I'm thinking of starting a support gr... - Fibromyalgia Acti...

Fibromyalgia Action UK

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I'm thinking of starting a support group,any advice would be appreciated.

pinkblossom profile image
14 Replies

Hi everyone

Iv just finished my 8 week fibromyalgia support group sessions at my local hospital with 6 other people,we will all be meeting again for a review session in december,we have all agreed to get together in the new,after chatting with everyone they are very keen on making it a regular thing,I am quite interested in starting a fibro friendly support group in my area of Exeter,what I am interested to know is has anyone set up or knows of anyone that has set up a group and whether they could give me some advice,I would like to make it available to anyone in the my area where they can come and chat over coffee and share experiences.

((((((((( soft hugs to everyone )))))))

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pinkblossom profile image
pinkblossom
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14 Replies
irisjoy profile image
irisjoy

sounds a wonderful idea pinkblossom , i would love to be able to attend a group bour nearest is miles away and i don't drive xx

pinkblossom profile image
pinkblossom in reply toirisjoy

That's a shame irisjoy,I think everyone would benefit from these groups if only there was enough of them so people wouldn't have the distance problem,I do hope one gets set up by you soon..xx

Mdaisy profile image
Mdaisy

Hello Pink Blossom,

I recently founded a group called Andover Fibromyalgia & M.E Chatterbook Group (Est May 2012) before becoming a part of FibroAction. I still run this group with other Admins and I would more then happy to help advise you on how to start a support group.

Please private message me if you would like to have a chat.

Best Wishes

Emma

pinkblossom profile image
pinkblossom in reply toMdaisy

Hi Emma

That's really kind of you,I would appreciate any advice on how to get started,I want to find out as much as I can before I take the plunge! It's just knowing where to start and how to go about it,I have a review session at the hospital on 19th december where I will have another chat with the others about it,i mentioned it to the physio who runs these 6 week support sessions and she was more then happy to let other people that attend her groups that there is a local group where they can come and chat over coffee,I will get a few things on paper and chat with the others and get their feedback and I will PM for some help on how to get started,thanks for your kind offer of help..best wishes julie

Ozzygirl64 profile image
Ozzygirl64

It is a great idea but I would have no idea where to start. Chances are if we had one here I would not get there due to caring for my dsughter xxxxx

pinkblossom profile image
pinkblossom in reply toOzzygirl64

Hi Ozzygirl64

I'm glad you think it's a good idea,thanks for your support,its a bit daunting I must say!!...xx

Ozzygirl64 profile image
Ozzygirl64 in reply topinkblossom

Lifeis daunting hun, we never know what is coming next do we xxxxx

Fantastic idea Julie, well done and wishing you the very best of luck with your new project! :) xxx

pinkblossom profile image
pinkblossom in reply to

Thanks libertyz,I'll keep you all upto date on how I get on!..xx

Hi Emma,

Thank you for your reply to pinkblossom. You have invaluable knowledge of this.

Catherine

Mdaisy profile image
Mdaisy in reply to

Thank You for the lovely comment Catherine.

I am blushing slightly but I am very pleased at how successful the group has been in my local area in such a short time.It is bringing people living with Fibromyalgia & M.E together for the benefit the community. I have a wonderful team of Admins more recently and with the Teamwork we have achieved a great deal.

I am obviously very pleased with its progress , if that's allowed

Emma

in reply toMdaisy

Congratulations and well done Emma! :) xx

that is wonderful i wish there was near to me, good luck darling.

pinkblossom profile image
pinkblossom

Thanks akram,tried to look into it a bit more on the Internet earlier but fell asleep on the sofa for nearly 2 hours!..xx

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