stages of liver disease : hi I have had... - British Liver Trust

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stages of liver disease

Disney2023 profile image
10 Replies

hi I have had a fatty liver for a number of years I am diabetic type 2 my liver function test come back as ok but had endoscopy the doctor told me I had waves on a liver scan I had 2 years ago I have low platlets and white blood cells and portal hypertension havnt seen anyone yet about it doctor should be sending me to see hematologist does anyone have any positive information I am going out of my mind with worry

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Disney2023
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10 Replies
AyrshireK profile image
AyrshireK

Hopefully your doctor is sending you to a hepatologist (liver specialist) rather than haemotologist (blood specialist). Once you've seen the liver doctor they should be able to let you know better what is going on. It's good news if most of your liver bloods are normal in that it shows no sign of decompensation but it's possible your fatty liver disease has progressed. Have you been taking any steps to help your fatty liver post diagnosis with that? The British Liver Trust has some excellent guidance on treating NAFLD with healthy diet and exercise at:- britishlivertrust.org.uk/do...

If your liver isn't totally cirrhotic there is potentially still the ability to reverse some of the damage done and certain prevent progression.

Katie

Disney2023 profile image
Disney2023 in reply toAyrshireK

thank you for reply no I havnt been taking any steps to improve my weight but since finding this out I don’t think at the moment I could eat anything rubbish it’s made me not want to eat

tipovtong profile image
tipovtong in reply toAyrshireK

I agree 100%, it is far easier to adjust your lifestyle and diet when you still are still in the position where there are choices and not an absolute necessity.

Disney2023 profile image
Disney2023 in reply toAyrshireK

hi tomorrow going for my first ultra sound and blood tests then seeing heptologist in April I’m so scared what they will see been healthy eating and lost 13lb in 4 weeks plus walking and swimming I hope it as helped 🙏

Tuppence68 profile image
Tuppence68

my advice is stay off the internet searches until you have seen the specialist and discussed your situation, it just creates more anxiety. Try and eat a healthy diet, vegetables and a little fruit, cut out sugar and eat some good fats in small amounts, butter, cheese yogurt) no hydrogenated oils or fats and lots of water. If you’re a coffee fan that can have some benefits also. walk a little each day if you can and learn some relaxation techniques. sending well wishes for a positive outcome.

Disney2023 profile image
Disney2023 in reply toTuppence68

thank you for reply and advise do you think my health could improve

Tuppence68 profile image
Tuppence68

I cannot answer that question I am not a medical expert but I do know no matter what your health status is following a natural (no processed food) and healthy diet goes a long way to improve any health issue. Toxins and chemicals and highly processed food is the catalyst for almost everything (minus genetics etc) that causes inflammation and illness. The liver has to filter all that rubbish so is in overdrive constantly if you add alcohol into the mix it’s even harder for your liver to keep up. I am sure if you speak with your doctor and get on the right track nutritionally you will be in a much better place. Xx

Disney2023 profile image
Disney2023 in reply toTuppence68

I feel a little better coming on here and reading mostly positive comments than googling for hours about symptoms x

Marydel63 profile image
Marydel63

Hi Disney2023,

You are not alone. I started out with fatty liver. Probably in my 20’s. They always said oh just fatty liver. Then fast forward 30+ years later I have Cirrhosis. I will try send you a message

BritishLiverTrust3 profile image
BritishLiverTrust3AdministratorBritish Liver Trust

Dear Disney2023,

If you [are in the UK and] would find it useful to talk things over, our nurse-led helpline is open Monday to Friday from 9am to 3pm on 0800 652 7330 (excluding bank holidays

We also facilitate a range of virtual support groups for people living with a liver condition (and their families and carers) including a group on NAFLD

If you [are in the UK and] would find it helpful to speak to others with shared experience, you can register to join a group here

britishlivertrust.org.uk/vi...

Best wishes

British Liver Trust

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