Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

6,651 members • 8,188 posts

All posts for September 2020

Piquay

Are there women out there that take Piquay and how they feel about it. Helena

Iwouldlike2knowmore

•4 years ago

12 Replies

Poor grammar/typos

I wish there were a way to edit my post. Some times my brain works too slowly.

seiler

•4 years ago

10 Replies

So disappointed

I was so happy and proud that my Ibrance was working so effective and for so long--close to 5 years. I still support it thoroughly, but today I was diagnosed...

I was so happy and proud that my Ibrance was working so effective and for so lon...

seiler

•4 years ago

31 Replies

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Encouraging Article

I found this interesting and encouraging. What do y’all think? Hugs, Stacy...

Staysha

•4 years ago

20 Replies

liver

Has anyone ever have a 2nd ablation on the liver. Helena

Iwouldlike2knowmore

•4 years ago

6 Replies

Increase in bone met pain at toward end of Ibrance cycle?

Completing my first cycle of Ibrance 75mg. Had 100mg last cycle. Had terrible pain over the last 2 days in areas of met lesions while on day 19 and 20....

Completing my first cycle of Ibrance 75mg. Had 100mg last cycle. Had terrible ...

pinkrv

•4 years ago

5 Replies

Aching Mets

To distract us from another lockdown looming locally I thought I would show you a photo of the beautiful Sweetpeas my friend gave me yesterday. They smell...

To distract us from another lockdown looming locally I thought I would show you ...

Hidden

•4 years ago

15 Replies

Verzenio and diarrhea

Hi-- first time poster here. I have been metastatic for 8 years and am currently on Verzenio. The onc already reduced the dose but I'm still having a...

Hi-- first time poster here. I have been metastatic for 8 years and am currentl...

Lnlc

•4 years ago

16 Replies

Metastatic breast cancer patients - what's your diet? Do you have any examples of actual recipes to make?

I've read a LOT on the best type of diets - I have my mom (diagnosed in the fall of 2018, bone-only mets) on a plant-based diet, no dairy, no gluten, and low...

I've read a LOT on the best type of diets - I have my mom (diagnosed in the fall...

Jac-genova

•4 years ago

58 Replies

Tumor markers went up

my last exams in July shows no progression but my markers went up from 30 to 46.8 Do I should be concerned about cancer came back? I did have a colon...

my last exams in July shows no progression but my markers went up from 30 to 46....

Nmartinez15

•4 years ago

21 Replies

Hot tub

Got my hot tub in, partner is obsessive with making sure the chemicals are at the right level, bless him, he has a bad back so good for his pain, will get him...

Got my hot tub in, partner is obsessive with making sure the chemicals are at th...

Kiera49

•4 years ago

21 Replies

Long Term Taxol

I have a question for those who have been or are on long term Taxol. My onc wants to put me on it indefinitely and says she has had patients remain stable for...

I have a question for those who have been or are on long term Taxol. My onc wan...

ALYogaGirl

•4 years ago

4 Replies

Piqray failed after 3 months, on to Xeloda

Hi, I really wanted Piqray to work. I took all the diarrhea and high blood sugar for the past 3 months. But the latest CT scan showed Liver Tumors increased in...

Hi, I really wanted Piqray to work. I took all the diarrhea and high blood sugar...

klhowe

•4 years ago

9 Replies

Fenbendazol

Has anyone used Fenbendazol as an aid in their cancer treatment. Dose used and any side effects? Does it intefere with other other cancer treatments. I am...

Has anyone used Fenbendazol as an aid in their cancer treatment. Dose used and ...

marleneb56

•4 years ago

4 Replies

Two pet scans cancer free

I wrote about waiting to hear from the Mayo Clinic to see if I should continue with Ibrance. My oncologist and Mayo Clinic agreed that I should only continue...

I wrote about waiting to hear from the Mayo Clinic to see if I should continue w...

starcats

•4 years ago

13 Replies

About a flu shot

I was wondering if anyone on Ibrance and Letrozole ever got the flu shot while on it.

I was wondering if anyone on Ibrance and Letrozole ever got the flu shot while o...

Gino21

•4 years ago

29 Replies

Oligometastisis? Cut it out!

Ppppopp brought up the issue of oligometastisis and the idea of removing it. My oncologist and I have briefly discussed removing a lesion on the liver that...

Ppppopp brought up the issue of oligometastisis and the idea of removing it. M...

jersey-jazz

•4 years ago

7 Replies

Dreading onc appointment

Got telephone appt with onc at 4pm feeling nervous although not sure why as she has no results for me, had a bpm of 35 while exercising but only for a few...

