Thank you

[Shakalak]

Thank you all for your comments with regards to PSP, it does make you feel a little easier knowing you are not alone in these matters. Although I doubt that there is much research being done into this awful "disease"...........

[Hidden]

Your Welcome New Freind. Shakalak, this is a good forum to check in with whenever you have have questions about your dad's psp. Checking older post helped me a lot when l first joined this group of understanding friends. PSP is such a mysterious disease & researchers are working to find answers. Sending gentle hugs, Granni B

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Yes, it does help to know there are people around the world who know what you are dealing with and what it feels like.

[Christine47]

You may find this produced by CurePSP very helpful. curepsp.s21.gcnet.co/wp-con...

[honjen43 in reply to Christine47]

Thanks Christine. It has answers to many of my 'old' questions, particularly the detail around brain donation.

My husband would probably not have consented if he had been asked, but I was also unable to find relevant material at the time.

I want to make sure my brain can go to research, and any other part of me if affected by cancer. Have not been able to source info so far, or the relevant wording for my will.

Now it is beginning to make sense. Now just have to find relevant rules, etc for NZ!

Hugs

Jen xxx

[acorneater]

I have found the support given on this forum a real comfort after not really getting what I was looking for elsewhere.Chin up,we are all with you.Acorneater.

[NanBabs]

Welcome.

You will find plenty of wisdom and support here from people who have been through this awful time or are still experiencing it. Please feel free to ask any question, however trivial it may seem (or how serious) and someone will get back to you with help and advice.

xx