The dreaded oc is back: Hello not been on the... - My Ovacome

My Ovacome

18,204 members20,344 posts

The dreaded oc is back

mrshill profile image
18 Replies

Hello not been on the site for a while. I am feeling very sorry for myself as I was told yesterday that I need to have a second cycle of chemo. My oc has returned in the bowel has anybody else experienced this.

Cathy

Written by
mrshill profile image
mrshill
To view profiles and participate in discussions please or .
Read more about...
18 Replies

I am so sorry that you have now got a recurrence, I had a recurrence (but not in the bowel) and have since been in remission for 18months ....wishing you all the best for your future treatment love x G x

Hi, I have had several recurrences over the last 4 yrs. When having surgery during my first treatment the surgeon noticed a walnut sized tumour on the bowel, he said he could have scraped it off but chose to cut it out. It tends to attack the surface of the bowel first and should react to treatment. I currently have disease on the bowel again plus some invasion on the rectum but neither have yet caused any bowel type problems. Good luck on your next treatment, i,m sure they can shrink it back. Love Sandra xx

mrshill profile image
mrshill in reply to

Thanks for the replies I am hoping it has not advanced too much and will respond to the chemo. I am not looking forward to being bald again but the side effects etc are a small price to pay if the treatment works. When are they going to find a cure for this!!

in reply tomrshill

You will not necessarily lose your hair, some chemo,s do not give hair loss. Carboplatin, Caelyx, Gemcitibine are examples. Taxol and Rotterdam you do lose your hair. Xx

wendydee profile image
wendydee

Hello Cathy

Sorry to hear that you've had a recurrence. It's what we all dread, isn't it. Hopefully, it will have been spotted early and the cycle of chemo, although it's not easy, will do the trick. I do hope so. In the meantime, keep in touch and let us know how you're doing. Sending you a hug (((xxx))) Think of all the women on this site who have had second line treatment and are still well, keep strong.......

Love Wendy xx

VickyEm profile image
VickyEm

Hi Cathy

Mine came back on my bowel 8 years ago. As it was in just the one spot I had surgery to remove it and 2nd line chemo, and it was hoped to be curative. Unfortunately it did return, but It gave me another 4 years remission so, as you say, the surgery & being bald was a small price to pay.

Its such a shock when you find out its back, but as I said, this was 8 years ago and I am still going strong (13years in total since 1st diagnosis), so there is always hope.

Vx

Whippit profile image
Whippit

Dear Cathy, I'm sorry you're feeling down. I always think the worst bit is hearing the news and then as you get a treatment plan it starts to feel better.

I'm waiting to have more treatment as my tumours aere reappearing but have been told we can wait and see so I'm back at the hospital this morning to discuss my personal cancer plan which is a bit different from some others as it involves a move to access better services.

We should keep in touch and compare notes.

There's some really helpful advice on the thread here. I hope it's cheered you up.

Loads of love, Annie xxx

Hello Cathy, Sorry its back but don't feel to down about it, focus on the next instalment

in your life and beat it again !!

Mine is on the way back again as well but not in the bowel.

There are always ladies out there years down the line look at VickyEm !!

Hope you feel better soon.

Love Trish x

Hi Cathy

No recurrence issues for me at this time but still wanted to send a virtual bug. It's what we all dread - but the above are good thoughts: focus now on the treatment to bash it back again, and as many times as needed

Love

Sue

Xxx

Hi Cathy

No recurrence issues for me at this time but still wanted to send a virtual bug. It's what we all dread - but the above are good thoughts: focus now on the treatment to bash it back again, and as many times as needed

Love

Sue

Xxx

Hug, even...

Ditto to PRchick. Cx

zuzana profile image
zuzana

Hi, Sorry to hear its coming back. It's very hard time to hear "it's coming back" I never got to reoccurrence but managed to go without treatment for 18 months, my last ct was actually better than one before which was performed just month earlier. My oncologist said she doesn't know what happened because she thought I would have to start with second line last December.i had fluid in abdomen too but. Last ct showed that fluid is gone and disease didn't grow either. Only what could help is that I have cut of dairy products from diet. I know I would have to go through chemo Again but Better later than sooner! Wishing u all the best xxx

Orsolini profile image
Orsolini

Hi Cathy - I'm on Caelyx for recurrance on bowel (multiple nodules) and have NOT lost my hair. Are they offering you an operation too? I had a 2nd operation but the surgeon didn't take out the largest tumour (c.4cm) as there were too many other ones near it and it was all too risky. From this site I have learnt that many, many women go through recurrance and that there are many, many treatment options out there. Good luck - Nicola

mrshill profile image
mrshill in reply toOrsolini

Hi everybody thanks so much for your support and advice I feel a lot better for it. I have been told that they can't operate on it so it is down to the chemo and will power. It's strange how so many different treatments are offered how do you know you are getting the best treatment, you have to trust the Oncologist. It is interesting about cutting out dairy does diet play a big role in your fight or is it just luck. I have been having Avastin for the past 10 months and it doesn't seem to have worked, I know it has been hailed as a wonder drug but is it really. Cathy

drdu profile image
drdu

I know the feeling when you are told the cancer is back. If you responded well to chemo the first time, you will hopefully respond well again. Thinking of you.

Love,

Eileen xx

postmistress profile image
postmistress

HI It is very frustrating. I understandkathy! JUst finished chemo when my doctor told me the cancer had come back. I have another tumor on my colin.Was operated forcolin cancer in November. May get another operation this summer. Found out this week that I have another tumor , smaller than the last one. But it is still there.Diana

Fernanda profile image
Fernanda

Cathy, very sorry to hear your cancer has recurred.

Just sending you a cyberhug and hope you can get here some support to face - and win again - this dread disease.

Hugs,

Fernanda

Not what you're looking for?

You may also like...

The diagnosis is not OC

Got my diagnosis today, its pseudomyxoma peritonei and not OC. The surgeon told me that its low...
jbobdot profile image

the dreaded ca125 check......

It’s now 4 years since my initial diagnosis of stage 3b PPC/Ovarian cancer. I’ve been suffering...
Eriksendi profile image

The dreaded CA

I am coming up to a year post op and one more avastin to go. I was feeling quite jubilant. I...
Gleedy profile image

The blighter is back

After almost 3 years of varying quality remission the recent CT has shown new lesions in liver. I...

The b****** is back

Morning lovely ladies. I had my appointment with my oncologist yesterday and she went through my...

Moderation team

See all

Top community tags

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.