Methotrexate: Well nows the time I wish I had read all... - NRAS

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Methotrexate

Philip profile image
30 Replies

Well nows the time I wish I had read all the posts about Methotrexate because I start on it tomorrow lol, only a low dose though lol 7.5mg Methotrexate and 5mg frolic acid next day.

So now I'll have to start reading all the posts lol, any advice is great .

Thank you

Philip

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Philip profile image
Philip
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30 Replies
helixhelix profile image
helixhelix

Don't read anything! Just believe that it will be great and will work in double quick time.... It's been a wonder drug for me. Oh, and DON'T take the tablets with a large glass of whisky!

Philip profile image
Philip in reply tohelixhelix

Sounds good to me lol thank you,

mary53 profile image
mary53

Like the idea of frolic acid sounds fun....lol

Philip profile image
Philip in reply tomary53

HEHEHEHE, I just noticed that lol

cathie profile image
cathie in reply tomary53

Like baby lambs

Philip profile image
Philip in reply tocathie

But without the jumping around lol

Drink lots of water, I'm sure it helps with Mtx. Otherwise I'd just second helix's words. I think of it as an old workhorse - takes ages to get going but does the job reliably & well (for many people anyway).

Philip profile image
Philip in reply to

That's good to know, thank you

Sharon56 profile image
Sharon56

Yes will ask my clinic if I can have Frolic acid lol. Sounds fun.x

Philip profile image
Philip in reply toSharon56

You never know your luck lol

AuroraB profile image
AuroraB

Frolic acid made me smile. Frolic acid every day except methotrexate day for me, thought my issues were MTX now I realise its the frolic acid that just is failing to work!!!! I'm going to call it that from now on!

Philip profile image
Philip in reply toAuroraB

Lol yeahhhhh, famous for being a frolic lol

Annielou profile image
Annielou

You should be fine - I've been on 20 mg weekly for four years, first tablets, then injectables and no side effects really - it hasn't worked as well for me as it does for some people but have had no scary experiences or side effects. Good luck!

Philip profile image
Philip in reply toAnnielou

Thank you Annielou, hopefully I'll be a lucky one lol.

Good luck Philip, I have been on 7.5 mg of mtx plus hydroxy since diagnosis in 2009. I never managed a higher dose as my bloods wouldn't take it but it has worked well and I have just been told I am in remission. It is slow to work though so don't expect too much too soon.

Sue

Philip profile image
Philip in reply to

Thank you SueB, they are keeping a close eye on me lol.

Philip

zannie profile image
zannie

Hi Philip,

I've been on the same dosage as you you've been recommended for both methotrexate and folic acid, for the last year.

It took a while for relief to kick in, but now I've had magical results, practically no pain, numbness and cramp which I used to feel before. No alcohol on the day before during and after. Works well for me. Best of luck.

Philip profile image
Philip in reply tozannie

Wow sounds good, thank you, relief from pain is worth millions lol, I don't drink so that'll be ok lol

Paulineg profile image
Paulineg

Hi Philip. When I started on good old methotrexate I had read nothing about it on these posts. I only knew what my consultant told me and the leaflet enclosed with meds. I'm so glad I hadn't read more at that time because I would have been scared stiff to take it. Believe me, do as my old dad would have said "suck it and see". Maybe I am lucky but I can't speak highly enough of it. I have basically no side effects and do not wake in the middle of the night with that terrible pain in my hands and feet. So Philip, relax, go with it and judge for yourself, you may also be like me and benefit from it. Good luck!!!

Philip profile image
Philip in reply toPaulineg

No leaflets from anyone for me to read lol, I look it up and. Soon turned the laptop off too lol, scary stuff.

selina profile image
selina

Have faith! I think consultants like to try mtx 1st. I have been on 15 mg for 5 yrs or more with only a few headaches to cope with. I'm officially in remission so it seems to work for me. Of course, it may not last but for the moment I'm grateful for it. Good luck

Philip profile image
Philip in reply toselina

Sounds good being in remission, I'm on Sulfasalazine since the beginning, about 3 years now so this is on top lol, what next lol.

Philip

Philip profile image
Philip

Thank you everyone

Shell1967 profile image
Shell1967

It's been my magic pill,I read all sorts and scared me to death,but nothing but good to say about mtx,its my best friend and helps me lead a normal life :)))) good luck michelle x

Philip profile image
Philip

Thanks shell, it's getting better and better this stuff, thank heavens i don't have to pay or the stuff.

Philip profile image
Philip

My 3rd week of the weekly dose and everything has gone well, no side effects lol but a dizzy spell the other day, here hoping it works for me lol and the frolic acid is going well too, YAY.

PHILIP

Mintychristine profile image
Mintychristine

I've just returned from clinic and being dreading it but Sulphasine + Hydro isn't helping my Rheumatoid my thyroid shot up took ages to get down since xmas had anaemia they're excluding gi stuff but as its 11 its ok (in truth lm bit disappointed no txt So ankles+ knees worsening bit deformed actually I had hydro inj and to start Mxt the paperwork will be posted so lm reading your positive posts biting my lip 😧 I've been moaning so long lm gonna try and be positive is it tablets to begin any advice would be great.

Kathyem profile image
Kathyem

Well, i decided to go with methotrexate injection! Had my first dose last night! So far, alls well. :)

Philip profile image
Philip in reply toKathyem

That great Kath, I hope everything goes your way . Xx

Kathyem profile image
Kathyem in reply toPhilip

Thank you! I hope i have the success that you are! :)

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