Rheumatoligy appointment : I have my first Rheumatology... - NRAS

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Rheumatoligy appointment

Hightower62 profile image
45 Replies

I have my first Rheumatology appointment tomorrow in over two years and consequently have countless questions which I need to ask regarding my illness over that time and about issues and concerns I am currently experiencing.

I have written them all down long hand so I can make notes of the responses I get otherwise I will almost certainly forget half of what is discussed when I get out.

I realise it would obviously be down to the individual consultant in any case but am interested to know whether it would be reasonable to ask if I could record the session for my personal use or whether this would be a completely unreasonable request. I certainly wouldn’t want to get off on the wrong foot by annoying the consultant at the start of my appointment.

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Hightower62 profile image
Hightower62
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45 Replies
AgedCrone profile image
AgedCrone

Think you are more likely to get honest answers without a recording.

Just ask point blank what is the doctor treating you for& what is the prognosis

Hope you get the answers you are looking for.

Hightower62 profile image
Hightower62 in reply to AgedCrone

Thank you.

Amnesiac3637 profile image
Amnesiac3637

You could ring the consultant’s secretary to see how well recording would be received. They’ll know. If the answer’s no could you take someone in with you who could write down the answers to your questions?

Either way you’ll want to remember what they’ve told you as if you’re anything like most of us you’ll forget half of what you’ve been told before you’ve left the room. Actually, make that most of it…….! 😟Good luck with the appointment.

Hightower62 profile image
Hightower62 in reply to Amnesiac3637

Thank you, that’s great advice, I think I’ll forget all about proposing a recording. Definitely a bad idea.

Fruitandnutcase profile image
Fruitandnutcase

To be honest I can’t see the rheumy being keen on that and as AC says you might get more honest answers without recording the consultation. You can always ask but as you say it might get you off on the wrong foot.

Could you take someone with you who could maybe take notes or could you just jot your questions down as bullet points - starting with the most important first in case you find you run out of time? I’ve also heard of people printing out a couple of copies their list of questions and giving one to the doctor to look at while they are talking.

That might be less off putting for your rheumatologist than turning up with a page of handwritten notes.

Hightower62 profile image
Hightower62 in reply to Fruitandnutcase

Thank you, it definitely seems like a bad idea the more i think about it.

Fruitandnutcase profile image
Fruitandnutcase in reply to Hightower62

It’s not exactly a bad idea - it would certainly make life easier for patients if we could do that - it’s just that I don’t think your rheumy would feel happy being recorded

Hightower62 profile image
Hightower62 in reply to Fruitandnutcase

On reflection I agree. A case of thinking out loud I think!

Runrig01 profile image
Runrig01

Agree with others, that you’ll get more honest responses without recording. They fear it being used against them, and most Trusts encourage clinicians not to put theirselves at risk. It’s a similar reason most don’t reply by email.

I would write bullet points rather than long notes, which is less daunting for the rheumatologist than long hand notes. I’d prioritise them in what you most need answers too, as you may run out of time. Give them a copy at the start, so they can drop in answers as the conversation flows, then there is left needing to be addressed near the end.

Hightower62 profile image
Hightower62 in reply to Runrig01

Thank you, that makes complete sense.

oldtimer2 profile image
oldtimer2

I always take a list of questions! And when the consultant is trying to wind up the consultation (he/she should ask if you you have anything else you want to ask!), I say something like 'Can I just look at my list to make sure that we've covered everything?'

I can then ask something if it hasn't been. Unfortunately, this does mean that, often, only one of those outstanding questions gets answered! You would need to be really tenacious to ask more than one, or possibly two, queries.

I ask if the consultant can run through what the medical plan for the future consists of. This gives me a better idea of what they have in mind for the future.

I certainly would not ask to record the consultation - it suggests that you are likely to be litigious. I already have a label of being a 'difficult' patient - although they do use me a lot for teaching junior doctors and students!

Hightower62 profile image
Hightower62 in reply to oldtimer2

Thank you, with hindsight I agree.

Deeb1764 profile image
Deeb1764

I think it depends on the consultant my sisters hubby did it at his cancer appointment so they did it forget anything and he allowed the recording and said it happens a lot now instead of note taking. I am asking mine on Fri for ease too .

Hightower62 profile image
Hightower62 in reply to Deeb1764

Thank you.

welsh12 profile image
welsh12

Best of luck I would make brief questions and gave it to them unfortunately my recent appointment I was out the door in no time but did ask a couple of questions

Hightower62 profile image
Hightower62 in reply to welsh12

Thank you 😊

Rusticgarden profile image
Rusticgarden

Again as others have said bullet points of 3-4 of main important questions as Consultant won't answer loads , hasn't got the time to answer everyones questions .So bullet points could be treatment plan, side effects,your main issues of pain . Going forward

Hightower62 profile image
Hightower62 in reply to Rusticgarden

Thank you 😊

WilfDog profile image
WilfDog

It's a great idea and would be very helpful to patients if they were allowed to do this, however, as others have said, I don't think it will be well received and if it is, the consultant will be thinking carefully about what he/she says.

I get copies of letters from my consultation that are sent to the GP so you could ask the secretary or at the reception when you book in if you could do the same It is very helpful to refer back to if needed.

I would write down brief points of the issues you would like to discuss in order of priority and hand that to the consultant, who can then go through each one as needed. You'll then be able to expand on the points in question and discuss them. If the questions are in front of the consultant then it is less likely that they'll be ignored.

