Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

6,651 members • 8,188 posts

All posts for June 2021

PET showed progression Ibrance stopped

First, thank you to all those who sent advice to me after my CT scan showed no progression. I received the results of my PET scan a few days ago and it shows...

First, thank you to all those who sent advice to me after my CT scan showed no p...

•3 years ago

alcohol and hair colouring

Hi there, I'm asking a couple of questions on behalf of my wife who has just been re diagnosed with cancer, 4 years after a mastectomy. She's been put on...

Hi there, I'm asking a couple of questions on behalf of my wife who has just bee...

•3 years ago

It is ok today..

A friend just gave me this link: Profound, poignant and purposeful for my day. Hope you also find it positive. Video...

A friend just gave me this link: Profound, poignant and purposeful for my day. ...

•3 years ago

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Lasofoxifene Combined With Abemaciclib

About to enter a drug trial through Mayo Clinic. Wondering if anyone has taken the combination of Lasofoxifene and Abemaciclib (Verenzio)? A year ago I had 11...

About to enter a drug trial through Mayo Clinic. Wondering if anyone has taken t...

•3 years ago

lost my joy

try to find happy things every day but it is getting harder. scans are ok, stable . Ton Ibrance and anasstrozole. I am 85 and want to live each day with joy....

try to find happy things every day but it is getting harder. scans are ok, stab...

•3 years ago

Cape and vinorelbine

Hello Is anyone on here taking cape and vinorelbine for 2nd line of treatment? Just wondering how you’re doing on it xx

Hello Is anyone on here taking cape and vinorelbine for 2nd line of treatment? ...

•3 years ago

Need hope

Letrozole failed so now on aromasin but the side effects are horrendous. Get scan results in 2 days. 2 large tumours in breast not shrinking. 1 in armpit...

Letrozole failed so now on aromasin but the side effects are horrendous. Get sca...

•3 years ago

Supporting my mom

Hello dear ladies. My name is Saba and I’m here for my mom. She doesn’t speak English. First of all I’m really glad that I was able to find this...

Hello dear ladies. My name is Saba and I’m here for my mom. She doesn’t speak En...

•3 years ago

Enhertu

Hi my name is Margaret I realize this a breast cancer group but I am hoping I can learn I am entering a study for ENHERTU amd it’s effect on recurrent...

Hi my name is Margaret I realize this a breast cancer group but I am hoping I c...

•3 years ago

High Alkaline phosphatase

At what point does the oncologist take you off Capecitabine with high level of Alkaline phosphatase. Mine is 199 right now. Anja

At what point does the oncologist take you off Capecitabine with high level of...

•3 years ago

Good scan results - thank you!

Thank you for your support. I was particularly anxious this time because of unclear wording on the bone scan I read in the patient portal. My doctor allayed my...

Thank you for your support. I was particularly anxious this time because of uncl...

•3 years ago

pertuzumab &trastuzumab every 3 weeks after completing paclitaxel treatments can anyone share how they tolerated this treatment ?

I am curious as to what others have found . My oncologist says it is very well tolerated . Has anyone had “ bad days” after infusion day ? Fatigue etc. .?...

I am curious as to what others have found . My oncologist says it is very well t...

•3 years ago

Has anyone been advised by their oncologist to stop chemo 1 week before and 1 week after a Covid vaccination?

Hello. I had my first dose of Astra Zeneca on 19 May and was told by my onc to stop taking Xeloda one week before the vaccination and another week after....

Hello. I had my first dose of Astra Zeneca on 19 May and was told by my onc to ...

•3 years ago

Exemestane

Has anyone quit taking Exemstane because they are bad for the bone and i just had a bone graft so i am just taking Afinitor. Helena

Has anyone quit taking Exemstane because they are bad for the bone and i just ha...

Iwouldlike2knowmore

•3 years ago

Any experience with treatment shrinking liver mets but bone mets spreading?

I'm 54 with stage 4 breast cancer that has metastasized to bones and liver. My primary stage 2 tumor was treated with chemo, lumpectomy, radiation in 2019 with...

I'm 54 with stage 4 breast cancer that has metastasized to bones and liver. My p...

Lakeview4Serenity

•3 years ago

Help with hand and foot issues due to capecitabine

Hi lovely ladies. I’ve been on capecitabine for more than a year now and it’s working fabulously - shrinking liver Mets. My one issue is the condition of my...

Hi lovely ladies. I’ve been on capecitabine for more than a year now and it’s wo...

•3 years ago

I’m 53 with stage 4 breast cancer that has metastasized to my bones

I am at stage 4 breast cancer that has spread to my bones. I am a couple months away from my 5 year mark. My husband died 2015 with prostate cancer that spread...

I am at stage 4 breast cancer that has spread to my bones. I am a couple months ...

•3 years ago

Continued Working?

Hello Fellow Warriors - I am currently trying to decided if I should go on CA State Disability. I was diagnosed with MBC Jan 2020 and have continued working...

Hello Fellow Warriors - I am currently trying to decided if I should go on CA St...

•3 years ago

BRCA

Hello pretty ladies. I hope they are all very well. Please can someone explain to me in a very simple way what the BRCA genetic test is. My result on this test...

Hello pretty ladies. I hope they are all very well. Please can someone explain t...

•3 years ago

Nervive anyone"

I heard a commercial for this product "Nervive" and looked it up. Here's a link to the webpage. https://www.nervivehealth.com/en-us I take Alpha Lipoic Acid...

I heard a commercial for this product "Nervive" and looked it up. Here's a link...

•3 years ago

Faire

Cancer has spread to my brain, anyone out there has this happen to

Cancer has spread to my brain, anyone out there has this happen to

•3 years ago

Treatment delay

My first blip since starting treatment in May 2020. My neutrophils are too low this month, to continue palbociclib, .9, so it's another blood test next week to...

My first blip since starting treatment in May 2020. My neutrophils are too low t...

•3 years ago

Birthday blessing as I take scans this week

65 and continue to strive! Bike ride today in nearby Rhode Island. First BC diagnosis 2004. Recurrence 2013. MBC 2018 with bone Mets. Ibrance & Letrozole....

65 and continue to strive! Bike ride today in nearby Rhode Island. First BC di...

•3 years ago

Verzenio and diarrhea

Hello, I have been on Verzenio for 4 weeks (started 5/1/2021) I haven't had diarrhea everyday but after the first week being on it's been an ongoing battle. I...

Hello, I have been on Verzenio for 4 weeks (started 5/1/2021) I haven't had diar...

•3 years ago

Patient Experiences Regarding Side Effects

Ever wonder whether the scientific community truly listens to patients? The answer is "very much so!" because this Saturday the voices of 1,221 patients with...

Ever wonder whether the scientific community truly listens to patients? The ans...

•3 years ago

Today’s news

Hi. Just wondering if anyone has any ideas what this actual means or has anyone had a bone scan result like this. Thanks so much

Hi. Just wondering if anyone has any ideas what this actual means or has anyone ...

•3 years ago

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