Happy New Year Everyone: I would like to wish... - LUPUS UK

LUPUS UK

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Happy New Year Everyone

CecilyParsley profile image
β€’59 Replies

I would like to wish everyone a very Happy New Year. I hope the new year brings us hope and better treatment. Thank you all for your friendship, support, humour and advice. I shared this photo of an abandoned piglet and kitten who have become firm friends as I feel it represents the community we have here, diverse but bonded in shared experiences. I hope you like it 🍾πŸ₯‚πŸŽ‰ xx

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CecilyParsley profile image
CecilyParsley
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59 Replies
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Oshgosh profile image
Oshgosh

Thank you for your good wishes.i hop the New Year brings everything you need.

CecilyParsley profile image
CecilyParsleyβ€’ in reply toOshgosh

Thank you so much xx

Spanielmadlady profile image
Spanielmadlady

Wishing you a peaceful, safe year to come my friend xxx

CecilyParsley profile image
CecilyParsleyβ€’ in reply toSpanielmadlady

You too lovely. We are warriors ( even if we are fighting from our armchairs ) xxx

MEGS53 profile image
MEGS53

Let's hope for a better, safer and healthier 2021. 😘😘😘

CecilyParsley profile image
CecilyParsleyβ€’ in reply toMEGS53

Absolutely Meg xxx

MEGS53 profile image
MEGS53β€’ in reply toCecilyParsley

❀️❀️❀️

svfarmer profile image
svfarmer

This picture melted my heart Cecily - Happy New Year πŸ₯³ to you and your hubby and your 2 fur babies xx

CecilyParsley profile image
CecilyParsleyβ€’ in reply tosvfarmer

Thank you so much. Happy New Year lovely xxx

eunidarling profile image
eunidarlingβ€’ in reply tosvfarmer

Thank you for your touching picture of hope Cecily. Best wishes for 2021. Take care

CecilyParsley profile image
CecilyParsleyβ€’ in reply toeunidarling

Thank you. Happy New Year xx

KayHimm profile image
KayHimm

Happy New Year to you, Cecily! Such a touching and representative photo.

Thank you for your caring and generous presence.

🎊πŸ₯³

Kay

CecilyParsley profile image
CecilyParsleyβ€’ in reply toKayHimm

Thank you so much Kay. Happy New Year xx

stiff19 profile image
stiff19

Here’s to a better, different new year πŸŽ‰πŸ™ lovely pic 😍xx

CecilyParsley profile image
CecilyParsley

Absolutely. Happy New Year 🍾πŸ₯‚πŸŽ‰ xxx

Kevin53 profile image
Kevin53

Happy new year πŸ’œ

CecilyParsley profile image
CecilyParsleyβ€’ in reply toKevin53

Happy New Year Kevin. Thank you for all that you do to support and inform everyone here. We are blessed to have you 🍾πŸ₯‚πŸŽ‰

Jmiller623 profile image
Jmiller623

Happy New Year!!! πŸ₯‚πŸŽ‰πŸŽ‰πŸ₯‚

KayHimm profile image
KayHimmβ€’ in reply toJmiller623

Here is a New Year’s toast to you! I can’t thank you enough for your article from Graham Hughes on APS. Like you, I am antibody positive but, thankfully, no clots. In the last paragraph, Professor Hughes addresses the problem his patients have with long-haul flights - something my doctors have tried to understand with me for a long time. Now my neurologist writes in my chart that, though mechanism not understood, K is able to tolerate long haul flights with prednisone. This is not science, just experience. It was impressive how my doctors just trust Graham Hughes’ vast experience.

πŸŽ‰πŸŽŠ

πŸ‘©πŸ»β€πŸ”§πŸ˜

Jmiller623 profile image
Jmiller623β€’ in reply toKayHimm

Happy New Year Kay!!! So glad that article was helpful. It’s a great summary of all the weirdo neuro mystery symptoms that we seem to have. Steroids take away my livedo almost immediately and improve cognition beyond just the euphoria some experience. So much is still unknown. We need more experts. Hughes can’t live forever.

KayHimm profile image
KayHimmβ€’ in reply toJmiller623

But his expertise and listening skills does live forever. It really was remarkable how my doctors just sort of deferred to the « expert. » Dr. Hughes suspects it is hypoxia that causes these symptoms but advocates for further studies.

