Second post and update.: Thanks to everyone who... - NRAS

NRAS

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Second post and update.

Loopylu19 profile image
19 Replies

Thanks to everyone who supported me in my previous post regarding my first appointment with a rheumatologist. I was a tad nervous seeing this guy and I stuttered through my symptoms..long story short he gave me 2 pred injections into my shoulders and told me to come back in 3 months, that I had not got RA. Delighted with the news and relieved I got great relief in the shoulders head and neck, not so with hands, arms , feet etc. Pain, numbness, pains and needles, brain fog etc continued. So I went for a second opinion, what a difference this guy listened to me, spoke with me and reassured me. He has confirmed onset of RA and started me on Plaquenil 200mg and Ixprim for pain relief. Were it not for this forum I would not have had the confidence to go further with this issue and assert myself. Many thanks to you all for information provided and support.

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Loopylu19
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19 Replies

👍 this forum has given me confidence too

Hello dear, I liked your comment because by being proactive you now have a firm diagnosis and a treatment plan. But I don't like the fact that you do have RA. Please continue to post here to let us know how you get on. :-)

Loopylu19 profile image
Loopylu19 in reply to

Thank you

rab1874 profile image
rab1874

Hi Loopy ,well done for taking it further and getting better treatment xxx

Loopylu19 profile image
Loopylu19 in reply torab1874

Thank you

KittyJ profile image
KittyJ

That’s good news (that you are getting treatment) but not good you have to join us. I hope you get some relief now.

Loopylu19 profile image
Loopylu19

Thank you

AgedCrone profile image
AgedCrone

Good news you found a good rheumy....sad it is RA...but as you have an early diagnosis & have started treatment you should have a very good prognosis!

It does make you wonder though how some doctors can practice as Rheumatologists........when they can’t recognise it......... 🤯

Loopylu19 profile image
Loopylu19 in reply toAgedCrone

Yes..it has taken awhile. The second rheumatologist looked at my bloods, my history and my hands and called it ..I am glad to be off prednisone now 😀

Troygirl profile image
Troygirl in reply toLoopylu19

Wish I could be off the prednisone!

Been seeing my RA dr since late 2017 and he has pumped almost every

DMRAD and biological for TNF, IL-6 and JAK inhibitors and even brought out the big guns...IV Infusion!

Nothing he has tried has worked to be able to get me off this darned nightmare of prednisone! Doses as high as 20-30mg per day!!

Been on it for months and months and months and now have Cushingoid!

Loopylu19 profile image
Loopylu19 in reply toTroygirl

Sorry to hear that Troygirl 🤔

AgedCrone profile image
AgedCrone

Agree 100%.....try to stay clear if you can.

Take care...be positive.....most of us lead good lives....don’t let RA take you over.

Loopylu19 profile image
Loopylu19 in reply toAgedCrone

Thank you I won't 🥰

charisma profile image
charisma

That’s great news re proper treatment and good Rheumatologist. But sorry it is RA. All the best with waiting for effective drug benefits to be felt. 🙂

WOOHOO on the 2nd appointment and you got listened too!

Loopylu19 profile image
Loopylu19

It took time

Mmrr profile image
Mmrr in reply toLoopylu19

I'm so pleased you made progress, stay strong 😉

Biofreak profile image
Biofreak

So glad you got a diagnosis. It's a good starting point. Hope all goes well for you now.

Loopylu19 profile image
Loopylu19

Thank you

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