Confused and worried

[Rosie_20]

So I am currently 20 years old , back in June 2020 one Sunday evening I was struck with the worst abdominal pain on my right hand side I’ve ever felt. I was screaming in pain and at my big age all I wanted was my mum ! After my boyfriend and mum see me they took me straight down to A&E due to COVID-19 I was left to walk into the hospital by myself where I had to sit for over four hours in excruciating pain whilst the doctors did tests. Around 4 am they decided to cancel anything to so they sent me home to then go to another hospital at 8 am do you have and Altra sound. During the other four hours I was at the other hospital alone having ultrasounds I was left to sit in a waiting room on a chair. Upon further inspection and tests they could not find anything so sent me home but give me a number to ring if I experience the pain within the next two hours to come down to be able to spend the night in the hospital to carry on further tests in the morning. After three hours of me being at home I was took back down to the hospital to be sat on another chat to wait two hours for bed to be ready at this time it was midnight before I got into bed and was given some painkillers and told to rest for the night. The next morning I was sent for another ultrasound which came back Clear. Was then sent home and doctors told me to keep taking paracetamol until the pain was gone as the doctors could not find anything. Over the past four months I have put up with this constant pain . In which I tried to hide as I thought I was being silly and it was all in my mind. However last week I decided I could not deal with the constant pain so I rang the doctors . The doctor then tell me you was going to refer me to another area in the hospital for them to have a look at my ultrasound I have now just found out today that they may think is endometriosis! I’m upset by the fact the doctor didn’t explain or for me what this was. Olli said his was he’s going to refer me. I have been sat here for 4 hours googling what endometriosis is and I’m in shock ! However now looking at the symptoms it explains why have I experience a lot of them ever since I was 14.

I I think this is a huge shock to taking I just don’t know how to let it sink in

[plotments]

Hi It is a shock and can be a lot to take in especially if you didn't think your symptoms could be endometriosis

There is lots of information on this site and we all understand what your going through

try not to overwhelm yourself with too much information at once and give yourself time to absorb what your reading

I hope your pain eases soon

take care

[Rosie_20 in reply to plotments]

Thank you !

[JulesUK]

I’d suggest giving google a rest. It’s best to be in possession of all the facts but try to limited your time to maybe one or two sites (like this) because it’s all very scary at first and whilst it can have a major impact on your life it can also be managed if you find the right treatment for you. Personally knowing what I know now, I would write and complain to the hospital. Covid or not your treatment was very poorly managed and even now there are rules and standards hospitals have to adhere to and you’ve been let down (as many of us have). Unfortunately with this you have to take your health into your own hands and be assertive, which is difficult when there is a lot of pain involved. Don’t be afraid to make a fuss it’s your body. Ring your GP and push for answers and referrals. I hope you get some answers.

[Moon_maiden]

HiThe endo uk have a telephone helpline, it might be worth being able to chat to someone whose gone through it.

I hope your GP is proactive and helpful, but don’t be afraid to push for things to happen.

If you have any questions do post them, someone I’m sure will be able to help. Try not to get too stressed and you seem to have support at home 🙂