Liver cirhosis stage 4 with blood test result... - Pain Concern

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Liver cirhosis stage 4 with blood test result being negative

monikoki profile image
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Hello, I need some advice or opinions regarding my situation, if possible.

I was diagnosed by Fibroscan with Stage 4 cirrhosis, and after more than two weeks after diagnosis, still waiting for an appointment with my specialist.

I want to specify that I was never drinking any kind of alcohol and never made any kind of abuse. Beside working like a crazy my entire life and smoking 20 cigarette daily, I have had a quite healthy life.

I know that cirrhosis is like a silent killer, but I am under medical care for almost 3 years, starting with spinal issues (lots of herniated discs in full spine and OA). From more than one year I started to get more weakness in full body, numbness on face and mouth, swall around knees and elbows, pain in my bones, etc. So, I start seeing Gynecologist for my abdominal pain, Ent doctor for the what is look like lymph node that I have in neck, Chest pain doctor for the intens tiredness that I have so quickly, etc. Beside the vitamin D deficiency and severe osteoporosis(which was discovered because I insisted to have a DEXA scan. In fact, I asked for every scan or specialist that I had or seen),I was in a "good health".

But I wasn't... I started to feel more and more debilitated, and start to blame myself of being to sensible (I even have seen a Psichologyst).

I have at least 3 abdominal scans last year, and everything was "fine ", and the abdominal pain from right side was without explanation. So, I was diagnosed with Fibro myalgia...

Finally, in December I started having more pain so, I was sent to have a Colonoscopy wich came back normal as well. In January my skin and eyes went yellow, and had a lymph node in my inguinal area. My Gp consulted me and said that is not a lymph node but give me anyway some antibiotic, and asked me if that is my usual skin colour and I said that maby... (I wasn't realising that my darker skin is not because of the dark light..) Thre days after, because the pain and swelling didn't subside, I went to A&E again(luckily my Gp was in holiday), and I was very lucky to find another doctor this time. He saw the lymph nodes, he saw immediately my skin colour, he asked to have an urgent scan again,but I was unlucky to have the same guy to take my scan. The same person who made it thre time before, and again saw nothing... But the emergency doctor booked me for another scan and different blood tests for the second day.

I was in the hospital for ten days, diagnosed initially with hepatitis E, but in the end was A. I had still very high levels in the blood tests when I was discharge, without any treatment.

From beginning of February when I was discharge, I saw the gastroenterologyst once when he said that everything looks fine, my blood tests are much better, nothing to worry about, but anyway he made me an appointment to have a Fibroscan, more for my peace of mind, and also said that if my blood test are still not normal after six weeks, he will book me for a biopsy. How many "six weeks" passed from February??

And... Surprise! The fibroscan results show cirrhosis stage 4!

I received the fibroscan results two weeks ago, and just today received a letter from the specialist and said"....I will see her in the clinic and discuss liver biopsy ". He looks very relax to me. I suppose that I will wait another few weeks until I'll see him..

I am very sorry to be soo long and maby boring, and thank you for reading my post. I have few questions if it is possible to give me some advice :

1.It is possible to develop Stage 4 Cirrhosis in six months, because of the hepatitis A?

2.Is possible the fibroscan to be wrong?

3.On a simple abdominal scan you cannot see liver or surrounding inflammation?

4.What are the chance to wake up with cirrhosis last stage, with all the medical "attention", and abdominal scans that I've had?

5.Can my situation be seen like a miss diagnosis or medical mistake?

6.How the type of the cirhosis is determined? By biopsy?

Thank you!

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