A light!!!!: Was waiting to see GP and my phone rang... - NRAS

NRAS

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A light!!!!

Someonesmother profile image
20 Replies

Was waiting to see GP and my phone rang. It was the rheumy nurse to tell me I had been approved by drug company on compassionate grounds fro 3 months of enbrel. woo hoo so I should get it next week and start. I have another appt to see registrar as I still have 2 DMARDS to go through and then I have had every one of them. I still have to try them to be qualify for enbrel on an ongoing basis. let's hope I can either tolerate one of the final two or I fail both before the 12 weeks is up so I don;t have a gap in treatment. Fingers and everything crossed. (How my fingers feel BTW)

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Someonesmother
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20 Replies

Brilliant news - well done! X

Someonesmother profile image
Someonesmother in reply to

I really needed some good news today. I think I ma heading in to another flare and am feeling so terrible. It was like a little angel blessing.

in reply toSomeonesmother

More like a very big angel blessing perhaps?! Hope you aren't going into another flare but at least the thought of trying Embrel should keep you warm inside. X

Someonesmother profile image
Someonesmother in reply to

Feels like I am I have had the shivery/creepy crawly feeling for a few days now going on around my body, short of breath, pain in chest and ribs and feel like I could roll over ad die. seems to be how I start. I am pinning a lot on this so I hope it works and no bad side effects

helixhelix profile image
helixhelix

Whoopido! Fingers crossed that that light just gets stronger & stronger.

Someonesmother profile image
Someonesmother in reply tohelixhelix

Oh I am praying don't you worry. I so want this to work, nothing else has in nearly 3 years.

Tinat3 profile image
Tinat3

Thats fantastic news! So pleased for you. Good luck with the treatment :-)

Someonesmother profile image
Someonesmother in reply toTinat3

I know, so glad something is going right.

hatshepsut profile image
hatshepsut

Great news, I am so pleased for you! Next step is for it to work speedily and well, with no nasty side effects! M xx

Someonesmother profile image
Someonesmother in reply tohatshepsut

Yes I am so hoping that is what happens :}

Titchyj profile image
Titchyj

I really hope this works for you and there are no more rejections of DMARDS, good luck,hope you feel better soon.

Jan

Someonesmother profile image
Someonesmother in reply toTitchyj

Me too Jan. Only 2 DMARDS to go and I have done them all. Just hope neither of them damage my liver more than the last one did.

Hobbits profile image
Hobbits

great News!!

Someonesmother profile image
Someonesmother in reply toHobbits

It is.

cathie profile image
cathie

I really hope it works well for you.

Someonesmother profile image
Someonesmother in reply tocathie

Me too Cathie, I am really hoping my body likes this one

nomoreheels profile image
nomoreheels

Everything is crossed SOM, I hope it works for you. Sorry to add a little bit of a negative but I hope your feelings of shivvery/creepy crawly, pains in chest etc are just anxiety. A bit aware a the mo & maybe reading too much into it but your blood readings are ok aren't they?

Someonesmother profile image
Someonesmother in reply tonomoreheels

Not anxiety it is always what I get before a flare. I have finally started to see the pattern of how they strike. Only took me 3 years hahahah I am having weekly blood tests at the mo due to liver levels so I am sure they will ring if anything is untoward.

nomoreheels profile image
nomoreheels in reply toSomeonesmother

Oh good, on both counts.

Someonesmother profile image
Someonesmother in reply tonomoreheels

I only ever get anxious when I have to do something like a job interview. OMG then I need to be close to a bathroom hahahah

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