to all our newly diagnosed people - PBC Foundation

PBC Foundation

9,475 members8,328 posts

to all our newly diagnosed people

DonnaBoll profile image
DonnaBollAdministrator
0 Replies

Hi - and welcome! My name is Donna - I facilitate this support group for The PBC Foundation. First of all, take a breath. It’s ok. We all, myself included, have been exactly where you are right now…. scared, unsure, mad, sad and so much more. Don’t google - get your info mainly from The PBC Foundation (pbcfoundation.org.uk). Their website has so much to offer someone who is just diagnosed as well as the person who has had PBC for many years.. Other great resources are the Mayo and Cleveland Clinics, American Liver Foundation, and the Canadian PBC Society. I live in the US. Many of our members live in the UK. Remember that every one of us has PBC differently from any other person in the group. Be patient and kind yourself always. It takes everyone time for it all to become a reality.. Never feel alone! Urso is a must drug to take. It has been proven to be the first line treatment for PBC. Take one day at a time. We are all in this together. Hopefully you feel that whoever is caring for you, knows about PBC and how to treat someone with it. If this isn’t the case, we can talk about this.. No one should feel they have no one to turn to, even if it’s to vent. Remember to take that breath……

Written by
DonnaBoll profile image
DonnaBoll
Administrator
To view profiles and participate in discussions please or .
Read more about...

Not what you're looking for?

You may also like...

Newly diagnosed to PBC - help please

Hi, Firstly may I say how relieved I am to find a this community, foundation for PBC as a...
gurps89 profile image

Newly Diagnosed and Terrified

I am 44 years old and have recently been diagnosed with PBC. I had never heard of PBC and it...
Lee9294 profile image

Are we ALL mad???

I have spent close to a month on this site and without you guys i dont know where i would be, so...
Lisacj profile image

Newly Diagnosed with PBC

I was diagnosed just 2 months ago with PBC and the news terrified me as I had never heard of this...
GhostHunter profile image

This is Health Unlocked, by PBC Foundation but it is NOT the PBC Foundation

Confused?? Yeah, me too... So, really simply this is a forum technically hosted and owned by...
PBCRobert profile image
Partner

Moderation team

See all
PBCCheryll profile image
PBCCheryllAdministrator
janethomas profile image
janethomasModerator
Cupcake1971_ profile image
Cupcake1971_Moderator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.