Mastectomy after 7 years of MBC - SHARE Metastatic ...

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Mastectomy after 7 years of MBC

Gmaoftriplets profile image
12 Replies

I have had MBC for 7 years still on my first line of treatment (Ibrance/Letrozole) my PET scan in September showed the tumor in my breast has increased in size and the cancer has gone into a lymph node under my armpit. Today I met with a surgeon and will have a double mastectomy in early January. My oncologist said she never had a patient that has been metastatic free for this long and just now the tumor is no longer stable. Has anyone else had a mastectomy after being diagnosed MBC?

Thank you

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Gmaoftriplets
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12 Replies
Ntash01 profile image
Ntash01

I’m no expert and always look to this board for wisdom of others, and I believe the consensus is once metastatic- surgery is unnecessary trauma.

I’m guessing because of your good fortune of remaining on first line treatment for such a lengthy period your onc sees this route beneficial for you? Cancer is complicated (yep… penny dropped) stage 4 isn’t one thing it’s cells, the whack a mole analogy is IT in a nutshell and very rarely are 2 cases the same.. we all have different factors. I still find it complicated and still do not understand Er+ ER- ect… guess I probably don’t really want to!

In that 7 year did they say you were in remission or no evidence of disease? So happy for you to have had that. Chin up and I do hope someone with similar experience can help you.

Nx

Gmaoftriplets profile image
Gmaoftriplets in reply toNtash01

Thank you. For the first three years I was NED. My oncologist and surgeon said they had never seen a case like mine and they both feel the surgery could prolong my life. I also have a genetic mutation called ATM which could cause me to keep getting breast tumors in both breast’s. I’m hoping this works!

NPmary profile image
NPmary

7 years is exceptional, good for you! May I ask where your initial mets was - I assume you were diagnosed de nova (no prior history of bresst cancer and then found with mets). Wish you the best surgical experience and complication-free recovery. Let us know how your doing. Mary 🌺

Gmaoftriplets profile image
Gmaoftriplets in reply toNPmary

I was diagnosed de novo, and I had one met on my acetabulum that was 1 cm.

LibraryGeek profile image
LibraryGeek

Sounds like the surgery would be a good option in your case. Good luck!

Gmaoftriplets profile image
Gmaoftriplets in reply toLibraryGeek

Thank you, I hope so!

love2golfwell profile image
love2golfwell

Although I have not had this experience, I am sending you prayers that this surgery will be very successful and that you will have many more good years.

Gmaoftriplets profile image
Gmaoftriplets in reply tolove2golfwell

Thank you.

rubyc1234 profile image
rubyc1234

I have been metastatic free for almost 6 years and I have heard of someone metastatic free for longer than yourself, but 7 years is great.

Gmaoftriplets profile image
Gmaoftriplets in reply torubyc1234

I am grateful for this long, I am very nervous for the surgery! I have been a type 1 diabetic for 44 years and that concerns me but my surgeon, oncologist and endocrinologist are not concerned at all !! So fingers crossed!

rubyc1234 profile image
rubyc1234

I will be thinking of you. I am type 2 diabetic now. Had surgery on my vocal cord after pandemic which went well. Because of lung mets my left vocal cord was paralyzed and it was difficult to speak. My voice was terrible . I waited 2 years, because of the pandemic, to have the surgery but it restored my voice.

Gmaoftriplets profile image
Gmaoftriplets in reply torubyc1234

Happy to hear that you got your voice back! Thank you for your good wishes!

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