DIAGNOSIS POLLS Q1: When you were diagnos... - Cure Parkinson's
DIAGNOSIS POLLS Q1: When you were diagnosed, was the QUANTITY of information you were given
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On line and from blogs and web sites is my primary source of information. Makes me wonder sometimes if the dearth of physician provided information is by design, because they are so busy, or because so little is known.
When I was finally diagnosed the Consultant was so offhand. What I know was given to me by another Consultant and also because I had a relative with Parkinsons so read up on it to help her. Ironically, I was later diagnosed myself.
wonder if you have the same consultant as me
The information my husband was given when diagnosed was about right - but only because it was me who first thought he had parkinsons, and so I had done a lot of research about it before we even went to the doctor. Apart from repeating his prescription now nothing else is said about it.
I was given a small (scary) brochure and a prescription for sinemet and told to call him in 2 weeks to see how I was feeling. Have a movement disorder specialist now.
My GP first intimated that I may have PD. I therefore read extensively on the subject, mainly from the Internet and perhaps had too much knowledge when I was seen by a neurologist, who was informative and honest about the condition.
My Domestic Partner is a RN and she diagnosed me before my doctors knew! My doctors thought (it) was a back problem. But my DP said it looks like a Neuro problem. And sure enough I went to a Neuro DR and he diagnosed me with Hemi-Parkinson's. I knew about Parkinson's because I have 5 people on my father's side who had or have Parkinson's and also my DP knew alot about it. My Neuro DR is a good Doc also, great bed side manner's. He even called me at home a couple of times! He even will see me with out insurance! DR Malcolm Bucchus of Reno Nevada. It is very scary to have this disease because,I don't know what will happen next..
I went home and started on the web, I got an idea, but never thought it would be like this. I have only had PS for 3 years and it is the pits.
ERIC
Only information we came across was by picking up the leaflets while waiting for the consultant . Came across ParkinsonsUK and joined .
I was officially diagnosed then within 4 hours later I was at a weekend retreat conference for young onset PD that I had found 4 weeks earlier on my own. Dr gave me no info. I registered for conference because my family dr told me she thought I had PD after being miss diagnosed 8 months earlier
I was referred by my GP to a Neurologist. I saw him when I just had a tremor in my hand.
He looked at the tremor and said,"You have Parkinson's." Come back in a year to see me. Then he just walked out. That was it!
