I was awake as usual when this came across from Dr. Marc Gallay....
Dear patients and families, news as promised. I was able to meet our investor this week. He is very motivated and I have his agreement in principle to move forward. The centre will be located in Bern (our capital) (the exact location is Ostermundigen). It's a brand new building, equipped with a state-of-the-art 3 Tesla MRI scanner. There is a clinic nearby and a nice hotel and restaurant 50 metres away. The centre is 100 metres from a railway station that connects with Berne's main railway station in 5 minutes 3-4 times every hour (from Zurich airport, 1h30 by changing train only once to our door). If you have any questions before the official opening (July-August), please contact us (Mrs Rossi and myself) at: info@sifus.ch. Of course more information will follow. Best regards. Dr. Marc Gallay
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eschneid
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if you are considering ptt fus in Switzerland I would wait a while for them to get established. The procedure by itself is not very predictable in terms of outcome and adding a new variable is only going to diminish the probability of the positive outcome.
The new variable is either that no one has seen a brain as large as yours or the new variable is just the new set-up, new location, new team sans Dr. J and new doctor in charge, I'm guessing.
eschneid . Your response makes no sense. I hope you are not mocking MBAnderson . His question was genuine. fnedorez70 's comment about a "new variable" is random. Your unnecessary response is mean and snarky!
I speak to Marc weekly. He is one of my go to people for advice. I trust him, and vice-versa. I was just having a little fun. Didn’t mean to upset you, that's not why I'm here. I hope you are feeling good and hanging in, like I wish for everyone here.
As there is only one hotel in Ostermundigen that I can see, and it is in a new building beside a much larger new building, and both are 40 meters from the train, I am guessing this is the place, if you want to walk around: google.com/maps/@46.9566381...
Mark, I basically describe my own experience. I saw improvement after the first procedure only to go to significant deterioration after the second. There are still some improvements : one of the most welcome is the lack of dystonia . However I see continuous deterioration of my balance, and many other PD related symptoms. This is in stark contrast to continuous improvement after the first procedure. I asked the surgeon before the second procedure if I should have it done and I was told that I could see pretty good result for the next year or two. I understand that in Switzerland they wouldn't do the second procedure for 1 year after the 1st one and only if there was a significant deterioration in PD. As part of the clinical trial I was supposed to have the second one done after 6 months which was delayed to 9 mo in my case. I can tell you more if you want to call me.
May I ask how is your tremor? And where did you have it done and do you know your skull density ratio?
I had the 2nd side done 13 months after the 1st side. I have serious freezing/gait problems, speech and balance issues, too, which I attribute to the progression.
No, Marc it wasn't I had freezing ( i still do although somewhat improved), off periods, ni gait issues, bradykenisia , crazy sensitivity to animal proteins
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