Itching

[buryboy]

Getting to the point now ware I only eat my dinner (so my wife thinks everything is ok) as I can't stand the thought of eating any more. And the itching it's that bad I'm not sleeping at night.

[Viviola]

As difficult as it may be you need to try and eat. Be honest with your wife and tell her how you feel - I'm sure she'd want to know. Perhaps you could both come up with something that tempts your appetite. I know that I struggle sometimes to eat as I really don't fancy much or can't face what I'd normally eat. I try and eat little but often on these days. As for the itching I take piriton tablets which help a great deal with the itching which can drive you crazy! Have you thought about talking things through with your consultant/nurse or failing that one of the renal counsellors? Best of luck.

[buryboy]

I have some tablets with a long name that are like piriton. I find it hard to talk to my wife as her auntie died from kidney failure. In a way i would rather be on dyalasis rather than wondering when.

[nikityler in reply to buryboy]

Like you I hate the waiting, I was told I would need dyalasis last year but am still waiting, they are now saying not for another year.

[happyface]

buryboy i so understand the limbo is terrible .worried about saying anything as i know what ls ahead is not easy, but limbo is just as hard and when you do have a bad day you worry if this is it .

[buryboy]

A couple of people have said about renal counsellours how do you get 1?

[googie in reply to buryboy]

Should be able to get one through the Renal Unit. I know they have them attached to the unit where I live as one came to see me when they thought I was going to have a kidney removed. Ring the local unit up at the hospital and ask, if they aren't attached they will be able to help you x

[poppydolly]

no offence but i do not understand the comments above which appear to indicate a desire to start dialysis. i am the total opposite. my gfr is hovering between 9 and 10 and i am staying off starting until i absolutely have to. you all mention wives/family and perhaps thats why i look at things from a different angle because i have absolutely no support and that makes a world of difference

[buryboy]

Poppydolly, I'm not saying i won't to go on dyalasis because i don't for me it would mean possibly giving up work which would affect my income but the not knowing it's killing me plus i feel I'm being ignored because to look at me you would never know how ill i feel I'm so tiered all the time as i ask now I'm useless