Carers are amazing: Hi, i don't often post... - PSP Association

PSP Association

9,339 members11,392 posts

Carers are amazing

Leander12 profile image
4 Replies

Hi, i don't often post on here, but some of the recent posts have been so amazing i felt compelled just to say - huge respect!!! The care and love this forum shows is stunning. You should be so proud of yourselves even with the guilt which i suspect is endemic. We are doing the best we can and we are only human . My hubby is in a home now, ftd and psp, and it is heartbreaking. But i know i could not look after him at home, and i still have a hope that we can do days out, post lockdown, and we can have some laughter and then he will go back to his new home. Its hard, and lockdown has made it so much much worse than it might have been otherwise, and we and our loved ones seem to be last on the list.

Best wishes to you all.

Leander

Written by
Leander12 profile image
Leander12
To view profiles and participate in discussions please or .
4 Replies

A big hug, luck and courage.Luis

AliBee1 profile image
AliBee1

Thank you Leander for sharing. It must have boosted the morale of so many people. Good luck and big hug. AliBee xx

Doublereeder profile image
Doublereeder in reply to AliBee1

Thanks for this Leander, it's helped me. We made the decision to put Mum in a home a few months ago too and it's been very difficult with the COVID restrictions especially not seeing inside before hand. Still wondering if it was the right thing despite knowing there was no alternative.

Hope you have some time together and much laughter.

PSPpartner profile image
PSPpartner

Thank you for your kind words. I do hope you two can soon have some time together! I’m so glad that you mentioned guilt. I knew I couldn’t possibly be alone in the guilt that I feel. For instance, I’ve just gotten back into bed after getting up for the third time in 10 minutes. I’m so tired and sleepy and I’m disabled myself, still I’m trying to be a caregiver to my ex-husband. He’s so pitiful and this is so sad. He’s 62 and so smart and was so active before all of this started. I get so mad at myself for being short with him at times. I feel so ashamed. But I am human and imperfect. And I know that I am doing all I can and more than I’m really up to doing. Everyone in this group just sounds so sweet and kind. But like me, you’re human and I know you’re tired too. Take care of yourselves! I am so thankful for each of you. Love and hugs to all♥️

You may also like...

carers !!!!!

Carer recommendations

Dear all, This is my first post - be gentle! My Mum has PSP. She was diagnosed 5-6 years ago so it

Carer for mum with CBD

quite new here never a post up. My mum was diagnosed with CBD last year with having symptoms...

gaining weight as a carer

to earn some extra money from home some how. basically i think i want to know if others have done...

PSP Carer Survivor Forum?

other issues to face. Some, I know , have tried Bereavement Forums, but they have had to start...