Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

71,165 members • 52,338 posts

All posts for November 2022

Experiences of having one ovary or full hysterectomy

Hi lovely endo warriors. I had a laparoscopy 4 weeks ago. Yesterday my consultant called me and we had a 30 minute conversation (I had to pinch myself as that...

Hi lovely endo warriors. I had a laparoscopy 4 weeks ago. Yesterday my consultan...

Awwy

•2 years ago

2 Replies

Acute illness blamed on endo?

I've been in hopsital for 8 days after coming in with heart rate 130 and temp 40, pain in middle of pelvis which moved over to the right side. In the first few...

I've been in hopsital for 8 days after coming in with heart rate 130 and temp 40...

Surfingblue

•2 years ago

2 Replies

Zoladex for adhesions, cysts and Adeno

Hi I've been suffering with such severe endo pain recently I've ended up in hospital twice. A MRI has shown a large ovarian cyst, and lots of adhesions on my...

Hi I've been suffering with such severe endo pain recently I've ended up in hos...

43runs

•2 years ago

2 Replies

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Private laparoscopy- back to NHS?

After being palmed off by my NHS GP for years I eventually decided to book a private appointment via health insurance which I'm covered for via work. Within...

After being palmed off by my NHS GP for years I eventually decided to book a pri...

PICKANDMIX811

•2 years ago

6 Replies

Had surgery and got a diagnosis

Just thought I'd update. Had surgery and I have got a patch of deep endometriosis in left side of pelvis near the bowel? The gynae didn't state the exact...

Just thought I'd update. Had surgery and I have got a patch of deep endometriosi...

me94

•2 years ago

9 Replies

Pelvic MRI - does it cover abdomen too?

Hi there, this may be a silly question but I'm booked in for pelvic MRI next month (had endometriomas confirmed on abdominal US in Aug/Sept) to assess extent...

Hi there, this may be a silly question but I'm booked in for pelvic MRI next mon...

Rewe

•2 years ago

6 Replies

Severe pain after coil insertion

Hi guys, I was wondering if any of you had experienced bad pain after having a coil fitted? I decided to get one while I’m in a long waiting list to see yet...

Hi guys, I was wondering if any of you had experienced bad pain after having a ...

Bumblebee213

•2 years ago

10 Replies

Healed lesions!?

I've just had my first laparoscopy and whilst nothing was found/removed they said they could see evidence of healed lesions. I was just out of surgery so I...

I've just had my first laparoscopy and whilst nothing was found/removed they sai...

hattie1108

•2 years ago

1 Reply

Keyhole surgery

Hello all, I was wondering if anyone knows about funding for surgery? I have the option to have it in a matter of weeks private, whereas general aren’t even...

Hello all, I was wondering if anyone knows about funding for surgery? I have th...

Yellow1606

•2 years ago

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Being booked in for laparoscopy

I had my telephone appointment yesterday with my BSGE consultant after being diagnosed with severe endometriosis by MRI at my local hospital - I'm being...

I had my telephone appointment yesterday with my BSGE consultant after being di...

Sarniemill

•2 years ago

5 Replies

Stage 4 Endo- complex surgery including bowel required- Need Positive stories

Hi All I have stage 4 endo. I have had 2 laps now. The second had to be abandoned as the surgeons couldn’t access my ovaries to remove Endometriomas and any...

Hi All I have stage 4 endo. I have had 2 laps now. The second had to be abandon...

Emmavk88

•2 years ago

7 Replies

Surgery

I have just woken up properly from surgery, I’ve been out since 4pm (I think) on and off. I’m not currently on any painkillers (that I know of) and I feel...

I have just woken up properly from surgery, I’ve been out since 4pm (I think) on...

Aardvarks

•2 years ago

5 Replies

Finally had the operation

HI All Finally had my hysterectomy yesterday still in hospital recovering the pain is horrendous it so glad it’s been done. Anyone got any advice on...

HI All Finally had my hysterectomy yesterday still in hospital recovering the ...

Bassem1979

•2 years ago

13 Replies

Zoladex & Fainting

I have severe endometriosis & adenomyosis, I am now on a waiting list for a full Hysterectomy but that wait is about 1 year yet. I have previously had the...

I have severe endometriosis & adenomyosis, I am now on a waiting list for a full...

TJ2021

•2 years ago

3 Replies

No diagnosis

I had my gynaecologist appointment a few weeks ago after coming off the pill and not being able to handle my period pains (I have since gone back on the pill)....

I had my gynaecologist appointment a few weeks ago after coming off the pill and...

squash21

•2 years ago

2 Replies

A reminder of the value of ultrasound

https://healthunlocked.com/endometriosis-uk/posts/148439846/information-post-the-value-of-transvaginal-ultrasound-for-endo.

https://healthunlocked.com/endometriosis-uk/posts/148439846/information-post-the...

Lindle

•2 years ago

1 Reply

Advised to have hysterectomy (stage 4 DIE endo) had hormone treatment instead?

hello, I was wondering if there are any women on here who were advised to have a hysterectomy for stage 4 Ddeep infiltrating endo (also endo on bowel) but...

hello, I was wondering if there are any women on here who were advised to have a...

