I would like to wish everyone a very Happy New Year. I hope the new year brings us hope and better treatment. Thank you all for your friendship, support, humour and advice. I shared this photo of an abandoned piglet and kitten who have become firm friends as I feel it represents the community we have here, diverse but bonded in shared experiences. I hope you like it πΎπ₯π xx
Happy New Year Everyone: I would like to wish... - LUPUS UK
Happy New Year Everyone
Wishing you a peaceful, safe year to come my friend xxx
This picture melted my heart Cecily - Happy New Year π₯³ to you and your hubby and your 2 fur babies xx
Happy New Year to you, Cecily! Such a touching and representative photo.
Thank you for your caring and generous presence.
ππ₯³
Kay
Hereβs to a better, different new year ππ lovely pic πxx
Absolutely. Happy New Year πΎπ₯π xxx
Happy new year π
Happy New Year!!! π₯πππ₯
Here is a New Yearβs toast to you! I canβt thank you enough for your article from Graham Hughes on APS. Like you, I am antibody positive but, thankfully, no clots. In the last paragraph, Professor Hughes addresses the problem his patients have with long-haul flights - something my doctors have tried to understand with me for a long time. Now my neurologist writes in my chart that, though mechanism not understood, K is able to tolerate long haul flights with prednisone. This is not science, just experience. It was impressive how my doctors just trust Graham Hughesβ vast experience.
ππ
π©π»βπ§π
Happy New Year Kay!!! So glad that article was helpful. Itβs a great summary of all the weirdo neuro mystery symptoms that we seem to have. Steroids take away my livedo almost immediately and improve cognition beyond just the euphoria some experience. So much is still unknown. We need more experts. Hughes canβt live forever.
Happy New Year to you too Cecily!2020 has certainly been the βyear that wasβ Letβs hope that 2021 brings us all more peace and positivity.
Happy New Year! Let's hope it's a good one! xxx
Happy New Year Cecily π€ππ½π½xx
Happy new year, Kat. Hope itβs a good one
Happy New Year Barbara π€ I was just thinking about u this morning..I wonder if I can ask u a question? I posted up a while ago about Alendronic Acid n I remember u saying that it wasn't for u..can I ask u why it didn't work? I've been taking it for three weeks n I'm getting bad side effects. One more question..do u take an alternative bone protector?If you've got a sore heid take your time replying but I would be very interested to know!! ππ½π½Xx
Haha, sore heids from drink are a distant memory! One drink and Iβm asleep these days. I managed one rhubarb gin with ginger ale last night! I took the alendronic acid for three weeks but felt sick and dizzy shortly afterwards. The last time I almost passed out then had a horrible vertigo attack. I saw a doctor ( not the βοΈ GP) the next day and she ruled out lots of nasty things but couldnβt say what had caused it but accepted it might have been the alendronic acid. So she gave me a prescription for another type which she said was βmore gentle β. However I decided I was on enough meds and, as I hadnβt had a bone scan due the pandemic so no one knew if I needed this or not, I decided not to take it. I havenβt had any more funny turns since so who knows?
Iβd like to reduce pred before I take anything else. I dropped from 10mg to 9 and 1/2 last week so π€ fingers crossed. I know it will be a long process but itβs a start.
Lovely bright day here and the sun is dropping now so I might go for a wee daunder and blow the cobwebs away. Love to you and yours for 2021. B xx
Bless ya thank u Barbara π€ it's good to know that there's something gentler out there!! I haven't had a DEXA scan either!! N I feel the same way as u..do I need it or not? It's causing a lot of problems n looking at the leaflet I seem to be having side effects. Enjoy your wee donder ππ½π½xx
Hi KK. I hope you're starting to feel a bit more like the KrazyKat we know and love, xxxπΎβ€οΈπΎβ€οΈπΎβ€οΈ
Aww bless ya Meg π€ happy new year to u..n thank u for thinking about me. Unfortunately I'm still having a π© time..spent all day n night yesterday in bed sleeping..been getting horrendous stomach cramping, vomiting, hot n cold sweats..hey ho..this too will pass!! π€ππ½π½Xx
Maybe it's time to contact your GP or even A and E? I know it's NY day, but this has gone on for a while now (soz to sound like your mum!!). Take care, but please don't hesitate to ask for help. xxxπ»π»π»
It's so hard to know whether it's a stomach bug or side effects from Alendronic Acid but thanks for the advice mum πΉπ€ at least I'm up out of bed today n I will contact the doctor next week..I've got a rheumy appt on Tuesday but don't know whether that will go ahead now as I'm sheilded again!! π€·ππ½π½Xx
Oh Kat I think Meg is right. Please donβt struggle on lovely. You need some help. Do you think that it is attributable to the flare or the alendronic acid? Sending you big virtual Cwtches lovely xxx
I think it could be a bit of both?!? It's so hard to know isn't it? I don't usually get stomach cramps n vomiting with my flares but before this happened my skin was flaring quite badly on my feet!! It's hard to distinguish these things sometimes. I've been looking at the AA leaflet today though n I am getting side effects..quite a few of them so I'm gonna leave it off for now until speak to GP.Thanks for the cwtches..big cyber π€π€π€backatcha hun ππ½π½xx
πβ¨
Happy New Year Cecily and to all on this forum.π₯³ Letβs hope the vaccine makes it a better one for all of us.ππ» Whatever the year brings weβll get through it all together like the piglet and kitten.π€ Great picture Cecily. π Love and hugs π€πx
Thank you Spotty. You are so right we will continue to support one another through whatever life throws at us. Happy New Year lovely, I hope it is good to you xxx
Happy new year, Spotty. Strangest one ever in Scotland!
Thanks Lou I hope it brings us better health and hope xxx
Happy new year X
Thank you and happy new year to you too!