for all new members of late.....: Hi - and... - PBC Foundation

PBC Foundation

9,475 members8,328 posts

for all new members of late.....

DonnaBoll profile image
DonnaBollAdministrator
0 Replies

Hi - and welcome! My name is Donna - I facilitate this support group for The PBC Foundation - Health Unlocked. First of all, take a breath. It’s ok. We all, myself included, have been exactly where you are right now…. scared, unsure, mad, sad, and so much more. Stop googling for information - get your info mainly from The PBC Foundation (pbcfoundation.org.uk). It would be so beneficial for you to join The Foundation as well - it’s free to do so.Their website has so much to offer someone who is just diagnosed as well as the person who has had PBC for many years.. Some other great resources are the Mayo and Cleveland Clinics, American Liver Foundation, and The Canadian PBC Society. Even though I live in the US, obviously many of our members live not only in the UK but around the world. Remember that every one of us has PBC differently from any other person in the group. Always be patient and kind to yourself. It takes everyone time for it all to become a reality. It’s natural to often feel we are no longer the person we once were. Never feel alone! Urso is a must drug to take. It has been proven to be the first line treatment for PBC. Take one day at a time. We are all in this together. The more you learn from these reputable sources then the more informed you are of the care you should be getting and deserve. No one should feel they have no one to turn to, even if it’s to vent. Feel free to ask questions here. Don’t hesitate to ask others for similar experiences. Everyone here is always willing to lend an ear or give a kind word. We all learn from each other. Feel free to post a question or concern here whenever you are ready to do so. Remember to take that breath……

Written by
DonnaBoll profile image
DonnaBoll
Administrator
To view profiles and participate in discussions please or .
Read more about...

Not what you're looking for?

You may also like...

This is Health Unlocked, by PBC Foundation but it is NOT the PBC Foundation

Confused?? Yeah, me too... So, really simply this is a forum technically hosted and owned by...
PBCRobert profile image
Partner

NEW PBC App for Apple Users (iOS)

will be available for free to members of the PBC Foundation from Mon 4th September. It will...
PBCRobert profile image
Partner

Is everyone a member of the PBC Foundation UK

Hi I was wondering if everyone on here is a member of the PBC Foundation. The Foundation cares for...
janethomas profile image
Moderator

A Robert Rant!!

Hi, all. I hope you are well. We have been focussed on patient support during Covid. Hopefully...
PBCRobert profile image
Partner

Thank you all

i just wanted to say that since I found this site I have never felt so part of something. After my...
June9961 profile image

Moderation team

See all
PBCCheryll profile image
PBCCheryllAdministrator
janethomas profile image
janethomasModerator
Cupcake1971_ profile image
Cupcake1971_Moderator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.