What a surprise ...: Hi all, I am from... - Hughes Syndrome A...

Hughes Syndrome APS Forum

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What a surprise ...

malena profile image
4 Replies

Hi all, I am from Serbia, and living with a diagnosis of APS 8 months.

Whatever it is difficult to reach a diagnosis, I had the good fortune to meet a great neurologist.

I had a facial paresis with poor reflexes of the right arm and leg.

During two weeks of treatment and subsequent tests, we came to this diagnosis.

So far I have only joint pain, dry mouth, and sometimes poor concentration

Aspirin 100mg treat me and honestly I'm not sure whether it was good.

I try to accept this without panic and fear, but since little is known about this dont nou what awaits me in the future.

But I am always positive and smiling and I hope only nice things.

I know that I must be strong because I have 36 years and two children and life is still ahead.

This summer we had a wonderful holiday in Halkidiki, Greece.

I try to be informed, to get to the good doctor and to eat healthy and move.

What tomorrow brings, we'll see.

I love you all and wish you the best.

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malena profile image
malena
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4 Replies
travelnut profile image
travelnut

Sounds as if you've got exactly the right attitude Malena.

All the best.

jessielou profile image
jessielou

Hi malena

glad you found good neurologist. Keep searching for answers as well. Love your positive attitude. Wishing you and your children all the best.

Take care. Gentle hugs Jessielou x x x x x x x x x x x

Andrewl profile image
Andrewl

Hi Malena, you have the best attitude for life and what it will throw at us... keep up the positive thoughts. I am glad you have the diagnosis and now you can move forward. I feel we are all in the same boat of not knowing what is in front of us, and so you have the best attitude for moving forward. I salute you. Big hug, and take care x

paddyandlin profile image
paddyandlin

Hi Malena, this is a fantastic attitude to have and we all in the same boat keep going.

paddy

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