Ess1982

•2 years ago

22 Replies

Diagnostic laparoscopy

For as many years as I can remember I've been struggling with excruciating pelvic pain, extending to my legs and lower back. Missed many days at school, laying...

For as many years as I can remember I've been struggling with excruciating pelvi...

Edda13

•2 years ago

13 Replies

HRT/Endo

Read some articles re taking HRT when having Endometriosis possibly encourages endo to return or can lead to cancerous cells etc.Any views?

Read some articles re taking HRT when having Endometriosis possibly encourages e...

Jgp1

•2 years ago

6 Replies

So near, but feeling so far

I don't know where to start, and I apologise if I ramble.I am awaiting a total hysterectomy with excision laproscopicly. My first surgery for endo. My...

I don't know where to start, and I apologise if I ramble.I am awaiting a total h...

Macdunc29

•2 years ago

5 Replies

Endo neurologist

Hi, do any of you know a good neurologist who is specialised in endo, i hv nerve issues affecting my bladder, loss of feeling, urge and lots of dizyness,...

Hi, do any of you know a good neurologist who is specialised in endo, i hv nerve...

65br

•2 years ago

3 Replies

TTC 2 and half years

me and my husband have been trying for over 2 years now with no luck. I have stage 4 endo which is mainly rectovaginal and have had 4 surgeries so far to...

me and my husband have been trying for over 2 years now with no luck. I have sta...

Munns22

•2 years ago

3 Replies

endo hell

Hi all, I have endo..pcos/fibroids/ademyosis does anyone else all four? I have had 3 /.4 since 2006 and battle with my then gp to ref me to a gynae as most...

Hi all, I have endo..pcos/fibroids/ademyosis does anyone else all four? I have ...

ocke2030

•2 years ago

3 Replies

Anyone else having kidney issues? I'm about to have mine removed due to endometriosis.

Hi, just wondered if anyone else having similar issues. Very long story but 6 years ago I had my uterus, tubes, one ovary, appendix and extensive endometriosis...

Hi, just wondered if anyone else having similar issues. Very long story but 6 ye...

Bettyheslop

•2 years ago

23 Replies

zoladex headaches

After suffering with endo for several years I have now had the zoladex injection. I’m due for my next month one on Tuesday but so far my experience hasn’t...

After suffering with endo for several years I have now had the zoladex injection...

99anon

•2 years ago

3 Replies

medically induced menopause

I’m only 26 and have the coil, the surgeon has said he wants me to be put into early menopause to treat my deep pelvic endometriosis. But no other treatment...

I’m only 26 and have the coil, the surgeon has said he wants me to be put into e...

Red476

•2 years ago

10 Replies

To hell and back...

I was diagnosed with endometriosis and fibroid in my late 40s. Pain was horrendous and bleeding would make its way through my clothing. The merena coil was...

I was diagnosed with endometriosis and fibroid in my late 40s. Pain was horrendo...

Andi04

•2 years ago

3 Replies

No period and negative tests

Hi Guys, After 10 long years, 3 years ago I was diagnosed with endometriosis and had a laparoscopy not long after. In a follow up appointment I was told I...

Hi Guys, After 10 long years, 3 years ago I was diagnosed with endometriosis a...

Sunflowerjess

•2 years ago

1 Reply

Endometriosis/questions live tv should hear about.

I just had some very interesting questions. If endometriosis starts of with scarring in your body and hormones. But in pregnancy it stops and slows the...

I just had some very interesting questions. If endometriosis starts of with sca...

nikkimatt2019

•2 years ago

20 Replies

Pregnancy/endometriosis

Hi girls havent been on here for while since announcing pregnancy. I'm nearly 29 weeks pregnant. And alot questions is on me and my partner mind about...

Hi girls havent been on here for while since announcing pregnancy. I'm nearly 2...

nikkimatt2019

•2 years ago

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Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

All posts for November 2022

Experiences of having one ovary or full hysterectomy

Acute illness blamed on endo?

Zoladex for adhesions, cysts and Adeno

Private laparoscopy- back to NHS?

Had surgery and got a diagnosis

Pelvic MRI - does it cover abdomen too?

Severe pain after coil insertion

Healed lesions!?

Keyhole surgery

Being booked in for laparoscopy

Stage 4 Endo- complex surgery including bowel required- Need Positive stories

Surgery

Finally had the operation

Zoladex & Fainting

No diagnosis

A reminder of the value of ultrasound

Advised to have hysterectomy (stage 4 DIE endo) had hormone treatment instead?

Diagnostic laparoscopy

HRT/Endo

So near, but feeling so far

Endo neurologist

TTC 2 and half years

endo hell

Anyone else having kidney issues? I'm about to have mine removed due to endometriosis.

zoladex headaches

medically induced menopause

To hell and back...

No period and negative tests

Endometriosis/questions live tv should hear about.

Pregnancy/endometriosis

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