🎈🎈🎈

Susieliz39 profile image
Susieliz39

Happy New Year to you too Cecily!2020 has certainly been the β€˜year that was’ Let’s hope that 2021 brings us all more peace and positivity.

CecilyParsley profile image
CecilyParsleyβ€’ in reply toSusieliz39

I hope so Susie we need some right now. Happy New Year 🍾πŸ₯‚πŸŽ‰ xx

honeybug profile image
honeybug

Luv ya CP. EJ πŸ˜ŠπŸ€—β€οΈπŸ₯°πŸ™πŸ•ŠπŸŽ†πŸŽ‡

CecilyParsley profile image
CecilyParsleyβ€’ in reply tohoneybug

😘😘

eekt profile image
eekt

Happy New Year! Let's hope it's a good one! :) xxx

CecilyParsley profile image
CecilyParsleyβ€’ in reply toeekt

Happy New Year eekt 🍾πŸ₯‚πŸŽ‰ xxx

MEGS53 profile image
MEGS53β€’ in reply toeekt

It's just got to better than the last one! 🀩🀩🀩

CecilyParsley profile image
CecilyParsleyβ€’ in reply toMEGS53

I thought it was so apt for us all. Different but the same lol xxx

eekt profile image
eektβ€’ in reply toMEGS53

Without a shadow of a doubt ! Have a guid yin Meg! xxx

MEGS53 profile image
MEGS53β€’ in reply toeekt

πŸ’ƒπŸŽ‰πŸ€©β€οΈπŸ˜‰

Barbara17 profile image
Barbara17

Happy new year, Cecily. Hope it’s a good one for us all.

CecilyParsley profile image
CecilyParsleyβ€’ in reply toBarbara17

Happy New Year Barbara 🍾πŸ₯‚πŸŽ‰ xxx

Krazykat26 profile image
Krazykat26

Happy New Year Cecily πŸ€—πŸŒˆπŸ˜½πŸ˜½xx

CecilyParsley profile image
CecilyParsleyβ€’ in reply toKrazykat26

Happy New Year Kat. I hope it brings you better health and is filled with love xxx

Barbara17 profile image
Barbara17β€’ in reply toKrazykat26

Happy new year, Kat. Hope it’s a good one

Krazykat26 profile image
Krazykat26β€’ in reply toBarbara17

Happy New Year Barbara πŸ€— I was just thinking about u this morning..I wonder if I can ask u a question? I posted up a while ago about Alendronic Acid n I remember u saying that it wasn't for u..can I ask u why it didn't work? I've been taking it for three weeks n I'm getting bad side effects. One more question..do u take an alternative bone protector?If you've got a sore heid take your time replying but I would be very interested to know!! 🌈😽😽Xx

Barbara17 profile image
Barbara17β€’ in reply toKrazykat26

Haha, sore heids from drink are a distant memory! One drink and I’m asleep these days. I managed one rhubarb gin with ginger ale last night! I took the alendronic acid for three weeks but felt sick and dizzy shortly afterwards. The last time I almost passed out then had a horrible vertigo attack. I saw a doctor ( not the ⭐️ GP) the next day and she ruled out lots of nasty things but couldn’t say what had caused it but accepted it might have been the alendronic acid. So she gave me a prescription for another type which she said was β€˜more gentle β€˜. However I decided I was on enough meds and, as I hadn’t had a bone scan due the pandemic so no one knew if I needed this or not, I decided not to take it. I haven’t had any more funny turns since so who knows?

I’d like to reduce pred before I take anything else. I dropped from 10mg to 9 and 1/2 last week so 🀞 fingers crossed. I know it will be a long process but it’s a start.

Lovely bright day here and the sun is dropping now so I might go for a wee daunder and blow the cobwebs away. Love to you and yours for 2021. B xx

Krazykat26 profile image
Krazykat26β€’ in reply toBarbara17

Bless ya thank u Barbara πŸ€— it's good to know that there's something gentler out there!! I haven't had a DEXA scan either!! N I feel the same way as u..do I need it or not? It's causing a lot of problems n looking at the leaflet I seem to be having side effects. Enjoy your wee donder 🌈😽😽xx

Barbara17 profile image
Barbara17β€’ in reply toKrazykat26

You seem to be having a really bad time just now. Hope things start to improve for you asap. 🀞❀️

MEGS53 profile image
MEGS53β€’ in reply toKrazykat26

Hi KK. I hope you're starting to feel a bit more like the KrazyKat we know and love, xxx🐾❀️🐾❀️🐾❀️

