24 hour FLASHPOLL #2: How would you MAINL... - Cure Parkinson's

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24 hour FLASHPOLL #2: How would you MAINLY define the experience of going "OFF" for you?

JonStamford profile imageJonStamford88 Voters

Please select one:

12 Replies
Hikoi profile image
Hikoi

Id add emotionally labile to the mix of off symptoms

Margaret1 profile image
Margaret1

I experience more than one symptom,although balance problems and a reduction in ability to move are the most prevalent symptoms.

honeycombe3 profile image
honeycombe3

Although I experience most of the symptoms the one which stops me functioning is PAIN. It impairs my judgement, makes me talk gibberish, affects walking & motor skills & makes my tremor very pronounced.

Lindylanka profile image
Lindylanka

a combination of about 4 in the list, if there had been a choice of all or some of the above, that would have described me.

Pete-1 profile image
Pete-1

For me there is a degree of fear. Fear of falling or fear of getting stuck n a place where it is not good to get stuck like the middle of the road.

Annie81963 profile image
Annie81963

I agree with honeycombe3,summed it up well!

MagicMax profile image
MagicMax

I think everyone experiences a combination of problems that can vary; sometimes depending on the time of day. I experience stiffness; some freezing: causing the "stutter step:" and sometimes pain. About 10:30 AM, it is mostly pain with some stiffness. Around 2:30 PM, an equal amount of stiffness and pain. Around 6:30 PM, stiffness, pain, and dyskinesias. Sure wish all PD researchers and research money could be consolidated in one place so a cure might be found A.S.A.P.

Yogibear profile image
Yogibear

For me "off" means dystonia of the calf muscles and greatly reduced ability to move.

Hokuto profile image
Hokuto

I voted for "confused or slow thinking," but it's really more than one; balance and speech are likewise affected.

purelabor profile image
purelabor

I become exhausted. A total body exhaustion after about 2 hours in the early day. Speech and slowed movement also.

fishinggirl profile image
fishinggirl

Fatigue, internal tremors, confusion, joint pain, tic in left eye, very slow movement, bang into stuff like walls, doorways, then take more meds quickly

PatV profile image
PatV

but also feeling low, increased pain, inability to urinate

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