Sleep Clinic: Hi, finally got an... - Restless Legs Syn...

Restless Legs Syndrome

21,583 members15,287 posts

Sleep Clinic

Ephemera profile image
3 Replies

Hi, finally got an appointment for NHS Sleep Clinic (August), only been waiting 9 months. Has anybody had any experience of the one at Southmead Hospital, Bristol. Not expecting much from the appointment. But worth trying now an appointment has come.

Written by
Ephemera profile image
Ephemera
To view profiles and participate in discussions please or .
3 Replies
Joolsg profile image
Joolsg

Good luck and tell us what happens.By the way, there is an NHS ruling that you can see a GP out of your area to get around 'red listed' medication. If you can find an NHS surgery that

1. Is registering new patients, and

2. Will prescribe Buprenorphine if a specialist confirms it's suitable.

I know this has been the issue in the past. The specialist in London recommended Buprenorphine. It worked and then the local GP surgery would not prescribe.

nhs.uk/nhs-services/gps/reg...

Ephemera profile image
Ephemera in reply to Joolsg

Hi Jools. Peter went on Buprenorphine for a while but the side effects were too bad to stay on it, especially breathing problems. Now back on pregablin 250mg at night. Some nights he gets sleep, sometimes not. It seems with most meds for this that after he has been on them for a while they stop working and doses have to be increased. With Buprenorphine it was going to get above 800mcg a day and the GP did not want to increase above this along with side effects he was suffering.

Joolsg profile image
Joolsg in reply to Ephemera

Ahh. Totally understand. I do hope they find something that helps without the adverse side effects.

You may also like...

Visit to sleep clinic

away and am waiting to hear from the main man - and who knows when that will be! Should I try...

Sleep clinics UK?

love to know if anyone has positive experiences with any UK private sleep clinics as I feel I get...

Sleep

bit of good You have an appointment and think will I ever get some sleep to be up in time , you...

No sleep!

So the inevitable has happened. It is 5.30am and I have not had one wink of sleep. My legs just...

Gabapentin and no sleep

not get sleepy from taking it and is still a night walker. Some nights he might sleep from 5am til...