Restless Legs Syndrome | HealthUnlocked

Restless Legs Syndrome

22,082 members • 15,896 posts

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Rotigotine patch

Has anyone used a Rotigotine patch for restless legs?

Bridall

•1 day ago

32 Replies

Has anyone considered or used legal prescription cannabis?

Hi All again, Sorry I keep asking for advice. I’ve been particularly dreadful last few afternoon/nights limbs all over the place, head nodding, grimacing...

Hi All again, Sorry I keep asking for advice. I’ve been particularly dreadful ...

Delilah162

•7 days ago

60 Replies

Help please

Hi, Im new to the forum hoping to get some ideas and advice. I’m was dx severe rls and periodic limb movement disorder last year by a Neurologist after having...

Hi, Im new to the forum hoping to get some ideas and advice. I’m was dx severe r...

Delilah162

•17 days ago

81 Replies

no more RLS!!

A huge thank you to SueJohnson for recommending me to go to Dr Mark Buchfuhrer. He knows RLS inside out. After spending a good hour with him about my history...

A huge thank you to SueJohnson for recommending me to go to Dr Mark Buchfuhrer. ...

cesoni

•1 day ago

22 Replies

UK RLS Patients Survey

RLS-UK is working with Joeli Brearley at Pregnant Then Screwed and have prepared a survey for completion. Would all UK members please complete? Many thanks....

RLS-UK is working with Joeli Brearley at Pregnant Then Screwed and have prepared...

Joolsg

•11 days ago

62 Replies

2 questions- Does buprenorphine give you insomnia?! Also what’s the best type to ask for?

one of my biggest problems is insomnia. Is rls and insomnia one in the same? which came first the rls or the insomnia? No idea. Sometimes I wake and then the...

one of my biggest problems is insomnia. Is rls and insomnia one in the same? w...

Islay9

•3 days ago

29 Replies

Hair loss and buprenorphine tablets?

As you all know I have been on low dose buprenorphine tablets for one year & I simply cannot believe I have been free of the dreaded RLS for 12 whole months...

As you all know I have been on low dose buprenorphine tablets for one year & I s...

Simkin

•4 days ago

31 Replies

Medication

Hello I have had RLS for around 7 years. I consider myself to have a healthy lifestyle. I exercise regularly, never smoked or drunk alcohol, have a healthy...

Hello I have had RLS for around 7 years. I consider myself to have a healthy ...

Y60NNEHS

•5 days ago

32 Replies

amitriptyline

Hi, My doctor is suggesting Amitiriptyline instead of pregabalin or gabapentin. I don’t know why. I’m in Manchester UK. Is anyone else on this? I’d like to...

Hi, My doctor is suggesting Amitiriptyline instead of pregabalin or gabapentin...

LunaWise

•4 days ago

29 Replies

Neupro Patch

Please do NOT let any GP or neurologist switch you to the Neupro patch (Rotigitone). It WILL cause worse augmentation than Ropinirole or Pramipexole and the...

Please do NOT let any GP or neurologist switch you to the Neupro patch (Rotigit...

Joolsg

•15 days ago

53 Replies

ferrous fumurate 320mg, diet and a few other points

hi I was taking iron bisglycinate but still getting RLS in my lower trunk and upper body and I suffer with BFS too slightly different symptoms but they...

hi I was taking iron bisglycinate but still getting RLS in my lower trunk and up...

Zenawarrior73

•3 days ago

22 Replies

Have you tried this or have you assumed it won't work?

Probably my last post because I solved my RLS problem. It's gone, and no drugs. I've posted this as a c omment in response to several individual posts but get...

Probably my last post because I solved my RLS problem. It's gone, and no drugs. ...

Bernaldi

•13 days ago

46 Replies

Nidra gadget for RLS

has anyone heard about this nidra technology which is available now in selected states in US! this gadget apparently is a wearble device non- drug therapy for...

has anyone heard about this nidra technology which is available now in selected ...

Mason21

•8 days ago

36 Replies

UK RLS patients' Survey

We have received over 3000 responses to the survey so far.This is fantastic as it will enable RLS-UK to show the scale of suffering and enable us to push for...

We have received over 3000 responses to the survey so far.This is fantastic as i...

Joolsg

•10 days ago

38 Replies

DAWS and the need to stay on DA

Hello, Those who have read my posts know that I've been struggling for a year to withdraw from DA. First, I was on pramipexole ER 0.26mg. I ended up on Neupro...

Hello, Those who have read my posts know that I've been struggling for a year to...

Mikatrap

•30 days ago

64 Replies

Probiotic when taking iron supplements

Morning all, I previously messaged about my husbands severe rls a few weeks back and since then and with advice from this forum he started taking magnesium...

Morning all, I previously messaged about my husbands severe rls a few weeks back...

