I am so fed up with waiting!! One of the big things with being in chronic pain, is the waiting. Waiting to see a specialist, waiting for blood results, waiting for the specialist to send the letter to the GP suggesting that the GP prescribes painkillers!! I went a week ago and GP hasn't received letter yet. Don't these people realise what it's like to be given hope that a new painkiller might help (but it ll take a week to work), but then you have to wait a week before you get the stuff prescribed in the first place! I saw the rheumatologist a month ago. He said come back in three weeks for result of blood tests and X-ray. Then a week ago said he'd sent a letter to GP suggesting these painkillers. So a whole month of no pain relief and still waiting!
It makes me so miserable, tearful and irritable.
Rant over.
Thanks
Written by
rowantree
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Hi, I waited six months to see the Vascular Surgeon who said I was seeing the wrong Consultant, so was put on the waiting list - so another six months saw a Dermatologist who said I should see a Rheumatologist - so another 11 months. Pain Clinic - 7 months and then every appointment was cancelled by the hospital (3 appointments in total). So yep know what you mean about waiting times. The Rheumatologist wrote to my GP in November, he didn't get the letter, thankfully I had asked for a copy of the letter so when I saw him (GP) in February - I just took a copy of my own letter. He'd never received a letter .
Hi rowan,it's soul distroying ,I do understand l had that happen to me last year ,so next time l went to the pain clinic l asked them to fax the prescription through to my gp and they did l also phoned my gps office told them to look out for it ,l got the prescription so much faster.
Then the clinic could take as long as they liked.
Ps,l also had the fax number of my gps office so everything went so much smoother
Hope this works for you x
OA......... the beast that grows as we deteriorate ... spreads it's self from one joint to another as healthy joints try to take the load off the ones that are suffering, then of course they start to feel the strain as well, OA moves in on them.......
If you feel like sitting down and having a real good bawl your eye's out cry - - - then do it.... cry till you are exhausted and fall asleep. I might help ease the tension that is building up inside you right now.
I know how you feel, and I am sorry I can't help - I can only sympathise and understand.
OA is to a great degree the ignored but very painful one of the 200 forms of arthritis, the wear and tear excuse gets thrown at you......... live with it etc. That make's it worse, it adds to the pain tension and frustration you already have. You tell people you started with it as a child, the bright spark comes back at you with........ ohhh so you have had time to get used to it then, poor me, I only just got this ################ and don't know what to do, they had a good happy childhood though......
I hope you get some pain relief soon.
Go easy on yourself
Cee
And that is exactly why I don't go near drs or hospitals unless I really have to. Got enough to deal with keeping the pain in the background without adding stress caused by a group of people who really with the best will in the world, cannot do anyting to help me.
Acceptance that the NHS could not do anything to help was a huge release, a bid for freedom that I embraced. It gave me permission to try out all the alternative therapies.
So I've got pain, its not going away, much better to have a nice time and positive experiences trying to control it than all the negativity around drs and hospitals.
Its a facinating journey learning about me, my pain and finding ways to keep it at bay. Why not give taking control a go? what are you going to loose? More importantly what are you going to gain? and who knows by the time your 3x cancelled appt comes around, it might be you cancelling it because you don't need it.
in reply to
Hello Zanna
i can understand your feelings to the NHS, also I feel that if there is any chance not too suffer I will also take it. My idea is life problems need to be realized and filed away until I can bring them out brush them down and do something about it.
When I was young and daft I used to be a youth worker, some of the things I saw amazed me and I lived a very active life, I used to do ballroom, latin dancing I was out doing the light fantastic three nights a week and then do the other nights at the community centres that was until, I had a car accident and that was me on a slipping slope and I had to stop that lifestyle and continue at a slower pace.
Over a long period of time I would not admit my condition and I began to have private medical treatment as my doctor could not understand what was wrong. When I proved my condition the GP would not think of me continueing with private practice as by then I had lost my job and life became really bad.
Since then thirty years ago the medics in the NHS have been very good with me, now I am putting more back as a thank you, we all have horror stories, although I seem to have been very lucky, I always give them the benefit of doubt.
That has opened up so many doors that some people have not opened.
I like your thoughts zanna. But it's expensive to try alternative therapies and orthotics and wrist splints etc to see which ones work. I find it frustrating to feel like I've wasted a lot of money on stuff that doesn't help!
These guys need a rocket up somewhere real painful - they have, it seems, no concept of moving quickly - 4 months looks like the average wait for anything. "Action this day" said Winston Churchill - a concept lost on the NHS, GPs, Consultants, and Pharmacies !
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Why such long wait?
Waiting and feeling down
Possible fibro waiting for diagnosis 
Still waiting for surgery
Fed up with the wait 