Krazykat26 profile image
Krazykat26β€’ in reply toMEGS53

Aww bless ya Meg πŸ€— happy new year to u..n thank u for thinking about me. Unfortunately I'm still having a πŸ’© time..spent all day n night yesterday in bed sleeping..been getting horrendous stomach cramping, vomiting, hot n cold sweats..hey ho..this too will pass!! 🀞🌈😽😽Xx

MEGS53 profile image
MEGS53β€’ in reply toKrazykat26

Maybe it's time to contact your GP or even A and E? I know it's NY day, but this has gone on for a while now (soz to sound like your mum!!). Take care, but please don't hesitate to ask for help. xxx😻😻😻

Krazykat26 profile image
Krazykat26β€’ in reply toMEGS53

It's so hard to know whether it's a stomach bug or side effects from Alendronic Acid but thanks for the advice mum πŸ˜ΉπŸ€— at least I'm up out of bed today n I will contact the doctor next week..I've got a rheumy appt on Tuesday but don't know whether that will go ahead now as I'm sheilded again!! 🀷🌈😽😽Xx

MEGS53 profile image
MEGS53β€’ in reply toKrazykat26

OK, but please ask for help if you need it. Even a very brave warrior can only take so much! It may indeed be the Alendronic Acid (forgotten you were taking this) causing a tummy upset - do ask your rheumy. πŸ‘©β€βš•οΈπŸ‘©β€βš•οΈπŸ‘©β€βš•οΈ

Krazykat26 profile image
Krazykat26β€’ in reply toMEGS53

Will do n thank u again πŸ€—πŸŒˆπŸ˜½πŸ˜½xx

CecilyParsley profile image
CecilyParsleyβ€’ in reply toKrazykat26

Oh Kat I think Meg is right. Please don’t struggle on lovely. You need some help. Do you think that it is attributable to the flare or the alendronic acid? Sending you big virtual Cwtches lovely xxx

Krazykat26 profile image
Krazykat26β€’ in reply toCecilyParsley

I think it could be a bit of both?!? It's so hard to know isn't it? I don't usually get stomach cramps n vomiting with my flares but before this happened my skin was flaring quite badly on my feet!! It's hard to distinguish these things sometimes. I've been looking at the AA leaflet today though n I am getting side effects..quite a few of them so I'm gonna leave it off for now until speak to GP.Thanks for the cwtches..big cyber πŸ€—πŸ€—πŸ€—backatcha hun 🌈😽😽xx

Welshlasscerys profile image
Welshlasscerys

πŸ’žβœ¨

Spotty-ewe profile image
Spotty-ewe

Happy New Year Cecily and to all on this forum.πŸ₯³ Let’s hope the vaccine makes it a better one for all of us.πŸ™πŸ» Whatever the year brings we’ll get through it all together like the piglet and kitten.🀝 Great picture Cecily. 😍 Love and hugs πŸ€—πŸ˜˜x

CecilyParsley profile image
CecilyParsleyβ€’ in reply toSpotty-ewe

Thank you Spotty. You are so right we will continue to support one another through whatever life throws at us. Happy New Year lovely, I hope it is good to you xxx

Spotty-ewe profile image
Spotty-eweβ€’ in reply toCecilyParsley

Thanks Cecily πŸ€—πŸ˜˜πŸ’•

Barbara17 profile image
Barbara17β€’ in reply toSpotty-ewe

Happy new year, Spotty. Strangest one ever in Scotland!

Spotty-ewe profile image
Spotty-eweβ€’ in reply toBarbara17

Happy New Year Barbara. We stayed up for the bells but strange with nobody first footing and all good wishes having to be done by e-mail or phone. Hopefully next New Year will be more traditional. πŸ™πŸ» Wishing you all the best for 2021 Barbara. πŸ€—πŸ˜˜x

CecilyParsley profile image
CecilyParsley

Thanks Lou I hope it brings us better health and hope xxx

Fisher50 profile image
Fisher50

Thank you & happy new year to you and your family.

CecilyParsley profile image
CecilyParsleyβ€’ in reply toFisher50

Thank you Happy New Year Fisher 🍾πŸ₯‚πŸŽ‰ xx

BonnyB profile image
BonnyB

Happy new year X

Tykle profile image
Tykle

Thank you and happy new year to you too!

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