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Sacroiliac joint fusion
After many painful years I'm on the NHS list for sacroiliac joint fusion. Of course there is a 12 month waiting list. Has any one had this operation done privately? Struggling to find a private consultant in Yorkshire.
After many painful years I'm on the NHS list for sacroiliac joint fusion. Of course there is a 12 month waiting list. Has any one had this operation done privately? Struggling to find a private consultant in Yorkshire.
eeeee
in
Pelvic Pain Support Network
6 months ago
Blepharitis
hi I have rheumatoid arthritis, herpes simplex in my right eye and acute glaucoma caused by the treatment for my eye. I’ve now got blepharitis in both my eyes which has just started on Monday after my infusion for my arthritis. I went to the doctor and they said just use baby shampoo but my eyes are
hi I have rheumatoid arthritis, herpes simplex in my right eye and acute glaucoma caused by the treatment for my eye. I’ve now got blepharitis in both my eyes which has just started on Monday after my infusion for my arthritis. I went to the doctor and they said just use baby shampoo but my eyes are
Golden87
in
Glaucoma UK
6 months ago
Oncolytic Virotherapy Platform Designed to Target All Tumor Sites: we will have some news soon, oncolytics are very promising (CLD-201)
– Preclinical models have demonstrated the ability to resist oncolytic virus inactivation by human serum and target diverse tumor types – Novel therapeutic approach allows for ease of administration, increased cost-effectiveness, and the ability to reach a broad patient population Enough for me to
– Preclinical models have demonstrated the ability to resist oncolytic virus inactivation by human serum and target diverse tumor types – Novel therapeutic approach allows for ease of administration, increased cost-effectiveness, and the ability to reach a broad patient population Enough for me to
Maxone73
in
Advanced Prostate Cancer
4 months ago
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GCA flares and eyesight
Thank you to everybody on this site – I have found it very helpful. I was diagnosed with GCA in September. I have to say my GP and Bath Hospital were excellent though it was a shock. My sight tested OK in the Eye Clinic. I started on 60 prednisolone reducing, and I am coping quite well, but I am paranoid
Thank you to everybody on this site – I have found it very helpful. I was diagnosed with GCA in September. I have to say my GP and Bath Hospital were excellent though it was a shock. My sight tested OK in the Eye Clinic. I started on 60 prednisolone reducing, and I am coping quite well, but I am paranoid
Gladys911
in
PMRGCAuk
6 months ago
Anyone opted for private Cataract surgery?
Hi, I have seronegative RA and am on Benepali. Have just had a routine eye test and been told I need cataract surgery. I thought I needed new glasses but it turns out it's cataracts! Anyway my optician has referred me on the NHS via my GP but I'm wondering about going private as I have no idea how long
Hi, I have seronegative RA and am on Benepali. Have just had a routine eye test and been told I need cataract surgery. I thought I needed new glasses but it turns out it's cataracts! Anyway my optician has referred me on the NHS via my GP but I'm wondering about going private as I have no idea how long
Chann
in
NRAS
6 months ago
Radiation CAT scan mapping
I’m starting radiation and scheduled for CAT scan mapping of pelvic floor. Any advice on how to ensure maximum accuracy of this process? The clinic wants me to take gas-x and milk of magnesia a week prior. Assume this is to prevent full bowels to ensure that the mapping is accurate and won’t affect
I’m starting radiation and scheduled for CAT scan mapping of pelvic floor. Any advice on how to ensure maximum accuracy of this process? The clinic wants me to take gas-x and milk of magnesia a week prior. Assume this is to prevent full bowels to ensure that the mapping is accurate and won’t affect
plato123
in
Advanced Prostate Cancer
1 year ago
Hepatic Encephalopathy
I am writing as the wife of a patient currently in bed sleeping due to another bout of toxin overload . With ulcerative colitis and liver failure currently from psc he is on the list for his second transplant lactulose is needed full time but this makes his colitis worse , bowels are already open
I am writing as the wife of a patient currently in bed sleeping due to another bout of toxin overload . With ulcerative colitis and liver failure currently from psc he is on the list for his second transplant lactulose is needed full time but this makes his colitis worse , bowels are already open
Maison2023
in
British Liver Trust
1 year ago
Sjogrens - eye pain/migraine
I'm getting severe headaches that are around my eyes. I wake up with my head & eyes killing me. Is this just dry eyes? My light sensitivity is off the charts. Has anyone else expierenced this? Is this a Sjogren symptom?
