Hi, I am new here, I am 36 and was diagnosed with Endo in 2011, I've had 5 laparoscopy surgeries, the latest being in Jan 2019. Since the current surgery my symptoms have got so much worse and I am really struggling. Tried the Mirena Coil for pain relief which worked for around 9 months, The Pill with no break, Tramadol, Morphine, Co Codamol, amongst others.
My Fiance and I are desperate for a baby so I cannot go on any birth control again and time isn't on our side due to our age, We have suffered 2 miscarriages, I have had my tubes dyed and they came back clear.
The pain has been so bad the past 6 months, in my back/ovaries/ribs/legs, I feel like I am being slashed on the inside with a knife repeatedly...
I have taken so much time off work, I think they are getting to the point of a meeting with HR.
My family and friends try to understand but I think they are getting sick of me forever postponing things as I cannot physically get out of bed, I think they think its just bad period pains...My mother understood as she suffered with it but she passed away suddenly in 2012.
I have ended up in A and E a few times this year but both times no one could help, Waited for 4 hours to be told they couldn't do anything and made me feel like I just wanted drugs... I didn't want to go as I knew they couldn't do anything but my Fiance insisted as he felt so helpless...
My Dr when I do get to see her is very sympathetic, but believes I just need to get pregnant which we are desperately trying to do, there really is nothing they can advise or give me now which they haven't already tried.
I was due to go for an MRI scan last week but that was cancelled and I am having a Hysteroscopy procedure in September but I am sure they will postpone that as they always do.
I really am struggling with the pain and the effect its having on me mentally. I feel like I need to accept that this will be my life and that's really hard to take in.
I am sorry to vent, I am having such a bad day pain wise, I wanted to get it off my chest somewhere, where someone may understand what I am going through as I am fed up of feeling so alone with this pain. xxx