COC Protocol with letrozole and ibrance

I am new to the site. I am er+ pr- and hers- with metasatic b/c in my lung. Initially dx in 2012. NED after mastectomy, chemo and radiation. DX again 9/2020. Went on Taxotere and almost killed me. Started Ibrance and Letrozole in 1/2021. I have seen some reduction in tumors. I just started COC protocal 7 days ago. I am hopeful and will be reporting how it works out for me on this site. Of course hoping to get to NED again with help of COC.

[Teddielottie]

Welcome on here and I hope your Ibrance/Letrozole protocol is working well after 9 months on this combination. I have been on this combination for nearly four years (December) and have been ‘stable’ /NEAD for well over three years . I have not done the COC protocol / supplements, so can’t comment on these , but I wish you well . Please do let us know how you get on with it ... just not sure how you will know whether any improvement is due to the traditional treatment or the protocol ? Take care and good luck ! x

[Hidden in reply to Teddielottie]

Yes, I know what you mean. Most people get to nead within 4 to 9 months as per my research. I will be happy with that and then address whether I continue with IBRANCE because my neutrophils are really taking a hit. I am on 100 mg 2 wks on and two weeks off.🤞

[Praising in reply to Hidden]

I’m taking 75 mg Ibrance. Mine were below 1 so I was off for 2 weeks. With the reduction I was at 1 so I started back.after 1 week. Still low at 1

[Adele_Julia]

Greetings !I'm on Ibrance/Faslodex and also on the CoC protocol and taking supplements from Jane McClelland's how to starve cancer book. She highly endorses the CoC protocol and actually has a FABULOUS online course that I would highly recommend. From this course, I've come up with supplements that block pathways. So far in almost a year since my diagnosis in Nov 2020, I'm 70% to NED ! I'd be happy to share a comprehensive excel spreadsheet "hack" of her book and course. I'm thrilled with the progress thus far. Much success !!

Blessings !

Julia

[Pbsoup in reply to Adele_Julia]

yes please share--by DM if you feel more comfortable. I am dithering about COC and Jane M...here's is a lot of DIY which gives me pause...

[Adele_Julia in reply to Pbsoup]

Feel free to email me at [e-mail] or 602.625.9958. I live in AriZona !

[Laskia in reply to Adele_Julia]

Thank you. I have sent you an email.

[Adele_Julia in reply to Laskia]

Hi there Laskia, I got quite a few emails and just wanted to make sure I received yours. For some reason I didn't see it. Can you resend your email to me? blessings, Julia

[Praising in reply to Adele_Julia]

I’m interested in info. Thanks

[Adele_Julia in reply to Praising]

Feel free to go to their website careoncology.com. Great info there !

[Hidden in reply to Adele_Julia]

I would appreciate the spread sheet. Thank You for offering.

[Adele_Julia in reply to Hidden]

Hi there ! Please PM me with your email as I can't attach a file here. Best ! Julia

[Ardie1970]

I am looking to starting COC protocol after my appointment with MD Anderson. I have already spoken with them and just need to set up appointment with the doc. Best of luck to you on this journey!

[13plus in reply to Ardie1970]

Does MD Anderson endorse the COC protocol?

[Ardie1970 in reply to 13plus]

I have no idea. Honestly I am not planning on mentioning it. My experience so far is the medical community is not for any kind of alternative treatments.

[13plus in reply to Ardie1970]

Interesting. I hear you on the last point although if I were going to start something supplemental I’d still be informing my doctor. But that’s me

[mariootsi in reply to Ardie1970]

You may want to discuss the COC protocol with your oncologist.

[Ardie1970 in reply to mariootsi]

I have tried on numerous occasions to discuss other things with mine and all they say is there is no cure or it isn’t going to change the outcome. And I say well we know for sure that what you say is true if we do nothing.

[mariootsi in reply to Ardie1970]

I have tried also with no luck. They are even against acupuncture and don't offer it at my cancer center. I would get it but I can't afford it. It's not covered by insurance!

[Ardie1970 in reply to mariootsi]

We have a co-op in Boise that does it relatively cheap depending on how many you buy. I get 5 sessions for $50. 1 session is $15. I am not sure where you are but I would look into a similar program near you. My functional doctor told me about this one.

[mariootsi in reply to Ardie1970]

Thank you. I am in Connecticut. I'm going to look into this.

[Hidden]

Welcome aboard. We have had some very good responses to the COC protocol on here so ai wish you well with it. Do keep us updated with it.Clare

[Hidden]

Just ordered this book that I have been hearing so much about!

[Adele_Julia in reply to Hidden]

Get the online course. Spectacular. Google Jane McClelland how to starve cancer online course. Well worth it and I have put over 15 hours into condensing this into an excel spreadsheet hack for supplements etc. love Janes scientific approach

[mariootsi in reply to Adele_Julia]

I'm very skeptical of all these books with alternative protocols that work for one person because everyone's cancer is different. I was an Imerman mentor to a woman who decided to use the Gerson protocol and she became deathly I'll and passed away shortly after. Be careful and always discuss your alternative protocols with your onc.

[Adele_Julia in reply to mariootsi]

Completely understand. Gerson protocol is far different than CoC . My oncologist is highly supportive of using the 4 medications and the supplements recommended as they are based on scientific research and FDA approval. We monitor my blood monthly and thus far, the results are remarkable !

[mariootsi in reply to Adele_Julia]

Oh good!You are lucky your onc agrees with Coc protocol! I'm happy for you!

[Adele_Julia in reply to mariootsi]

I didn’t give them a choice - lol ! I just said I’m taking these 4 medications and gave him the nice summary sheet of why a d what they do. He was definitely intrigued ! Most onc don’t spend time researching repurposed medications because they don’t make money pushing them. And rarely study nutrition in med achool

[mariootsi in reply to Adele_Julia]

You are right.

[Itisfinished in reply to mariootsi]

I agree with you. It can also be so overwhelming the wealth of information out there which can bring alot of added stress combined with the side effects we all have to deal with from the meds. God will give each of us wisdom on what to do if we ask! That's my belief!

[mariootsi in reply to Itisfinished]

Amen

[Juliianne in reply to Adele_Julia]

Hello, I am very interested in your spreadsheet. Could you please send to me as well? I have Jane McClelland book, and just started reading. I’m interested in how you’ve consolidated the info.Thanks in advance,

[Adele_Julia in reply to Juliianne]

I'd be happy to ! I consolidated this from the course and her book. Private message me with your email as I don't know think we can attach a document here. Blessings, Julia

[mariootsi]

Welcome to this group of remarkable women. I wish you well with your treatments and COC. I would be very interested to hear your results with COC.

[mariootsi]

Taxotere almost killed me too during my first bc diagnosis!

[Hidden]

Yes, I should qualify my post to say that, for those who do get results because I understand many don't. I am hoping I am one of the fortunate ones who can get to NED in a years time frame. I am on Ibrance and letrozole and time will tell how my protocols are working together. I will not be doing anymore chemo as I am choosing quality of life over quantity. I want to participate with my family instead of feeling sick in bed from chemo. I am hoping that you can stay on Ibrance and continue on as stable. Thank you for your thoughts.