
Anyone on this group lost weight due to having bile acid malabsorption i have lost over 2 stone in the last 8 months and wat foods do people eat to ease the stomach
Anyone on this group lost weight due to having bile acid malabsorption i have lost over 2 stone in the last 8 months and wat foods do people eat to ease the stomach
Netbet22
in
IBS Network
10 months ago
Test results
Does anyone know much about test results for inflammation in stomache i did a stoole sample back in may to test for colprotin levels came back at 171 just done another one and has came back as 77 so wat does this indicate that its ibd or ibs i already have ibs and bile acid malabsorption any advice would
Does anyone know much about test results for inflammation in stomache i did a stoole sample back in may to test for colprotin levels came back at 171 just done another one and has came back as 77 so wat does this indicate that its ibd or ibs i already have ibs and bile acid malabsorption any advice would
Netbet22
in
IBS Network
10 months ago
Bile acid malabsorption
Hi , has anyone here had a seHCAT scan for bile acid malabsorption. Been having bad stomach issues for a while and with back log seeing consultant took ages . In March finally had a consultation and lots of test all clear . Not sure if this is last hope but having seHCAT scan for bile acid malabsorption
Hi , has anyone here had a seHCAT scan for bile acid malabsorption. Been having bad stomach issues for a while and with back log seeing consultant took ages . In March finally had a consultation and lots of test all clear . Not sure if this is last hope but having seHCAT scan for bile acid malabsorption
andepande
in
Pernicious Anaemia Society
11 months ago
Colesevelam
I am on colesevelam for bile acid malabsorption and all these tablets do is make me constipated i know they is alternatives to these tablets and thinking about changing but will the others do the same constant belly ache i do take laxitives to make me go but i cant live my life like this ,
I am on colesevelam for bile acid malabsorption and all these tablets do is make me constipated i know they is alternatives to these tablets and thinking about changing but will the others do the same constant belly ache i do take laxitives to make me go but i cant live my life like this ,
Netbet22
in
IBS Network
11 months ago
Niacin and Butyrate: Nutraceuticals Targeting Dysbiosis and Intestinal Permeability in Parkinson’s Disease
Does anybody have a good recommendation for Butyrate? I need to get off the dime and add this to my stack.
Niacin and Butyrate: Nutraceuticals Targeting Dysbiosis and Intestinal Permeability in Parkinson’s Disease https://healthunlocked.com/cure-parkinsons/posts/148959486/niacin-and-butyrate-nutraceuticals-targeting-dysbiosis-and-intestinal-permeability-in-parkinson
Does anybody have a good recommendation for Butyrate? I need to get off the dime and add this to my stack.
Niacin and Butyrate: Nutraceuticals Targeting Dysbiosis and Intestinal Permeability in Parkinson’s Disease https://healthunlocked.com/cure-parkinsons/posts/148959486/niacin-and-butyrate-nutraceuticals-targeting-dysbiosis-and-intestinal-permeability-in-parkinson
Bolt_Upright
in
Cure Parkinson's
11 months ago
Complaints
Just me again was wanting more advice on somethings i got diagnosed with symptomatic and problematic ibs in 2018 after having a pill cam done but over the years it has been getting worse now i have bile acid malabsorption which i got diagnosed with in January 2023 , i was back and forth to doctors over
Just me again was wanting more advice on somethings i got diagnosed with symptomatic and problematic ibs in 2018 after having a pill cam done but over the years it has been getting worse now i have bile acid malabsorption which i got diagnosed with in January 2023 , i was back and forth to doctors over
Netbet22
in
IBS Network
11 months ago
Ibs bam
Hi i am new to this group for years i have suffered with ibs am borderline ibd i have recently been diagnosed with bile acid malabsorption it has had me ill for the last 2_3 years all doctors use to say is that its your ibs playing up before i got diagnosed with bam any one else suffer with bile acid
Hi i am new to this group for years i have suffered with ibs am borderline ibd i have recently been diagnosed with bile acid malabsorption it has had me ill for the last 2_3 years all doctors use to say is that its your ibs playing up before i got diagnosed with bam any one else suffer with bile acid
Netbet22
in
IBS Network
1 year ago
Methylene Blue
Has anyone used or considered Methylene Blue in very low dosages for their Parkinson's? Franciso Gonzalez-Lima of the University of Texas, Austin is an expert on its advantages for treating neurological diseases. Mercola did an interview with him on the subject. Mercola does not promote synthetic drugs
