I just finished Cycle 6th on my Venetoclax plu... - CLL Support

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I just finished Cycle 6th on my Venetoclax plus Ibruvica trial. So far so good!!

Hoffy profile image
15 Replies

Hello,

As an update I just went to the doctors and my numbers are good. WBC was 1.9. ALC 0.9 WBC was 50 when i started in January. My Nodes were very large though.

I just finished Cycle 6th on my Venetoclax plus Ibruvica trial.

I was Nuetropenic so they gave me a shot to boost my ANC and it worked. Came up from 0.8 to 7.8 in 2 days. That brought up my WBC to 9.6 .

My IGG, IGA, IGM are for the most part getting better.

IGA: 74 (normal)

IGG: 678 (low): normal range 700-1600

IGM: 17 (low): normal range 40-230

PLT improved to 155

Over all I feel OK. I had a small outer ear infection that was helped with antibiotic drops.

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Hoffy
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15 Replies
baq724 profile image
baq724

Great news! I think this combo might be the best yet and lead to even better things! Hope you continue to improve!

Hoffy profile image
Hoffy in reply tobaq724

Thanks. Hopefully the winning combo!!

Justasheet1 profile image
Justasheet1

Great news Hoffy!!!! Those numbers look 👀 great!!

Jeff

DMary profile image
DMary

Glad for the good news. Enjoy summer!

Ballyhoo77 profile image
Ballyhoo77

Great news this may be the miracle combination. Wishing you the best.

Great to see those sweet numbers. thanks sharing- bill

BCTexas profile image
BCTexas

Good to hear. I had my three month follow up with my oncologist at MD Anderson yesterday. The very first thing the doctor said when he walked in the door after I had my blood work done "Are you ready to start treatment"?. My wife and I looked at each other and I didn't know what to say. I said I wanted to wait three more months. I just need to clear my head and get mentally ready. They offered me the same trial Ibrutinib and Venetoclax. But he said if I wait too long I will miss the opportunity. So much is going through my head. It helps to hear positive stories like yours.

Best Wishes

BC

pkpayne profile image
pkpayne in reply toBCTexas

Who is your doctor at Anderson? At my last appointment in early April they told me that I would likely start treatment in September. There were 2 trials and in one of them one had to be under 70 and I will be 70 at the end of September so they have me coming back in early September to see how I'm doing. I can tell my disease is progressing but I still feel okay. I'll know more after my next labs.

BCTexas profile image
BCTexas in reply topkpayne

Dr. Thompson.. Is my doctor at MD. I am 48. Like you my disease is progressing but I still feel okay.

I think it's probably best to start treatment while you still feel well.. It's just hard to pull the trigger.

Wishing you the best on your journey

pkpayne profile image
pkpayne in reply toBCTexas

Yes you are very young and I feel like you do - I hate to start treatment when I feel as well as I do. But I also don't want to wait until I'm at death's door with nothing left to fight with. I see Dr. Wierda and I really trust him and don't think he would start treatment if he didn't feel I needed it. Good luck on your journey as well.

BCTexas profile image
BCTexas in reply topkpayne

Thank you sir

Hoffy profile image
Hoffy in reply toBCTexas

If you need treatment and get treatment you definitely appreciated. If you don't need treatment it is a high bar to overcome .

Are you close to needing treatment? If you are not there are many times other trials . Although I think this is a pretty good one

BCTexas profile image
BCTexas in reply toHoffy

The doctor told me it was time for treatment. I told him I wanted to wait three more months. I just need to clear my head. It's hard to make the commitment but I know I have to do it.

pkpayne profile image
pkpayne

Hoffy what great news! Hope things stay on the right track for you. Keep on keeping on!

rlyndecker profile image
rlyndecker

Sounds great!

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