Good luck. I hope you have a successful appointment. x

Hightower62 profile image
Hightower62 in reply to WilfDog

Thank you 😊

Shonkie profile image
Shonkie

If possible taking someone else along to listen really helps .

Hightower62 profile image
Hightower62 in reply to Shonkie

Thanks, yes my wife has just changed her day around so she can come.

Seabird1 profile image
Seabird1

I totally understand why you would want to. It's sometimes such a quick visit that I'm heading home replaying in my head the main points. When I see the Gp they have a letter dictated to them by the specialist. I am in Australia so I presume it's the same where you are. So it's interesting to see the letter or have the Gp read it to me to clarify points. Good luck. I'm sure the younger doctors wouldn't object.

Hightower62 profile image
Hightower62 in reply to Seabird1

Thank you 😊

Seatgeorge profile image
Seatgeorge

Most consultants are more than happy to discuss your condition gives them an idea on the correct treatment etc.

Hightower62 profile image
Hightower62 in reply to Seatgeorge

Thank you 😊

Luludean profile image
Luludean

I agree with Aged Crone, asking for a recording could seem a teeny bit confrontational. Print out a list of questions and go through them calmly. Or, take someone with you. Do you know this consultant? If you do have concerns or feel you have more pain etc , don’t walk in and go all flippant ( like I do) . Be realistic not apologetic , your pain is your pain and will still be there tomorrow if you do not tell ,him/ her/ them. Good luck , hold head high .

I may say these things but, I failed on all counts and got absolurely NO answers . None. Now , I am no further forward and in escalating pain . Wish I had been more assertive. L

Hightower62 profile image
Hightower62 in reply to Luludean

Thank you, I just had my appointment and the consultant was brilliant. Didn’t rush me and happily answered all my questions. My wife made notes so no recording necessary 😊.

Luludean profile image
Luludean in reply to Hightower62

That is very good news !!!! L

Take someone with you who has a better memory. I do this as I can't remember half of what I'm told.

Hightower62 profile image
Hightower62 in reply to Flipper12345yellow

Same! 😂. Thank you.

buffycat profile image
buffycat

hi x

Being prepared in appointments is a key part to us managing our illness, it helps us to be more knowledgable and empowered.

Do you have an option of taking someone with you? An extra pair of ears can be really useful.

Take care x

Hightower62 profile image
Hightower62 in reply to buffycat

Thank you, just got back & everything went really well 😊.

Amnesiac3637 profile image
Amnesiac3637 in reply to Hightower62

Oh, very glad to hear all went well - such a relief for you. Hope you now get the treatment you need and you get to see somebody regularly!

stbernhard profile image
stbernhard

At times when I had fatigue, I asked my consultant if she'd mind if I record the conversations we were having and she didn't mind at all. Thought it was a good idea, because I wouldn't come back with already answered questions later. I hope you'll get some honest answers.

Hightower62 profile image
Hightower62 in reply to stbernhard

I did, thank you 😊.

cyberbarn profile image
cyberbarn

The advice and guidance given to doctors is that patients have the right to record their consultations, and although the patient doesn't have to ask permission to record, it would be polite if they do so.

I routinely record all appointments with consultants now, either for myself or my son. Sometimes I tell them I am doing it but often they don't give you an opportunity to tell them because they launch straight into the consultation.

Research backs up the need for patients to have recordings of their medical encounters. Patients typically only remember about 30% of their appointment, and with the passage of time they will remember much less than that.

Research (my academic area is in human computer interaction and user experience) shows that people are not put off by being recorded. Once the recording device is switched on and put aside, they very quickly forget it is there.

Recording appointments is routine in certain domaines, as someone has mentioned, cancer is one of them. The research showed that patients rarely remembered anything accurately from the appointment where they were told they had cancer, and some places now record the appointments and give the patient a copy of it.

One thing to remember though, you can only use your recording for personal reasons. Recordings like this can not be used in a court of law. The recording is your data, and you can use it for your own purposes, it is not the data of the doctor.

So go ahead and record it. Tell them you are recording it so that you don't forget anything. And if they object, point them in the direction of the British Medical Association's website on recording consultations:

bma.org.uk/advice-and-suppo...

The more people who record their appointments, the better outcomes we will have and the more normal it will seem to everyone.

Hightower62 profile image
Hightower62 in reply to cyberbarn

Thank you for taking the time to reply, I managed the appointment ok this time without recording as I wasn’t sure about it and fortunately it went really well with my wife taking notes.

I will certainly bear this in mind for future appointments especially if on my own

Nurse12 profile image
Nurse12

If you have a perfectly honest and above board Dr then he should have no problem letting you record the conversation

Hightower62 profile image
Hightower62 in reply to Nurse12

Thank you 😊.

pammi2 profile image
pammi2

i dont know why you have waited 2 years for an appointment, why? you have every reason to record..

Hightower62 profile image
Hightower62 in reply to pammi2

Thank you for replying, unfortunately my Rheumatology department are running over with appointments by 12 months.

pammi2 profile image
pammi2 in reply to Hightower62

there is no way i would ever put up with that, you have to force them.. i make them see me twice a year

Smittybear7 profile image
Smittybear7

asked the doctors notes to be sent to your primary care doctor and also a copy to you.

Hightower62 profile image
Hightower62 in reply to Smittybear7

Thank you.

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