Got telephone appt with onc at 4pm feeling nervous although not sure why as she ...

Kiera49

•4 years ago

11 Replies

Ibrance packaging

Does anyone else have trouble with the new ibrance packs? I like the new tablet, which is easier to swallow. However, the new packaging is hard for me to open....

Does anyone else have trouble with the new ibrance packs? I like the new tablet,...

howsthis

•4 years ago

23 Replies

Thoughts from Oregon

I live in Clackamas County, Oregon. A week ago today our home was in Level 2 evacuation because of encroaching fires. Luckily we had been getting ready to...

I live in Clackamas County, Oregon. A week ago today our home was in Level 2 eva...

MacroMom

•4 years ago

23 Replies

Hair

I don't see my hair falling out from ibrance, but it seems to be getting thinner 3 yrs on ibrance. Helena

I don't see my hair falling out from ibrance, but it seems to be getting thinner...

Iwouldlike2knowmore

•4 years ago

35 Replies

Mammogram Coming Soon for Mom...

Hello everyone, I hope you are all staying safe and doing well! It has been about 7 months since I last posted about my mom. My mom is 44 a dialysis patient,...

Hello everyone, I hope you are all staying safe and doing well! It has been ab...

janeths466

•4 years ago

5 Replies

MBC Patient Dosing Survey Results Available!

Greetings, A big THANK YOU to all 1,221 patients who took the survey! The results are in! You can find them here: https://www.therightdose.org/survey-results...

Greetings, A big THANK YOU to all 1,221 patients who took the survey! The result...

Bestbird

•4 years ago

2 Replies

Possible progression

Hi everyone, I have just had my scan result and after more than 2.5 years being stable with spread to the bone, I now have a dark area in the liver and some...

Hi everyone, I have just had my scan result and after more than 2.5 years being ...

LibraryGeek

•4 years ago

39 Replies

How to stop weight loss?

Hello. For the past 2-3 months I've been having trouble maintaining weight. It has dropped as low as 104. I should be around 115-120 for my height. I am vegan,...

Hello. For the past 2-3 months I've been having trouble maintaining weight. It h...

WordNerdSharron

•4 years ago

18 Replies

Where to next?

Hi everyone, I was diagnosed with ER+ MBC in the bones in 2017. Since then I have been on hormone treatment moving to Xeloda Chemo for 18 months and 3 months...

Hi everyone, I was diagnosed with ER+ MBC in the bones in 2017. Since then I h...

333Stevens

•4 years ago

6 Replies

Yeast infections?

Just wondering if yeast infections are common with Ibrance. I struggle with vaginal dryness and use suppositories but now I’m thinking because of the itching...

Just wondering if yeast infections are common with Ibrance. I struggle with vagi...

Puppy_love

•4 years ago

2 Replies

HER2- changed to HER2+

Hello breasties, So, the first treatment of MBC which was Ibrance and Letrozole stopped working after just a few short months. My oncologist is now suggesting...

Hello breasties, So, the first treatment of MBC which was Ibrance and Letrozole...

Annadm

•4 years ago

23 Replies

Ibrance, Letrozole and Denosumab

Hi ladies, after feeling down, having chest pain and feeling tired all the time I now feel ok. Goodness knows what was going on the week I was off my Ibrance....

Hi ladies, after feeling down, having chest pain and feeling tired all the time ...

Hidden

•4 years ago

29 Replies

The Artist

Have you ever heard someone say something to you when there is no one there? I went in to the bathroom and nothing was on my mind when I went to grab my tooth...

Have you ever heard someone say something to you when there is no one there? I ...

The-artist

•4 years ago

4 Replies

Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

All posts for September 2020

Piquay

Poor grammar/typos

So disappointed

Encouraging Article

liver

Increase in bone met pain at toward end of Ibrance cycle?

Aching Mets

Verzenio and diarrhea

Metastatic breast cancer patients - what's your diet? Do you have any examples of actual recipes to make?

Tumor markers went up

Hot tub

Long Term Taxol

Piqray failed after 3 months, on to Xeloda

Fenbendazol

Two pet scans cancer free

About a flu shot

Oligometastisis? Cut it out!

Dreading onc appointment

Ibrance packaging

Thoughts from Oregon

Hair

Mammogram Coming Soon for Mom...

MBC Patient Dosing Survey Results Available!

Possible progression

How to stop weight loss?

Where to next?

Yeast infections?

HER2- changed to HER2+

Ibrance, Letrozole and Denosumab

The Artist

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