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Mycophenolate
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Low wcc
Methotrexate made my hair fall out so I was put on
mycophenolate
about 18mths ago. Since then I have had to stop it numerous times because my wcc (in particular, neutrophils) keep dropping.
Methotrexate made my hair fall out so I was put on
mycophenolate
about 18mths ago. Since then I have had to stop it numerous times because my wcc (in particular, neutrophils) keep dropping.
Cactus7
in
NRAS
9 months ago
Dont panic.All I could think of was Corporal Jones.
She absolutely insists that the
Mycophenolate
will help a lot with the inflammation but I need to be patient. That mirrors the feedback I have had from some very helpful users on this excellent platform.
She absolutely insists that the
Mycophenolate
will help a lot with the inflammation but I need to be patient. That mirrors the feedback I have had from some very helpful users on this excellent platform.
DaveLister
in
Lung Conditions Community Forum
5 months ago
Continuous cough: post nasal drip?
Mycophenolate
x2 twice daily. Severe Raynauds unmedicated)
Mycophenolate
x2 twice daily. Severe Raynauds unmedicated)
Nw6London
in
Scleroderma & Raynaud's UK (SRUK)
8 months ago
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Methotrexate
I was taken off
Mycophenolate
and my Rheumatologist is now contemplating starting me on Methotrexate. Has anyone found this drug beneficial. I would love some feedback. Thanks
I was taken off
Mycophenolate
and my Rheumatologist is now contemplating starting me on Methotrexate. Has anyone found this drug beneficial. I would love some feedback. Thanks
robsim
in
LUPUS UK
10 months ago
Practical Weight loss advice whilst on steroids and MMF
I’m also on a titrated dose of
Mycophenolate
Mofetil (MMF) and won’t reach full strength (2x 500mg BID) until 4 weeks time. I need to get back to losing weight again. Keto shakes were very effective in life before Pred and MMF.
I’m also on a titrated dose of
Mycophenolate
Mofetil (MMF) and won’t reach full strength (2x 500mg BID) until 4 weeks time. I need to get back to losing weight again. Keto shakes were very effective in life before Pred and MMF.
LalaH52
in
LUPUS UK
5 months ago
GI issues post transplant
The transplant doctor has changed the
mycophenolate
and reduced the tacrilimus doses. I really haven’t noticed much of a change. Has anyone experienced this? If you have, what have you done and what would you recommend. Thanks - Happy Thanksgiving to all.
The transplant doctor has changed the
mycophenolate
and reduced the tacrilimus doses. I really haven’t noticed much of a change. Has anyone experienced this? If you have, what have you done and what would you recommend. Thanks - Happy Thanksgiving to all.
Tankjsl
in
Kidney Transplant
7 months ago
Itching due to medication??
Hello, I had a liver transplant 3 years ago and take tacrolimus,
mycophenolate
and prednisone for anti rejection. I have recently had a very itchy localised rash on my neck which I have been treating with hydrocortisone cream. This is having no effect.
Hello, I had a liver transplant 3 years ago and take tacrolimus,
mycophenolate
and prednisone for anti rejection. I have recently had a very itchy localised rash on my neck which I have been treating with hydrocortisone cream. This is having no effect.
Chasdog
in
British Liver Trust
9 months ago
Mycophenolate, sun protection and swimwear
Hi, I'm currently on
mycophenolate
(mg / x2 / twice daily) and in the active stages of systemic sclerosis. I have had some very mild skin tightening on the hands, but this has reversed. I used to be on hydroxychloroquine for about 6m then moved on to my
mycophenolate
.
Hi, I'm currently on
mycophenolate
(mg / x2 / twice daily) and in the active stages of systemic sclerosis. I have had some very mild skin tightening on the hands, but this has reversed. I used to be on hydroxychloroquine for about 6m then moved on to my
mycophenolate
.
Nw6London
in
Scleroderma & Raynaud's UK (SRUK)
10 months ago
CNS Symptoms and Advice
So my main question is should I be seeing an improvement by now, I’ve had cns involvement before but I was on
mycophenolate
then and that took a while to work. Does it also take a while for the inflammation in the cns and the symptoms to calm after rituximab?
So my main question is should I be seeing an improvement by now, I’ve had cns involvement before but I was on
mycophenolate
then and that took a while to work. Does it also take a while for the inflammation in the cns and the symptoms to calm after rituximab?
Galaxy2
in
Vasculitis UK
6 months ago
new normal blood tests
Hi - this is just a curiosity question: I get monitored fir
Mycophenolate
3 monthly. A long time ago I was misdiagnosed with Rheumatoid and this was due to high ESR and raised CRP with swollen hands.
Hi - this is just a curiosity question: I get monitored fir
Mycophenolate
3 monthly. A long time ago I was misdiagnosed with Rheumatoid and this was due to high ESR and raised CRP with swollen hands.