I'm getting severe headaches that are around my eyes. I wake up with my head & eyes killing me. Is this just dry eyes? My light sensitivity is off the charts. Has anyone else expierenced this? Is this a Sjogren symptom?
Texgirl
in
NRAS
6 months ago
Indomethacin - resenisitize to Enza
In a preclinical study indo seems to resensitize to Enza by blocking CRXR7 thus indirectly AR-V7. The trial was started in 2018, results should be known in July 2023. Does anybody know anything from that trial? I just rechallenged with Enza bringing PSA down from 7 to 0.5, if adding cheap indo prevents
In a preclinical study indo seems to resensitize to Enza by blocking CRXR7 thus indirectly AR-V7. The trial was started in 2018, results should be known in July 2023. Does anybody know anything from that trial? I just rechallenged with Enza bringing PSA down from 7 to 0.5, if adding cheap indo prevents
Hidden
in
Fight Prostate Cancer
10 months ago
central sensitivity syndrome
Has anyone heard of CSS. My dr said this can cause restless legs and stems from childhood trauma. Sort of crappy to think that yes, my childhood was super traumatic and potentially from that I still need to suffer.
Has anyone heard of CSS. My dr said this can cause restless legs and stems from childhood trauma. Sort of crappy to think that yes, my childhood was super traumatic and potentially from that I still need to suffer.
Jenevewill
in
Restless Legs Syndrome
6 months ago
Hi all. I have had concussion since August, after a fall when I banged my head. Although improving, I have a problem with bright light/glare
As above - I had a fall in August and banged my neck, chin. I am improving but can't deal with light (as in a bright sky), or glare. I also have difficulty when there is a lot of noise (as in grandchildren!). I can't wear earphones.... Does anyone know of research into coloured lenses and how certain
As above - I had a fall in August and banged my neck, chin. I am improving but can't deal with light (as in a bright sky), or glare. I also have difficulty when there is a lot of noise (as in grandchildren!). I can't wear earphones.... Does anyone know of research into coloured lenses and how certain
Braininfo
in
Headway
6 months ago
Interesting info
My husband had a dvt event a few weeks ago and had the usual response of heparin injections for 4 days,and put on apixaban. I commented to him that Apixaban will sort out the clot in his femoral vein .The AC nurse stopped me and said,no, Apixaban does not work on actual clots it prevents further ones
My husband had a dvt event a few weeks ago and had the usual response of heparin injections for 4 days,and put on apixaban. I commented to him that Apixaban will sort out the clot in his femoral vein .The AC nurse stopped me and said,no, Apixaban does not work on actual clots it prevents further ones
wilsond
in
AF Association
6 months ago
Those on low FODMAP diet, have you found it makes a difference?
My doctor has just put me on the low FODMAP diet for a recent diagnosis of IBS and i am wondering if others have found it helps, and if so how long does it take to notice a difference? I also have GERD/GORD and am being told to go on a low acid low inflammation diet as well and am also wondering if
My doctor has just put me on the low FODMAP diet for a recent diagnosis of IBS and i am wondering if others have found it helps, and if so how long does it take to notice a difference? I also have GERD/GORD and am being told to go on a low acid low inflammation diet as well and am also wondering if
SurfingSteve
in
IBS Network
1 year ago
PA COVID vaccine and atherosclerosis
hi sweet people. I had pa diagnosis 3 month ago and severe atherosclerosis in legs and abdominal vessels. Probably also cardiac vessels All of that started a year ago with 4th COVID vaccine. Had stent surgery in femoral arteries and mesenteric artery. But my abdominal pains don’t improve. Can all
hi sweet people. I had pa diagnosis 3 month ago and severe atherosclerosis in legs and abdominal vessels. Probably also cardiac vessels All of that started a year ago with 4th COVID vaccine. Had stent surgery in femoral arteries and mesenteric artery. But my abdominal pains don’t improve. Can all
Sissiotto
in
Pernicious Anaemia Society
6 months ago
I have some questions that maybe someone can help me with.
