Someone recently asked how often she should get a fibroscan or a MRE ( a more sophisticated scan). In Dr. Jones' book he says after getting one usually upon diagnosis for a baseline, most have one repeated every 1-5 years depending on how active or aggressive the disease is.
I strongly encourage everyone - especially newly diagnosed folks - to purchase this book. Dr. Jones is the leading expert in PBC. There is a first and second edition.. I would encourage you to purchase both. They are available on Amazon. Patients who have cirrhosis may need one more often to detect the amount of fibrosis (stiffness) in the liver. The name of the book is PBC The Definitive Guide for Patients with Primary Biliary Cholangitis. So much information here for everyone to read!