could use insight about preliminary diagnosis

[TravelingDragon]

Dr is considering Parkinson’s- did it start this way for anyone else?

For years I’ve been told I’m just anxious- that I have health anxiety.. but my new pcp is considering Parkinson’s as the potential cause to symptoms I’ve had no explanation for and is having me see a neurologist in 4 months

It started with random onset of severe anxiety I think?

I’m 34… I have started getting insomnia, like up every hour- fall back asleep, but wake after every hour..wildly vivid dreams, and RLS but in my arms and chest where I shake pretty violently - Tylenol seems to help for whatever reason

I have sluggish digestion, with no cause- first considered gastroparesis

My shoulders and upper back have been incredibly tight for 3 years with no real reason and they are painful daily

Struggling to swallow when I eat or drink; it’s like it feels like it’s going down the wrong tube every time I eat or drink and is significantly worse at night

Jaw tightness as if I’m just 247 clenching … I can relax some of my muscles but it takes over an hour of focusing to release

When my dentist does fillings I have a wild tremor in my lips and mouth

I’ve had probably 10 nights over 4 years where I get up to pee, take 4 steps and then straight drop to my knees as if my legs turned to jello- I get back up easily but for a few seconds it’s like I’m paralyzed

Fingers get stuck when cleaning or doing things like building a shelf (this one started in my 20s and only a few times a week but consistent)

[park_bear]

Maybe PD. Not exactly typical but many of us are atypical in one way or another. Responsiveness to levodopa medication would be one way to tell.

[park_bear in reply to park_bear]

Dystonia is another possibility

dystonia-foundation.org/wha...

[pearlette]

Again unusual

But similar symptoms occur in patients with psychosis who are treated with antipsychotics that target D3 and D2 receptors in all parts of the brain not just the ones in the basal ganglia (which is were most PD patients are affected)

With any luck if it is PD, an old fashioned test like responding to L dopa may give you the answer. But that would need to be under medical supervision.

Keep us posted

[pearlette]

I think you meant to reply to TravellingDragon.

[jujulini]

If you have mercury amalgam fillings in your mouth that may be causing your problems. There is a lot of info re mercury toxicity and how to detox correctly on the internet. Good luck to you finding the cause of your symptoms

[Gallowglass]

I have most of those issues and have a PD diagnosis. Things that help me are chewing gum frequently (aspartame free). Rock Steady Boxing. Physical therapy. Specific stretching for areas that are tense. Carbidopa Levodopa 25/100. 2 pills 5 times a day . Walking fast 30 min daily.

[Eryl]

Is a diagnosis important? After all it just gives the dr some standard strategies to mange the symptoms. Isn't it more important to find the cause? Take a look how this functional practitioner solved the probems of ADHD(all neurodegenerative conditions often share coomon roots though no two patients are identical. youtu.be/gUnCorMeFaM?si=lJ7...(Not working as expected?)

[Ctime]

I was also diagnosed with anxiety which I felt was never really correct and used NSAID's to help sleep before a PD diagnosis years later.

Low hanging fruit is to get a genetic test to see if you have PD genetic predisposition. Then ask you PCP if you can get one of the new tests that are fairly definitive for PD. Syn-one cndlifesciences.com/syn-one... being one. It is apparently fairly accurate for a positive diagnosis but even more accurate to rule out PD. Might save you 4 moths of waiting.

If you are going to see the Nero in 4 months keep a diary as rigorously as you can. Do the basics like daily blood pressure and O2 saturation that are inexpensive to track as well as triggers like the dental tremor.

Ideas of things to record

Do you get tremor of just the anesthetized parts or do you get tremor when you see the dental hygienist as well.

Other tremor and is it when you are trying to move (action) or resting

Are you dizzy when you collapse or is it just your legs giving out.

How is your sense of Smell?

Urinary urgency?

Does "sluggish digestion" =constipation.

Any meds, supplements etc.