OldTed60
in
Scleroderma & Raynaud's UK (SRUK)
7 months ago
sailormo
Hi I have pmr trying to reduce my prednisalone from 20mg down to 16mg I've been up and down for afew years, I'm using
mycophenolate
to help me reduce but I've just had a knee replacement and have lots of aches in my neck shoulders, and thighs.Im feeling a bit depressed do you think the aches will get
Hi I have pmr trying to reduce my prednisalone from 20mg down to 16mg I've been up and down for afew years, I'm using
mycophenolate
to help me reduce but I've just had a knee replacement and have lots of aches in my neck shoulders, and thighs.Im feeling a bit depressed do you think the aches will get
Sailormo
in
PMRGCAuk
10 months ago
Gut and hands!
My gut issues (reflux, bowel frequency etc.) are manageable at the moment but I have to be careful - I am currently on
mycophenolate
, hydroxychloroquine, esomeprazole and antacid, plus eye drops for dry eyes. I think GPs require more education about this and other auto immune conditions.
My gut issues (reflux, bowel frequency etc.) are manageable at the moment but I have to be careful - I am currently on
mycophenolate
, hydroxychloroquine, esomeprazole and antacid, plus eye drops for dry eyes. I think GPs require more education about this and other auto immune conditions.
cheeselover342
in
Scleroderma & Raynaud's UK (SRUK)
7 months ago
Is this GCA? My first post here.
I take methotrexate,
mycophenolate
mofetil, Hydroxychloroquine and Mepacrine, plus Amitriptyline and omeprazole. Please photos below. Thank you in advance. Wendy
I take methotrexate,
mycophenolate
mofetil, Hydroxychloroquine and Mepacrine, plus Amitriptyline and omeprazole. Please photos below. Thank you in advance. Wendy
Wendy39
in
PMRGCAuk
8 months ago
Mycophenolate
The consultant is considering switching Methotrexate to
Mycophenolate
. Does anyone have any experience of this drug? Many thanks
The consultant is considering switching Methotrexate to
Mycophenolate
. Does anyone have any experience of this drug? Many thanks
Mandyi
in
PMRGCAuk
6 months ago
Marginal zone lymphoma
I refused steroids as I listen to my gut instinct, but was started on
mycophenolate
. As teams carried on investigating what was going on further scans were showing nodules were disappearing themselves. Which was great.
I refused steroids as I listen to my gut instinct, but was started on
mycophenolate
. As teams carried on investigating what was going on further scans were showing nodules were disappearing themselves. Which was great.
ush1401
in
Sjogren's Support
8 months ago
Constant, crippling nausea: gastroparesis
Hi all, I have Dssc and medicated x2 twice daily
mycophenolate
which I've been on for about a year.
Hi all, I have Dssc and medicated x2 twice daily
mycophenolate
which I've been on for about a year.
Nw6London
in
Scleroderma & Raynaud's UK (SRUK)
2 months ago
Possible relapse, trouble seeing Rheumatologist.
Put on pred and
mycophenolate
initially, then two rounds of rituximab. I have been med free since 2016 other than Septrin. My first flare included episcleritis. Something I had never suffered before or since. That is, until a couple of months ago.
Put on pred and
mycophenolate
initially, then two rounds of rituximab. I have been med free since 2016 other than Septrin. My first flare included episcleritis. Something I had never suffered before or since. That is, until a couple of months ago.
lollypocket
in
Vasculitis UK
6 months ago
Mycophenolate
I am on my first week of taking
Mycophenolate
and my PMR/Vasculitis pain has increased tremendously, so much so, I can barely function. Sleep is almost nonexistent. I was meant to take two tablets, but have started with one. I am not sure whether I should stop or not. Thank you
I am on my first week of taking
Mycophenolate
and my PMR/Vasculitis pain has increased tremendously, so much so, I can barely function. Sleep is almost nonexistent. I was meant to take two tablets, but have started with one. I am not sure whether I should stop or not. Thank you
Ab-12
in
PMRGCAuk
1 year ago
Shingrix vaccine for immunosuppressed people aged 50+
long term moderate dose corticosteroids (equivalent to ≥10mg prednisolone per day for more than 4 weeks) in the previous 3 months ●any non-biological oral immune modulating drugs e.g. methotrexate >20mg per week (oral and subcutaneous), azathioprine >3.0mg/kg/day; 6-mercaptopurine >1.5mg/kg/day,
mycophenolate
long term moderate dose corticosteroids (equivalent to ≥10mg prednisolone per day for more than 4 weeks) in the previous 3 months ●any non-biological oral immune modulating drugs e.g. methotrexate >20mg per week (oral and subcutaneous), azathioprine >3.0mg/kg/day; 6-mercaptopurine >1.5mg/kg/day,
mycophenolate
Sharitone
in
PMRGCAuk
8 months ago
Lupkinis plus MMF most effective in lupus nephritis; tacrolimus safest
Lupkinis plus MMF most effective in lupus nephritis; tacrolimus safest Researchers reviewed 17 randomized controlled trials of 2,890 people A combination of Lupkinis (viclosporin) with
mycophenolate
mofetil (MMF) was the most effective at managing lupus nephritis, according to a systematic review
Lupkinis plus MMF most effective in lupus nephritis; tacrolimus safest Researchers reviewed 17 randomized controlled trials of 2,890 people A combination of Lupkinis (viclosporin) with
mycophenolate
mofetil (MMF) was the most effective at managing lupus nephritis, according to a systematic review
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
5 months ago
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