gastronamy peg

[mason]

i have a gastronamy peg in my stomach any one else have one xx

[DISC]

I have a PEG, because I have gastroparesis. I use mine for venting. Am supposed to have a second tube for feeding but cabt manage any more pain etc so have turned it down, as I am only 5 stone 6 at the moment. Have you only just had your PEG? Why have you had it and how are you getting on?

[mason in reply to DISC]

hello disc i have had my gastronamy peg since 2008 i have an eating disorder i cant swallow food or fluid or i choke its horrable and scary .i went down to under 5 stone and i was told eat die or have the peg i had the peg put in under general anisthetic i was put on fortysips i started of with one bottle a day as my stomach had shrunk i am now on 6 bottles a day its easy to use and i see my dietitiian every 3 months it took me about a year to put on the weight i had lost i am now 9 stone if you want to chat more please contact me .xx

[DISC in reply to mason]

My stomach is paralysed so whatever goes in my stomach doesn't do anything sadly, but it certainly causes severe pain. As for your constipation, you could get lubiprostone. Its a new drug, which used to be only on private prescription due to its cost, but is now on the NHS. I take 3 a day but 'normal' people would explode with one! I also take dulcosate throughout the day, along with other stuff. See your GP about the new drug though as it may help.

[mason in reply to DISC]

hi disc are they in liquid form and what are the side affects please as i have fibromyalgia since i have had fibro i get bad side affects from any medication ,

[DISC in reply to mason]

They are small capsules, but you can google to see if you can get it in liquids!