Hi! I have recently had some bloodwork and some new things popped up - and I was wondering if it is lupus related, or something entirely on its own. I am currently on Coumadin (Warfarin) for several pulmonary embolisms, and now my hemoglobin is high and my erythrocytes are high. Also, I am now
Hi! I have recently had some bloodwork and some new things popped up - and I was wondering if it is lupus related, or something entirely on its own. I am currently on Coumadin (Warfarin) for several pulmonary embolisms, and now my hemoglobin is high and my erythrocytes are high. Also, I am now
Willow7733
in
LUPUS UK
6 months ago
GCA and Vision update
As you all may recall, I was started in 60 mg. Prednisone in October. I am currently on 40 mg. I have now had 3 (weekly) injections of Actemra. I am still very concerned about my eyesight. I still see double at a distance, though it’s not as divergent as it was, I can read again up close, though, without
As you all may recall, I was started in 60 mg. Prednisone in October. I am currently on 40 mg. I have now had 3 (weekly) injections of Actemra. I am still very concerned about my eyesight. I still see double at a distance, though it’s not as divergent as it was, I can read again up close, though, without
Lenore58
in
PMRGCAuk
6 months ago
Cataract surgery advice please.
I've got glaucoma and I'm very short sighted. The left eye has got the glaucoma. The right eye isn't affected much with it yet, but does have the cataract. After they fit the new lens in my right eye, my shortsightedness apparently might be rectified. This will give me an enormous discrepancy between
I've got glaucoma and I'm very short sighted. The left eye has got the glaucoma. The right eye isn't affected much with it yet, but does have the cataract. After they fit the new lens in my right eye, my shortsightedness apparently might be rectified. This will give me an enormous discrepancy between
Quiet_Lin
in
Glaucoma UK
6 months ago
can fibroscan tell more than just stiffness
Please does anyone know if a fibroscan shows other things other than stiffness……my Dr has scared the life out of me, I asked her if the report said cirrohsis, she said no it says severe liver impairment, I looked this up ( stupid I know) and it translates as acute liver failure, they make it sound like
Please does anyone know if a fibroscan shows other things other than stiffness……my Dr has scared the life out of me, I asked her if the report said cirrohsis, she said no it says severe liver impairment, I looked this up ( stupid I know) and it translates as acute liver failure, they make it sound like
Sophia1968
in
British Liver Trust
1 year ago
Colin Cancer? Ulcerative Colitis? Chrons?
Dark red blood in stool often Chronic constipation due to MAT treatment but started as substance abuse. Now I'm pooping big white jelly like mucus. The Drs don't help me because I am an ex addict and on MAT they say that is the cause of everything. I've given up in Doctors helping me. About 3 days
Dark red blood in stool often Chronic constipation due to MAT treatment but started as substance abuse. Now I'm pooping big white jelly like mucus. The Drs don't help me because I am an ex addict and on MAT they say that is the cause of everything. I've given up in Doctors helping me. About 3 days
Cedes1612
in
Colon Cancer Connected
1 year ago
Hair loss while tapering Prednisone
Hi. Yet another issue. My hair has started falling out in clumps. I am devastated. I had some loss when I was on Pred at different times over the last 5 years especially in the beginning. I began tapering to 2 mg then 1 in late spring and maintaining that except with some flares when I took more. This
Hi. Yet another issue. My hair has started falling out in clumps. I am devastated. I had some loss when I was on Pred at different times over the last 5 years especially in the beginning. I began tapering to 2 mg then 1 in late spring and maintaining that except with some flares when I took more. This
bluegirl7
in
PMRGCAuk
6 months ago
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