I'm considering purchasing Symbyx's Red Light Helmet, and I would greatly appreciate comments by those who've used the device, since it ain't cheap.
I'd also like to hear from people who've tried other red light devices.
Finally, I read a comment by some neurologist saying that the red light helmets are effective for only one year.
Thanks.
Save your money. It has been proven BOGUS and not helpful except to the many sellers who are making a big time outrageous profit!!!
It's not bogus - I use one and it has slowed the progression
That’s a pretty amazing statement considering the results from fellow members here, including my husband.
Apparently some pwp think it helps.
I have used it for awhile and do not know if it helps or not, but it may, so I keep using it.
youtu.be/-5qZZ_qxnCo?si=VtE...
Again neurologists downplaying the “alternative” about which they don’t know anything . Go ahead and buy the helmet and the laser devise for the belly ! Will help ad infinitum . Follow the logic : activating mitochondria doesn’t stop after one year !
I purchased Symbyx laser a month ago. In one month, it has helped with constipation. I cannot use the neuro helmet as I have had several TIAs.
Symbyx customer service and techs are extremely knowledgable. I eas interested in purchasing their neuro helmet and was discouraged by Symbyx people. I was told it was not for me because of having suffered TIAs. Amazing! I was so impressed. They lost a $4,600 sale. I purchased their laser instead for $1,450.
My thought is if this laser helps with even just one PD symptom, it is well worth it to me.
Good morning. I was dx 4 years ago and I have been using the helmet made by Well Red Auatralia for almost 3 years but only once a day. I will definitely continue to use it as I believe it works. My sense of smell and taste are good and my handwriting is back to what it was with no shakes. Now I just need to work on the FOG which I’m doing with the help of the CUE1 device.
My wife doesn’t have PD but she has used the red light therapy via the Therapad to reduce the pain of arthritis in her hands and knee.
I haven’t tried the Symbx device. Yet.
My husband has used the Welred red light hat device for a few years now, daily except where he can’t, as we don’t take it on holiday. We do notice when he doesn’t use it.
Also like the post above he has had the Cue1 for just over a year and his walking, speed and gait is really good as well as arm swing. It can’t be just placebo, if it is he’s still going with it. He was dx 8 years ago now, and mobility has been maintained without taking more C/L in fact he takes less than five years ago!
Sorry to be lazy - I'm trying to avoid going down another research rabbit hole! - can anyone tell me roughly what the helmet (and ideally also the Cue1) cost? These are both new to me. Thanks!
The Cue1 is about £300 but has a money back guarantee if you don’t find it useful!
Very interesting! I don't have gait issues other than balance (undiagnosed but have pill rolling tremor and other early symptoms) but it's great to know it's there.
I wonder how much the symbx device is
If you don’t want to buy one you can make one,I’m a technophobic idiot and I made one for my husband.It works.If he goes without it for 2 days or more we see a difference.Look up redlights on the brain.Read the info,and then decide.
I have used the wellred helmet and intranasal for 3 years, and recently the Symbyx handheld unit. Red light has been helpful for me, for brain fog and for my sense of smell.
I been doing it for a few months with a pad but got the Coronet helmet from well red company out of Australia. Been doing that for a month or so. The studies show it is a slow progression so we will see. It can't hurt only help in my opinion. Waiting on the nasal portion that was sold out.
I have been using both the Symbex laser (for my stomach) and the helmet. Also B1 therapy. Something is going well, I have a very slow progression of disease after 4 yrs diagnosis. I also take meds and 1 hour a day exercise. The helmet is easy to use and reasonably robust (not as happy with the hand held laser), but somethings seems to be helping (but I am not sure what), Bruce
Thanks to all for the responses.
Still wondering which is more effective: the Symbyx Red -light Helmet, the Wellread R/L Helmet, or the Cue1 , which I think is some kind of vibrating wearable product?
Also, is there anything out there that's more effective?
Perhaps even more effective is free sunlight that contains all the necessary infrared radiation and while this cannot be proven, this summer has contributed to a huge improvement in my PD symptoms and reduction in C/L dosage. 'In my post ''summertime'' is written about this and there you can also find the link to the very interesting video 'Light as medecin, vit-D isn't enough' by Dr Roger Seheult
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