Osteoporosis medication and RA: Hi I've just been told... - NRAS

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Osteoporosis medication and RA

Dobcross1 profile image
Dobcross1
โ€ข13 Replies

Hi I've just been told my osteopenia has progressed to osteoporosis - despite taking lots of Vit D and a bone strengthening HRT for the past 9 years! ๐Ÿ™„ I'm due to start alendronic acid and a calcium supplement next week and just wondering if anyone has experience of taking these with MXT (15ml). I've still got RA symptoms with the MXT so dont want to take anything that might stop it working (eventually!!). I'll ask rheumatology of course but would rather hear the views of those who've taken it if possible.

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Dobcross1
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13 Replies
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Yes I take both of those and Iโ€™m on mtx. Not noticed it affecting the way my mtx works. ๐Ÿ˜Š

Dobcross1 profile image
Dobcross1โ€ข in reply to

Thanks that's reassuring ๐Ÿ˜€

pd118 profile image
pd118โ€ข in reply to

flared got taught to self inject - love upper legs - read online gets into body better than pills

I took AA for 6 months with MTX. The only problems were from AA so I changed to Zoledronic Acid which is an infusion. Try the AA, but if you don't get on with it, ask for another treatment such as Zoledronic. But whatever you do, DON'T LET THEM GIVE YOU PROLIA. Perhaps you would like to join the Osteoporosis forum, healthunlocked.com/bonehealth the members there are so helpful. Or you could visit The Royal Osteoporosis Society website (theros.org.uk/) and ring the helpline on 0808 800 0035. The nurses are marvellous. You can contact the specialist nurses in one of three ways:

Call 0808 800 0035 - free from all UK landlines, mobiles and call boxes

Email nurses@theros.org.uk for a reply within 5 working days

Write to the nurses for a reply within 7 working days: Helpline, Royal Osteoporosis Society, Camerton, Bath, BA2 0PJ

Our nurses are here to take your call between 09:00 and 17:00, Monday to Friday, with the exception of Bank Holidays and Christmas closure. Occasionally, the Helpline is closed for training.

All the best.

Dobcross1 profile image
Dobcross1โ€ข in reply to

Thanks so much for all this info. I'll join the osteoporosis forum definitely.๐Ÿ˜€

Kalimera57 profile image
Kalimera57โ€ข in reply to

Thatโ€™s so helpful. Thank you for sharing all of that.

pd118 profile image
pd118

I was taking pills now inject my upper legs - love online research says gets into body 70 % better than pills

Jan101050 profile image
Jan101050โ€ข in reply topd118

I am pre osteoporosis and have been on AA for some years. Nasty fracture to my knee just before Christmas . I only crouched down so no physical activity ! To have a bone density scan and another MRI on my knee. Can you tell me the name of the injection you take ? Would like to discuss this with my consultant.

Dobcross1 profile image
Dobcross1โ€ข in reply topd118

Thanks for this. Do you mind me asking which injection you use? Am seeing my GP next week to start treatment and I'd like to go with as much info as possible.

pd118 profile image
pd118โ€ข in reply toDobcross1

I was on Methotrexate pills years flared twice learnt to inject upper legs - did online research injection gets into body 70 % better than pill - I back that up !

Joy_1 profile image
Joy_1

Hi

I take MTX and have been on Alendronic Acid + 1 calcium supplement for a while now. I take Alendronic and calcium as a preventative measure as I am playing the game of getting off steroids.

I have not had a problem with either meds.

Dobcross1 profile image
Dobcross1โ€ข in reply toJoy_1

Brilliant! Thanks very much. You hear so many horror stories so it's good to hear a good one. I'm pretty sure it's the monthly steroid injections I've been having whilst waiting for MXT to work that have tipped me from osteopenia into osteoporosis. I have a rheumatology appt tomorrow so this is one of the (many!) questions I have for them.

pd118 profile image
pd118โ€ข in reply toDobcross1

I read online takes 6 weeks to kick in ugh ! I inject upper legs - love - gets into body better than pills

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