Has anyone used or considered Methylene Blue in very low dosages for their Parkinson's? Franciso Gonzalez-Lima of the University of Texas, Austin is an expert on its advantages for treating neurological diseases. Mercola did an interview with him on the subject. Mercola does not promote synthetic drugs
Trailing
in
Cure Parkinson's
1 year ago
HU and prefibrotic myelofibrosis
Recently diagnosed first with ET. put on 500mg hydroxyurea daily with platelets at 617. After bone marrow aspiration and biopsy, diagnosis changed to prefibrotic myelofibrosis. HU had brought platelets down to 270 but I suffered from bad side effects. Dr didn’t want to change med or dosage. I resisted
Recently diagnosed first with ET. put on 500mg hydroxyurea daily with platelets at 617. After bone marrow aspiration and biopsy, diagnosis changed to prefibrotic myelofibrosis. HU had brought platelets down to 270 but I suffered from bad side effects. Dr didn’t want to change med or dosage. I resisted
Apple238
in
CLL Support
1 year ago
Intrinsic factor antibody result
Hi all, I've only just seen the result of an Intrinsic Factor Antibody test that was done in December before I started SI which I don't know how to interpret. I got a result of 2 u/ml (reference range is 0-24 u/ml). Is that a positive or a negative result? Does that confirm PA or not? Can someone explain
Hi all, I've only just seen the result of an Intrinsic Factor Antibody test that was done in December before I started SI which I don't know how to interpret. I got a result of 2 u/ml (reference range is 0-24 u/ml). Is that a positive or a negative result? Does that confirm PA or not? Can someone explain
Gecko22
in
Pernicious Anaemia Society
1 year ago
bile acid malabsorption
hi, is anyone here diagnosed with Bam ( bile acid malabsorption) I am just recently diagnosed and am yet to get any medication due to lack of supply. just wanting to hear someone else’s experience of this awful condition .
hi, is anyone here diagnosed with Bam ( bile acid malabsorption) I am just recently diagnosed and am yet to get any medication due to lack of supply. just wanting to hear someone else’s experience of this awful condition .
Kath2440
in
IBS Network
1 year ago
2017 all over again
I tried breaking this cycle in 2017 and now I'm back where I started, man mental health and depression is a lonely cycle and now I'm dealing with people stalking my house. Fighting so hard to keep myself in a positive space, but the environment as well as this day and age we're living in is very tough
I tried breaking this cycle in 2017 and now I'm back where I started, man mental health and depression is a lonely cycle and now I'm dealing with people stalking my house. Fighting so hard to keep myself in a positive space, but the environment as well as this day and age we're living in is very tough
Hidden
in
Anxiety Support
1 year ago
Hand, Foot & Mouth
Be aware of the childhood desease HF&M. My 2 year old grand twins caught HF&M last year.Unfortunately I caught it from them & it was a nightmare. Because of the thickness of my skin due to SS, the spots & sores could not break out on the surface of my skin. They errupted below the skin on my hands
Be aware of the childhood desease HF&M. My 2 year old grand twins caught HF&M last year.Unfortunately I caught it from them & it was a nightmare. Because of the thickness of my skin due to SS, the spots & sores could not break out on the surface of my skin. They errupted below the skin on my hands
Ildivolover
in
Scleroderma & Raynaud's UK (SRUK)
3 days ago
Sjorgren syndrome
Following months of repeated eye infections, I have now been diagnosed with dry eyes, and drops certainly seem to be helping. However I came across an article on Sjorgren syndrome,. The list of symptoms include dry mouth, IBS, dry eyes, dry skin, joint problems, all of which I suffer from. I also get
Following months of repeated eye infections, I have now been diagnosed with dry eyes, and drops certainly seem to be helping. However I came across an article on Sjorgren syndrome,. The list of symptoms include dry mouth, IBS, dry eyes, dry skin, joint problems, all of which I suffer from. I also get
Pippapot
in
MPN Voice
3 days ago
RA got worse after pneumonia
After pneumonia my ra took a turn for the worse. Could a medicine change help
After pneumonia my ra took a turn for the worse. Could a medicine change help
Vonnie69
in
NRAS
4 days ago
Help with steroid induced hyperglycaemia
My story is in my bio as it’s rather long! Is there anyone out there managing Steroid Induced Hyperglycaemia? As I started on 70mg and had to stay on it for 6 weeks after diagnosis, I quickly developed SIH and have found it a daily battle to control it despite being on a very low Carb diet indeed! Diabetic
My story is in my bio as it’s rather long! Is there anyone out there managing Steroid Induced Hyperglycaemia? As I started on 70mg and had to stay on it for 6 weeks after diagnosis, I quickly developed SIH and have found it a daily battle to control it despite being on a very low Carb diet indeed! Diabetic
AmberGamble
in
PMRGCAuk
5 days ago
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