Dexta still no results : My Dr secretary rang the... - MPN Voice

MPN Voice

10,832 members15,115 posts

Dexta still no results

mag123ben profile image
2 Replies

My Dr secretary rang the hospital. They haven't got enough staff to read them. Even if my Dr. Rang for results they still would have to wait for someone who can read them . I'm getting an appointment to see a Dr. At the surgery asap as the swelling is bigger, pain still up all of leg. And behind knee has started to hurt. Right leg has a small swelling coming up. So no more asking dexta scan for results, been 6 months since done, and a year since seen Dr. In the first place. Since been told have MPN and ET. So wish me luck some answers soon

Written by
mag123ben profile image
mag123ben
To view profiles and participate in discussions please or .
Read more about...
2 Replies
hunter5582 profile image
hunter5582

This is no longer just about luck getting answers. It is about requiring adequate care and not accepting unacceptable responses. Six months to read a DEXA scan is absurd and absolutely unacceptable. I would be wondering if they even still have your scan to be read. I would insist on having the images made available so that if necessary you can go private to get your results.

Given that you have an emergent issue with pain and swelling in the leg that is getting worse, the time for an answer is now. This may or may not be related to the DEXA scan results, but you have no way to know. Hopefully, your appointment with an orthopedic specialist is soon. Given that you are experiencing acute increase in pain and swelling, an Urgent Care appointment would be indicated if your appointment is not soon enough.

Hopefully, you are already actively consulting with a MPN Specialist. Bone pain is a MPN symptom that can be quite significant. Input from a MPN Specialist will be critical in finding out what is going on.

Assertive patients receive higher quality care. Passive patients do not. We must be our own best advocates. Suggest that it is time to be very assertive in advocating for yourself. There is assistance if you find that you need it.

pohwer.net/

nhs.uk/nhs-services/hospita...

Wishing you success in moving forward.

Rem31 profile image
Rem31

This sounds like complaint time is overdue. I believe you are in Wales and the NHS link that Hunter sent seems to apply to NHS England only.

Maddeningly I can’t find a similar link for NHS Wales but try this one which comes from Cardiff and Vale Health Board and maybe they can put you in touch with your local PALS office.

cavuhb.nhs.wales/contact-li...

You could also search using your local hospital name and PALS. (Patient Advice and Liaison Service.)

Here is another link for a service set up by the Welsh Government that could be useful.

llaiswales.org/have-your-sa...

I hope this helps.

Not what you're looking for?

You may also like...

Jak2 results

I've been waiting for Jak2 results for 11 weeks now! Can anyone tell me if they have waited this...

Blood test results

I've been getting my results from haematology Nurse at hospital for 2 years . They must be so...
Mostew profile image

Still no wiser

I've been to the hospital this morning for a scan on my spleen, which came out normal!. I've been...
lizzziep profile image

Still the waiting game..

It has been about three weeks since I was tested for the Jak2 mutation. I have had bad anxiety...
BrandyC84 profile image

Pegasys .. very slow results

Hi all I’ve been on Pegasys since December with very limited results so far , my consultant has...
Suebon profile image

Moderation team

Debinha profile image
DebinhaAdministrator
Mazcd profile image
MazcdPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.