Have you ever participated in a clini... - SHARE Metastatic ...

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Have you ever participated in a clinical trial? Why or why not? Tell us about it in the comments.

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11 Replies
Greatgrandpapa profile image
Greatgrandpapa

The ones that I would qualify for where for females only.

Tm7777 profile image
Tm7777

First diagnosis of breast cancer in 2001 it was taxol now. 15 years later diagnosed with stage 4 breast cancer mestized to bones,spine ,sternum and hips....

Partia profile image
Partia in reply toTm7777

Omg me too. 2001 stage 2B. 15 yrs later sternum, hips, spine and just a little in lungs. Er and Pr + Her -

Tm7777 profile image
Tm7777 in reply toPartia

How ironic same here!!

Partia profile image
Partia in reply toTm7777

Wow. How are you doing?

Tm7777 profile image
Tm7777 in reply toPartia

Just went to onc Monday after 7 months on letrazale and ibrance with monthly xgeva shots only a smuggen of improvement. Was hoping it would be a little more encouraging. But Will take what I can get for now! They just changed my xgeva shots to zometa iv now changing to a different type zometa did not agree with me. It was change because of New insurance didn't want to pay for xgeva. I am having issue with them getting blood from vains they now go into my hand . I can't have blood draws out of my left arm due to previous cancer they took all the lymph nodes . It took 4 Times to find a vain for the zometa my poor arm. I get up and move everyday try to keep busy and positive!!!! I still have pain in my back , hips, but much better then it was.. How are u doing? I go monthly to onc and biweekly blood test.

psailsbery profile image
psailsbery

Just switched from Taxol to Faslodex & Ibrance combo. My oncologist office has multiple locations and they do clinical trials. When the new immunosuppressant therapy is available for trial with their practice my oncologist will present the information to me and I'm sure I will jump on board.

MMMP profile image
MMMP

My hospital has a great cancer research dept. I was enrolled in two studies but I had side effects from the drugs so I dropped out. My second study was stopped because I started on xeloda due to my metastasis to my bones.

Partia profile image
Partia

In my first bout with breast cancer in 2001 I was in a clinical trial for Taxotere. I wanted to be part of something that might help other women with breast cancer. I ended up helping myself because it was used on me when I was diagnosed with Stage 4 BC in 2016.

A clinical trial has never been appropriate for me at this point. But perhaps it may be in the future.

Pattie1951 profile image
Pattie1951

I hoped it would help others.

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