Minijackrussell

•14 hours ago

9 Replies

Timing of Gabapentin dose

I was seen yesterday at by Dr Tarpara at Vanderbilt’s QCC for RLS. Officially confirmed augmentation from ropinirole usage. The RLS controls my life 7 days a...

I was seen yesterday at by Dr Tarpara at Vanderbilt’s QCC for RLS. Officially co...

Flowergarden2

•2 days ago

17 Replies

Neurologist in South of England

Hi fellow RLS people. Can anyone suggest a private neurologist in UK preferably South of England who will prescribe opioids? My doctor didn’t want to prescribe...

Hi fellow RLS people. Can anyone suggest a private neurologist in UK preferably ...

Alifromthegalley

•16 days ago

37 Replies

Best IRON supplements for RLS? Currently trying Pramipexole but learning about the risk of augmentation...

I am 33F. I had RLS (in my shins) as a teen-early 20s, but it was usually a sign of being tired and going to bed was enough. Eventually it got worse, moved up...

I am 33F. I had RLS (in my shins) as a teen-early 20s, but it was usually a sign...

Catsmeow13

•10 days ago

30 Replies

Very severe RLS seeking treatment

Hello, nice to meet you! My name is Ariane, I am 39 years old, I am Brazilian and I have very severe RLS. My symptoms started when I was 7 years old, but...

Hello, nice to meet you! My name is Ariane, I am 39 years old, I am Brazilian an...

ArianeGuerra

•5 days ago

20 Replies

Buprenorphine side effects- sertraline

I suffer from depression as a side effect from Buprenorphine and having tried pregabalin unsuccessfully (50mg/day) i asked my GP to prescribe trazodone. He was...

I suffer from depression as a side effect from Buprenorphine and having tried pr...

davchar23

•10 days ago

25 Replies

Clonazepam

I am just about to start this medication. Does anybody have any info they could share about Clonazepam such as side effects or successes maybe. I'm not quite...

I am just about to start this medication. Does anybody have any info they could...

soupersuzy

•4 days ago

16 Replies

Driving me crazy

RLS getting worse every night. I am considering stopping Sertraline before I see my GP. It’s only another 4 days but I’m really struggling. My whole body is...

RLS getting worse every night. I am considering stopping Sertraline before I see...

Squirmy69

•2 days ago

11 Replies

Buprenorphine evidence where?

As mentioned recently I have my nhs uk neurologist appointment soon and I’m gathering all my paperwork and evidence. I’ve looked at the Mass Gen study and...

As mentioned recently I have my nhs uk neurologist appointment soon and I’m gath...

Islay9

•5 days ago

18 Replies

Pramipexole

I have been on pramipexole 0.18 mg for about 8 years same dose, never changed. Obviously I've read about all the horrors of augmentation on here but I haven't...

I have been on pramipexole 0.18 mg for about 8 years same dose, never changed. O...

Enable

•26 days ago

38 Replies

Transitioning from Ropinerole & Gabapentin to Pregabalin

Hi, I just went to the new designated Quality Care Center at UPMC in Pittsburgh. The Dr. put me on 25mg of Pregabalin 3xs a day. 25mg at 5:00pm, 9:00pm at...

Hi, I just went to the new designated Quality Care Center at UPMC in Pittsburgh....

Jackiep1216

•15 days ago

29 Replies

RLS and DAWS on Twitter

Hi all, I wrote a document on my terrible RLS/DAWS story that I shared on Twitter: https://x.com/Michael59607421/status/1829055163278959077 Cheers,......

Hi all, I wrote a document on my terrible RLS/DAWS story that I shared on Twitt...

Mikatrap

•3 days ago

12 Replies

Intrathecal infusion of low dose morphine successfully used to RLS without inducing opioid tolerance.

https://www.researchgate.net/publication/382915405_Long-term_intrathecal_infusion_of_low-dose_morphine_effectively_relieves_symptoms_of_severe_restless_legs_syn

https://www.researchgate.net/publication/382915405_Long-term_intrathecal_infusio...

MrCrow

•22 days ago

34 Replies

Time to up the dose?

So I started buprenorphine a little over a month ago and the effect was incredible and immediate, so much so that i even tried to cut the 0,2 sublingual pill I...

So I started buprenorphine a little over a month ago and the effect was incredib...

Anthas

•17 days ago

28 Replies

Cure your RLS with castor oil

I have been suffering with RLS for nearly 45 years. I am now 75 and it is getting worse. I used to have several days between RLS attacks. Now I have one...

I have been suffering with RLS for nearly 45 years. I am now 75 and it is gett...

Deborahok

•18 days ago

29 Replies

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Don’t Light the Fuse of Restless Legs Syndrome with Dopamine...

Security/Privacy information for RLS-UK/EARLS community memb...

Opioids for RLS- some useful information

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