CA125 still good (I think): Hi all. Just giving... - My Ovacome

My Ovacome

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CA125 still good (I think)

drdu profile image
drdu
26 Replies

Hi all.

Just giving an update on my condition. I had a CA125 last month of 8, which my consultant assures me is fine. However it has normally been 6 or 7 when I am in remission, and so am just a little nervous about this level of 8, though my oncologist thinks it is most likely to be just normal variation. So I have asked for a check again in 3 months (October) instead of 6 months, and will have that.

I continue on ibuprofen, as anti-cancer agent, and omeprazole as usual, and am doing a lot of hillwalking and tennis. Going off to walk in the Italian Dolomites in a few days. And we are expecting our first grandchild at beginning of November, and so we are delighted about that, especially as our daughter had a miscarriage last year.

Will keep you updated re CA125.

Best wishes to you all.

Love,

Eileen x

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26 Replies
Zena41 profile image
Zena41

Hi dr is omeprazole safe to use as anti cancer agent ?

Yoshbosh profile image
Yoshbosh in reply toZena41

It's to help protect the stomach from the ibuprofen, Zena. It's the ibuprofen that counts as the anti-cancer agent.

Zena41 profile image
Zena41 in reply toYoshbosh

Are we to take ibuprofen do u think ?

Zena41 profile image
Zena41 in reply toYoshbosh

Anything gotta be worth a try hey!

Yoshbosh profile image
Yoshbosh in reply toZena41

Have a look on the internet for NSAIDs and cancer. Ibuprofen and aspirin are in the same family of drugs, which are thought to help with cancer prevention. Obviously, there's no detailed clinical evidence to categorically state that, but smaller scale studies indicate some benefit. Have a chat to you onc or GP for advice if it is something you are interested in.

Eileen (Drdu) has a lot of experience in this area.

Zena41 profile image
Zena41 in reply toYoshbosh

Thanks Hun

I never knew ?well I've learnt sum thing today vicki

Whilst sat in bed two days post chemo eating chocolate I just can't stop 😂

Yoshbosh profile image
Yoshbosh in reply toZena41

Lol! I was the same, but my thing was sea salt kettle chips and Twister ice lollies 😂

Zena41 profile image
Zena41 in reply toYoshbosh

Yep I can relate Lollys.

Does this eventually go ?

Yoshbosh profile image
Yoshbosh in reply toZena41

Yes it does 😊

drdu profile image
drdu in reply toZena41

PS I am a retired GP, and so have some idea what I am talking about!

E xx

drdu profile image
drdu in reply toZena41

Hi Zena. If you look at all my previous posts you will find out more about aspirin and NSAIDs like ibuprofen. People who are taking aspirin regularly or an anti-inflammatory like ibuprofen have less chance of getting cancer (proven reputable long-term studies) and if they get cancer it does not spread so easily. They also have an anti-cancer effect in some who do have cancer, preventing spread if the patient is already in remission. These drugs also have been shown to kill cancer cells in lab conditions. Check out aspirin on Cancer Research UK website.

Best wishes.

Eileen xx

Zena41 profile image
Zena41 in reply todrdu

Glad ur sharing the advice to us!!

drdu profile image
drdu in reply toZena41

Happy to do that.

E xx

drdu profile image
drdu in reply toZena41

It is ibuprofen that is an anti-cancer agent. Omeprazole is just to protect the stomach when taking ibuprofen.

Best wishes.

E xx

Katmal-UK profile image
Katmal-UK

Hi Eileen If it's any reassurance, mine was 7 when I was advised I was again NED, then dropped to below 3, and had fluctuated up to 3, down to below 3, and back up to 3 so to me it sounds like a normal variation though I like you get nervous when it goes in the upward direction even if it is one digit. Sounds like you are doing well! Great news about your impending new arrival, bet you can't wait! xx

drdu profile image
drdu in reply toKatmal-UK

Yes, thanks Katmal. Really looking forward to the baby.

All best wishes.

Eileen xx

Purple-iris profile image
Purple-iris

Hi Eileen

Thanks for posting and so pleased that you are doing so well on ibuprofen. Read your previous posts and will definitely talk to my oncologist about possibly starting ibuprofen, may have to wait till I finish maintenance Avastin in January.

Stay well and thanks again for such a positive post gives us all hope .

Love and best wishes Kim x

Purple-iris profile image
Purple-iris in reply toPurple-iris

My CA125 was confirmed as 10 today , fluctuates between 8 and 10 . Just had 6 month post chemo scan confirming NED so I am more than happy with another 10 . Was 3880 when diagnosed . Love Kim x

drdu profile image
drdu in reply toPurple-iris

PS Glad things are going well with you, Kim.

Eileen xx

drdu profile image
drdu in reply toPurple-iris

Thanks very much Kim. All best wishes to you.

Love,

Eileen xx

dmr24 profile image
dmr24

Pleased you are doing well. I have been taking an organic turmeric supplement every day since finishing chemo last November. I feel I could take on the world💪 onward and upward.

Best wishes Dil

drdu profile image
drdu in reply todmr24

Yes, have heard good reports of turmeric.

Best wishes to you.

E xx

Solange profile image
Solange

So pleased to have an update on how you're doing. Enjoy your Italian walking holiday. How super to be looking forward to becoming grandparents. We love having all our grandchildren. Hope all goes well for your Daughter.

Best wishes, Solange 😊

drdu profile image
drdu in reply toSolange

Thanks very much, Solange.

All best wishes.

Eileen xx

rijkje profile image
rijkje

Hello drdu. that's an inspiring story. Was diagnosed stage 4 in 2015 then it was changed to 3C when I had debulking surgery and after 3 rounds of chemo. When I finished chemo I was NED and in remission for 11 months. Finished chemo in may this year for my first recurrence. Did NOT get a remission this time. CA125 dropped to 35 but were 200 3 weeks ago. Would you be able to tell me if it would be beneficial in my case to start on either ibuprofen or aspirin to slow down cell growth? I have discussed with my functional/integrative GP and he seems to think it might be worth a try. My ONC does not support anything outside the norm (not even diet).

However from you post I think would only be beneficial if you are in remission?

Marijke

drdu profile image
drdu

Yes it would be best to be in remission marijke. All best wishes.

Love Eileen xx

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