Dad - CBD: So the last few days my dad has... - PSP Association

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Dad - CBD

Stormtrooper4 profile image
4 Replies

So the last few days my dad has been poorly. His breathing hasn't been very good and he has been making awful noises. He is now struggling to swallow so sits with food in his mouth (he is on a puree diet) and is quite dribbly. When my mum does get him to eat it is usually no more than a couple of teaspoons full and he doesn't want anymore.

We had the Dr out yesterday and gave us a prescription for antibiotics as dad has a history of chest infections (the Dr didn't get a proper listen to his chest as didn't want to move him about too much). The Dr also prescribed liquid morphine, not because dad is in pain because he tells us with his thumbs up and down for this but just to keep him settled.

The Dr asked if we had 'a plan' and quite honestly we just want him to be comfortable and pain free. The Dr has said he will review in a couple of days but we may need to start having more regular visits from the District Nurse to administer morphine injections.

Putting dad on morphine seems like the start of the end. Is this the case?

Has anyone been at this stage with their loved ones?

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Stormtrooper4
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Poppypolo profile image
Poppypolo

hi i have just lost my husband three weeks ago and it does not seem real. He had like dad a chest infection that would not clear after antibiotics and steroids I think the doctor knew he did not have long informed me get in touch with hospice, they were excellent and inserted a driver to add medication hopefully to dry the chest infection and morphine, it was not to work and he died at home so peaceful with the aid of medication, so glad I had him at home to look after him.

We donated his tissue and fluid from his brain to Cambridge brain bank in the hope that it will hopefully help someone else with this terrible disease.

Stay strong it takes a lot of strength to get though it.

Stormtrooper4 profile image
Stormtrooper4 in reply to Poppypolo

So sorry for your loss.

Dad was in hospital for 6 weeks over Christmas and we managed to get him home about 3 weeks ago which is where he would want to be with my mum as they have been married for 45 years.

We are currently waiting on a decision regarding CHC which we should receive in the next couple of weeks.

It is so heartbreaking to watch the decline of my dad, something I struggle daily with.

It is awful to say but he would absolutely hate to be in the condition he is in. I just want him at peace even though i'm not ready to be without my dad but i'm not sure I ever will be...

Poppypolo profile image
Poppypolo in reply to Stormtrooper4

I do feel for you I had been married to mike for 54 years, I am so glad I had him at home until the end it was hard to see him struggling with a chest infection but I could feed him when ever , if he was in hospital he would not have survived the year I had him at home, his condition when he came out after he fell and broke his hip was bad skin and bone but I got him though it.

All I can say is I hope you get chc and make the most you can of dad it takes you by surprise when it happens, sending you a big hug

Aprilfool20 profile image
Aprilfool20

ggood. Luck trying to get chc ,! I’ve been trying for the last year

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